Caregiver Burnout: When Someone You Love Is Chronically Ill

aging manThis evening my local newspaper contained this sad headline: “Maryland couple found dead at home.” A husband and wife, both aged 72, died in an apparent murder-suicide. The wife reportedly had a stroke a few years ago, and the husband’s health had recently deteriorated as well, according to the story. The article quoted friends of the family who said that while the husband was devoted to his wife, he had become overwhelmed by the demands of caregiving combined with his own health problems.

No matter the circumstances, this is a tragic story. While reading it, I couldn’t help but think about the difficulty faced by so many caregivers with whom I have worked. Each one expressed absolute determination to care for his or her spouse without assistance, believing that no one else could do it as well. The loyalty, patience, and nurturing care demonstrated by these individuals are admirable, perhaps even saintly. But nobody, even the most patient person on earth, is immune from the effects of putting someone else’s needs above one’s own day after day, week after week, month after month.

According to WebMD, caregiver burnout is defined as “a state of physical and emotional exhaustion” resulting from the one-sided nature of caring for someone who is chronically ill. The person who is sick does not intend to burden his or her caregiver, but the nature of being unable to care for oneself creates that one-sided dynamic. The spouse who is caring for the ill person may be happy to take on the responsibility of feeding, bathing, and taking his or her loved one to appointments, knowing that were the situation reversed, the other person would gladly oblige. Even so, constant caregiving for a chronically ill spouse can disrupt one’s life in multiple ways. Many caregivers are reluctant to reach out for help, which puts them at risk of burnout.

Help is out there! Caregivers do not have to feel alone.

According to HelpGuide.org, here are some of the signs and symptoms of caregiver stress leading to burnout:

  • Anxiety, depression, irritability
  • Feeling tired
  • Trouble sleeping
  • Increased health problems of your own
  • Difficulty concentrating
  • Increased feelings of resentment about caring for your ill loved one

If you feel that you may have some of these symptoms, please don’t wait to ask for help!

Fortunately, if a caregiver begins to experience some of these symptoms, it is not too late to make changes. The following self-care tips, from CareGiver.org, can reduce caregiver stress and lessen the risk for burnout:

  • Practice stress-reduction strategies. Examples include taking a yoga class, learning deep-breathing techniques, meditating, praying, or chanting.
  • Get plenty of rest.
  • Maintain a routine including nutritious meals and a regular bedtime.
  • Exercise! Walk, run, swim, stretch, or take a group exercise class at a local gym. Try to get a minimum of 10 minutes of exercise daily.
  • Schedule time off from caregiving. Whether you ask for help from a family member, a friend, a neighbor, someone from your religious community, or hire someone from an agency, it is healthy to take a break.
  • Ask for help. People who care about you and your loved one are likely to be glad to offer support.
  • Reach out for support to help you with your feelings. Talk to your pastor, a trusted friend, or a counselor. Many communities have support groups for caregivers.
  • Remember, you must care for yourself in order to care of someone else. There is nothing selfish about caring for your own health.

Your local department of aging/disabilities can guide you to the resources available in your community. It’s important for your chronically ill loved one that you are taking care of yourself while taking care of him or her. You can also find help here. The National Center on Caregiving has numerous outstanding resources to help you.

To find a therapist for help with caregiver issues/stress, click here.

© Copyright 2014 GoodTherapy.org. All rights reserved. Permission to publish granted by Laura J. Reagan, LCSW-C, therapist in Severna Park, Maryland

The preceding article was solely written by the author named above. Any views and opinions expressed are not necessarily shared by GoodTherapy.org. Questions or concerns about the preceding article can be directed to the author or posted as a comment below.

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  • Glen

    Glen

    March 26th, 2014 at 4:16 PM

    This can be so draining on anyone in this situation, but think about if this is someone that you have been married to for a very long time and all you feel like you can do is sit back and watch helplessly as they deteriorate right before your eyes. You must feel so helpless and at the same time it must be quite stressful living with all of the things that he or she then expects and needs you to do for them. You have to be willing to ask other people for help. It would be great if there were people who were always there willing to jump in at a moment’s notice ready to help but unfortunately I think that a lot of times people are afriad that they are intruding so you have to be willing to step up and ask. Most of the time those who care are going to understand and if you just say the word they will be there willing to do whatever you need.

  • ariel

    ariel

    March 26th, 2014 at 4:44 PM

    Don’t ignore yourself at the expense of another. If you do then you might find yourself needing just as much care as the one you have been looking after and caring for.

  • Ola

    Ola

    March 27th, 2014 at 3:37 AM

    There are some couples who don’t want to have to be away from each other and this can make it so hard on both of them.
    The person who is sick can feel very heaitant about letting someone else do anything for them which can make it very hard for the other to go out and do something for him or herself.’They have a ear that what if something happened when they were gone and then there would be all of this guilt that they carried with them that perhaps this would not have happened had they been there with their loved one.

