High Stress Levels in Parents of Adult Children with Mental IllnessFebruary 13, 2012 • A GoodTherapy.org News Summary
Any caregiver is likely to be vulnerable to stress. However, parents who care for a child with a serious mental illness (SMI) are at increased risk for adverse physical symptoms resulting from stress. Those who care for an adult child with SMI are even more likely to experience the negative effects of stress because of the length of time that they have had to cope with the difficult task of caring for a loved one with mental health issues. Although there is a vast amount of evidence showing how caring for a child with SMI can negatively impact a parent’s psychological health, there is scant clinical evidence highlighting the deleterious physiological effects to the caregiver. Erin T. Barker of the Waisman Center at the University of Wisconsin-Madison addressed this specific dynamic in a recent study by examining the cortisol levels in individuals charged with the care of adult children with SMI.
For her study, Barker asked 61 parents of adults with depression, schizophrenia, or bipolar to complete a stress diary and submit daily saliva samples over a period of several days. The cortisol levels of the participants were compared to the levels of 321 parents of adult children who had no mental health concerns. Barker discovered that the cortisol awakening response (CAR) of the parents of adult children with SMI increased less significantly half an hour after they arose in the morning than the control group. This suggests that the caregivers had a higher stress level upon waking than did the control group. Additionally, Barker found that the cortisol levels of the caregivers declined less throughout the day than did the cortisol levels found in the parents of adult children who did not have SMI.
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“The fact that a similar pattern of hypoactivated daily cortisol in response to stress has been found across studies of parents of individuals with different diagnoses (i.e., schizophrenia, autism, developmental disabilities, and in the present analysis, SMI) and that used different measures of stress (i.e., behavioral problems of the adult child with the diagnosis, time spent with the adult child, and in the present analysis, daily stress not necessarily associated with the adult child) provides strong converging evidence for this effect,” Barker said. She added that these findings underscore the importance of addressing the mental health, physiological health, and coping needs of aging parents who care for adult children with serious mental health issues.
Barker, E. T., Greenberg, J. S., Seltzer, M. M., Almeida, D. M. Daily Stress and Cortisol Patterns in Parents of Adult Children with a Serious Mental Illness. Health Psychology 31.1 (2012): 130-34. Print.
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The preceding article summarizes research or news from periodicals or related source material in the fields of mental health and psychology. GoodTherapy.org did not participate in or condone any studies, or conclusions thereof, that may have been cited. Any views or opinions expressed are not necessarily shared by GoodTherapy.org.
erin nFebruary 14th, 2012 at 5:24 AM
There is no parent that should have to deal with something like this in their child, but there are those who do and some handle it well and others are filled with the stress and pressures of having a child with this kind of disability. This is not something that most of us would imagine parenthood being like, but for many parents this is the reality that they have been dealt. It does not make it easier but there are some very good support groups out there who can better help them deal and face the issues that are sure to come their way.
Mary GraysonFebruary 14th, 2012 at 4:34 PM
I feel so bad for these parents who have dedicated their whole lives to taking care of their children who have disabilities. That takes so much strength, something that I am not sure that I would have the endurance to do for the duration of their lives. It seems so bittersweet that they have to dedicate all of this to those kids- I know that the children cannot help it and the parents are dealing with the cards that they have been dealt, but it feels like such a shame that all of these lives get used up in this way.
Randye KayeFebruary 15th, 2012 at 12:58 PM
I’m mother to a wonderful young man who has schizophrenia, author of the memoir about it (called Ben Behind His Voices), NAMI educator (Family to Family)and blogger…and the post I’m working on now is called Mental Illness and Families: the “Burden of Care”. This is a sensitive and important subject for us all, as we strive to balance our loved one’s independence with their needs, and our own lives with those of the people we love. Stress, indeed – I am not surprised. We do, like it or not, parent our children “for better or worse” – but I will say that education about mental illness saved our emotional lives. My family knows we take care of others when we can, but also must take care of ourselves or the results are not pretty.
SamFebruary 15th, 2012 at 1:54 PM
I grew up with an uncle who had to live his whole life with my grandparents because he could not live on his own. They never once complained about the constant care and the sacrifices that they had to make because that was his child. Some people said it was a blessing when he died but my grandparentsgrieved and grieved because he was always their little boy and they loved him more than you could ever imagine. No matter the situation it is never easy to lose and bury your own child.
C n SeeFebruary 15th, 2012 at 11:45 PM
Parents may love the child and take care without a single complaint ever but it does take a tool on them.It snot easy caring for an individual with a health problem and is bound to have stressful and thereby making things even difficult :(
michelleJune 25th, 2012 at 12:11 PM
Then there are the added complications of legal problems some of these children experience. As a mother to an adult child who is bipolar, I was not prepared for him to also have to navigate legal troubles that resulted from his behavior. Truly, nobody I know can understand how terrifying this is. His birth mother is deceased so there’s no place to go for genetic history. And the courts don’t seem to care that the offenders have issues that incarceration alone cannot fix. It’s a very scary addition to an already stressful existence.
AngelaJanuary 16th, 2013 at 8:56 AM
I have a son that suffers from a TBA from a MVA. He has the same things as schizophrenia. He also has so much anger. Me and his father are at a loss. He has tortured us now for the past 7 years. His dad has just had a break down. This can not go on forever, what can we do? We love him but he is not the son we raised.
Leslie AdamsonMay 6th, 2013 at 9:57 AM
I am a mother of two schizophrenic daughters. I have been trying to care for them for 12 years. One lives with me and I cannot continue since my mental and physical health is now coming to an all time low. I have done this alone with the help of DMH. I know that I will have to find permanent housing for the one who has lived with me. This is an unbearable thought..it is like asking me whether I want to cut off my left hand or my right hand. I feel guilty that I am no longer able to bear it, but I am even more stressed not having her by my side. I simply can’t handle it anymore. I am working with DMH. Any words of encouragement or support out there?
RuthJuly 26th, 2015 at 2:04 PM
Hi Leslie. I’m sorry that you are faced with such an agonising decision. 7 months ago I was forced to make the same decision. We were moving house and decided enough was enough. I could no longer cope with the stress of living with my 22 year old son who has ASD and severe OCD. His mental health problems had got so severe that he had stopped going out, washing, changing his clothes, shaving and was barely eating. He was 6ft and weighed 9 stone. I could no longer bare the stench of urine in the house and could not cope with cleaning up the pee in the bathroom floor. Worst of all I could no longer bare the agony of helplessly watching him deteriorate. I made an appointment to see his GP and told him that we would not be able to accommodate him in our new home. This triggered an assessment from the crisis team who assessed him and decided that he would be best placed in a care home. I was heart broken and still live with the constant guilt but I know that I made the right decision. One of the AMPS that assessed him said that if he stayed living with me he would never have a life and neither would I. Sometimes you have to be strong and put your emotional feelings aside in order to do what’s best for them. It’s hard at first but things do get easier with time.
Ingrid BrandaoJune 12th, 2013 at 5:31 PM
It seems that we have much in common….I have two adult sons, age 27 with schizophrenia. Fortunately, I have my husband, but our lives are very painful and stressful, as you know.
Maybe, we can help each other cope.