  • harry

    harry

    March 27th, 2014 at 4:05 PM

    The bad thing is that even though you tell people in this situation time and time again that thye don’t have to go through this alone they have a hard time believing that there is any support for them out there. You have to almost put it right there in their face for them to really see that there is help for the too, Now whether they will be willing to take it that is a whole other ball game but there is a little work to do on all ens=ds to get the to see that they don’t have to do this as a solo game.

  • grace

    grace

    March 28th, 2014 at 3:47 AM

    That is such a sad headline that you started off with and yet it is not uncommon. There are so many times that people just reach their breaking points and after so long they decide to end it all rather than go through another day.

    You would hope that there would be a dtronger support system in place to help couples and families like this who are struggling with issues in caregiving scenarios because it can be difficult for anyone involved and can take away a whole lot of time and energy. And in this case and so many others, it can also take away the will to continue to live in both parties inbolved.

    Please, if you know friends and other family members going through this don’t let them go through this alone. We all need help, even if wear e not willing or able to ask for it.

  • Jeri

    Jeri

    March 29th, 2014 at 4:59 AM

    This can be a very stressful time for anyone, and to find a loved one going downhill so quickly can be very traumatic, whether you are the caregiver or you are witnessing a friend or family member having to devote all of their time caring for another. If they seemed to be burned out on it, they probably are! Don’t charstise them or beat them up about it! They certainly do enough of this to themselves already because you know that they probably carry around a lot of guilt because of it! Instead let them know that you are there for them and offer a hand when you feel like they could use it.

  • hank

    hank

    March 29th, 2014 at 12:06 PM

    You have to keep your eyes open to the possibilities of what could happen especially if the couple is older and one of them has had to take on a lot more of the work for the other.

    Think about the role reversal that may have had to occur or the things that one has had to give up to be able to fill this role.

    Many times they may not even realize just how overwhelming and stressful this will be until they are already consumed by it, and often since they are so unfamiliar with the role they don’t ask for help because they are not even sure what they should begin to ask for.

  • TIM

    TIM

    March 30th, 2014 at 9:13 AM

    How about checking in on these neighbors when they are elderly from time to time? You know that this will make them feel good and it will help you keep a check on them to make sure that they are doing okay and thet they don’t need anything.

  • Laura Reagan

    Laura Reagan

    March 30th, 2014 at 6:48 PM

    Thank you all for your thoughtful comments! I have worked as a hospital social worker and as such I met many loving spouses who were overwhelmed by the demands of caregiving but unwilling to seek help. However, that job also taught me that there are so many resources out there to help families in this situation!

  • Laura Reagan

    Laura Reagan

    March 30th, 2014 at 6:52 PM

    Tim – this is a great suggestion. Neighbors can help by offering respite to the spouse or running errands and doing heavy work around the house. Jeri – that is so true. Family and friends can be immensely helpful by offering a listening ear, cooking a meal, offering to run errands, etc. Grace, Harry & Hank – I agree that often people don’t ask for help because they don’t know what to ask for, who to ask, or what they even need.

  • Laura Reagan

    Laura Reagan

    March 30th, 2014 at 6:55 PM

    Ariel, you are right! It’s all about self care! You can’t care for anyone else if you are unwell.
    Glen & Ola – definitely the dynamic between the couple can make it difficult for the caregiver to put his/her own needs first – and I think the love and loyalty felt by the caregiver, combined with his/her concern about the spouse’s health, leads to the caregiving role consuming all of his/her time and energy before he/she even realizes what has happened.

  • Iris

    Iris

    March 31st, 2014 at 3:54 AM

    I think that you hit the nail on the head wheny ou point out that this is always about putting someone else ahead of you at all times and this can be a challenege for even the most saintly person! You can’t do this all the time and still be expected to maintain normalcy and balance within your own life. This is why I think that you will see so many articles like this that tell you how much you still need to care for yourself and focus on your own needs from time to time. You can’t lose sight of who you still are, because you are still so much more than just this one role in life.

  • jennifer

    jennifer

    June 8th, 2014 at 6:57 PM

    Caregiver burnout is very real and very serious. Watching a loved one become sicker and not receiving help from family members can make the caregiver feel empty inside and very bitter. Please remember that caregivers matter too.

  • Norton

    Norton

    November 25th, 2016 at 2:01 AM

    Laura Regan, have you considered trying it yourself 24/7 for at least 5 years and then answering the question again. Nothing pisses off a caregiver who is carrying the entire burden because others are not able to or will not help. Stupidly suggesting people check in on their older neighbors is the moder day equivalent of Marie Antoinetter saying “if they have no bread, then let them eat cake” – out of touch with reality and overly simplistic answers. Yes, I am burned out – FEH to all who would advise without experiecing what it is like

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