LorettoAugust 1st, 2013 at 10:30 PM
I’m actually on the flip side of this situation. I’m disabled due to a mental illness (Bipolar Type II and Generalized Anxiety Disorder) living with my elderly mother. My illness is not so severe that my mother is caring for me, but I started looking for alternate housing last year, when I realized that my mother is actually contributing to my illness. This past spring, I started to pull out of a three-year major depression in which my major form of exercise consisted of turning over in bed to lie on my other side for a while. I begged my mother to push me assign me a few household chores, make plans for shopping trips the next day for me to go along on, and her attitude was, I’m an adult, if I want to lie in bed all day I should go ahead and do that. As I’ve become psychologically less depressed, I’ve developed a lot of physical problems and illness, which I think is at least partly depression related. I had started managing my anxiety by meditation and other holistic means. And my mother has become increasingly emotionally abusive- not yelling and screaming, but playing sick little mind games. I’ve applied for housing in several other buildings over the past several months, but waiting lists for low-income and disabled housing are years long. Things came to a head last week. I had just gotten a part-time job as a video chat hostess working over the internet, and so while I’m stressed over my new job (I really like the job, but the apartment is too small for me to have a permanent workspace, so setting up and tearing down is a lot of work) she has been laying additional obligations on me, leaving housework undone at about the time I would need to be setting up my workspace, and nagging, nagging, nagging. You’d think she would be glad that I have something that helps with my sense of self-worth and contributes to the household income and cut me a little slack until I get settled into the job and can get a routine going. I had to go back on my anti-anxiety medication largely due to her abuse. The other day, I reached a breaking point, and contacted my DMH worker and told her if I didn’t get into new housing soon, I’m either going to commit suicide or become violent toward my mother. My DMH worker told me my situation is actually common- elderly parents will emotionally abuse a mentally ill or disabled adult child to the point that they crack and either threaten violence or actually hit them, then cry “elder abuse”, and once that accusation has been made, you’re guilty even after proven innocent and will never be able to get into disabled housing where there are elderly people living in the building (which is the case in nearly all housing for the disabled). The stress and abuse has affected my physical health to the point I’ve had to take off work in order to recuperate. I’m an independent contractor, so I can do that, but it makes me look really unprofessional and the company I’m working for is not happy. My DMH worker may be able to get me into housing within the next couple of months, but the rent will be more than 80% of my SSDI income, so I need to get back online and working again so I can start making enough extra income that I can afford the rent and utilities. Meanwhile, over the next couple of weeks, I’m going to be contacting the Housing Authority and see if I can get bumped up on the wait lists because I’m in a crisis situation, but for the time being, I just have to white-knuckle it.
sherie h.September 13th, 2015 at 1:12 AM
Be strong loretta you’ve come this far ….
KarenMarch 8th, 2014 at 5:11 PM
I am having a really hard time. We have been parenting my son who struggles with depression, anxiety, mood disorder,ADHD, learning disabilities and now substance issues. He is 19 and we had to have him removed from our home. It is tearing out my heart and soul. I know that we have done all we can and will continue to support him as best we can. It’s hard to function like all is ok and to grieve for all of our suffering. It’s hard not to feel helpless as you watch things unfold. I look at other young men and wonder why.. It’s so sad.
VictoriaApril 16th, 2014 at 6:58 PM
I have borne the brunt of my son’s bi polar outbursts and abuse of our entire family since he was a young boy. He is now 18 and we can’t really distinguish the mental illness from his abusive personality traits that smacks of his father’s behavior (which is why I divorced his father). I just can’t take anymore. My cortisol levels are through the roof, I hardly eat and yet am overweight, of course, it’s the cortisol, and my son’s revolting behavior towards my husband, his step-father, a man who has provided all a father could and more (his bio dad fled the country to get out of paying child support) has nearly destroyed our marriage. At what point, do I have the right to tell my son to just leave, get out and leave us alone. I have nursed him through two suicide attempts and now he uses the threat of suicide to coerce us into giving in to whatever he demands of us. I don’t even know who he is anymore, I mean, really, he bears no resemblance anymore to the sweet little boy I loved and tried as hard as I could to raise well and care for. Today he said something so cruel and vile to me that he finally crossed a line I cannot abide. My son has alianated his sister, his step-brothers and now finally me, his mother. He has been provided with all the medical care that can be offered, we have three mental health professionals on the payroll and yet nothing is working. I have paid thousands in co-pays, hospital bills and RXs and for nothing It’s like he doesn’t even want to try and cope with his illness, and we are all his victims…he has no care for the pain his reckless words and behavior causes us. I want out of this hell.
KimSeptember 11th, 2014 at 6:48 PM
That’s my question Victoria. Just when do we have permission to start recovery from verbal abuse, financial ruin, and not having a life so to speak. I, as the mother of a 21 year of daughter with bipolar disorder, PSTD, borderline personality disorder, and more, do not suffer from any diagnosed SMIs but sure think of a way out by just running away from it all some times…I have no help and I’m just worn out. To top that I have Addison’s Disease myself and can’t even process stress like a normal person. Almost killed me twice…:-(
A patient and victim of denial like what I'm hearing, blah, blah, blahSeptember 18th, 2014 at 9:19 PM
I hate to say this–because I see so many other women here–WOMEN–the men walk off and leave the women, and refuse to take responsibility–like my own father did, and he managed to drain my trust fund and my mother’s too while he was at it. Someone like me who inherited stock from a privately held oil company that was founded by one of my great uncles never should have been on food stamps, working 3 jobs, beat up from work injuries by the time I was 36 years old no one would hire me so I started my own company. Yes I’m bipolar–and it was only 5 and a half months ago, when I was 50 years old that one of these doctors finally diagnosed me with ADD–after I had been beating the guy senseless and spoon feeding him with symptoms–I really love my therapist, don’t get me wrong. He’s old school, hard core, and doesn’t take any of the BS I’m seeing here. People don’t RECOVER until they WANT TO–no one can make them do it.
And how on earth do you think these thongs happen anyway? Darwin baby, get a clue–if you’re one of those people who says “we don’t have mental illness, alcoholism, drug addiction, gays, etc, in our family” you’re smoking some great buds, I’d like to know where you’re collective is located–SMH
CindyJune 4th, 2015 at 10:29 PM
I am worn out and beaten down. My 44 year old is blaming me for everything that is wrong with him. I feel I have enabled him all his life. I need to have more strength so he can be a more responsible person. He is a good person, but can be abusive, manipulative and deceitful. I don’t know where this is going. I need help.
Tracy DAugust 21st, 2015 at 8:32 AM
Victoria, I feel you’re pain. I divorced my husband when my youngest daughter was 9. My two girls lived with me and he got them every other weekend. Or should I say they were with his parents and he went out and partied. I divorced him because he was mentally abusive and he destroyed the home. Anyway he didn’t want the divorce but I did.
Fast forward to my youngest being 16. She started acting out (typical teenager stuff). So one day after stopping her computer time she called her Dad and told him she wanted to live with him. He came and got her instead of saying to her you need to work things out with you’re Mum and running away won’t solve a thing. He took her to get back at me for divorcing him. Because two weeks later, I asked to meet with him about our daughter and all he said was. You’re the reason for the divorce. Not very helpful as you can imagine. She told him lies about me which I later found out. So she could go to his place. I warned him that she was starting to act but he wouldn’t listen to any of it.
Anyway shortly after trouble started. She ran up a 300 dollar phone bill for him, she drove a car without a license and stayed out all night at a boys house (her Dad called me looking for her) I said you’re the one caring for her and you don’t know where she is?
Now scoot ahead to her being 17 years old. She got into a car with her gf’s. The driver didn’t have her license and they crashed (they weren’t wearing seat belts). My daughter got a concussion and 6 months later she started having seizures. Before this she was perfectly healthy.
And you guessed it, her Dad washed his hands of her. And then decided being with your Mother is what’s best for you. After he spent all that time disrespecting me to her.
I’ve taken her to endless Dr’s, neurologists and to a brain surgeon. She had electrodes attached to her brain to see if she would be a good candidate for surgery and they told me no as the seizures are coming from both sides of her brain. She then had the Vagus Nerve Stimulator put in and she’s on new meds. Since doing all of this she’s down from 8 – 15 seizures a day to about 6 or less a month.
The problem is this. The seizures are nothing compared to her Nasty, nasty attitude and outbursts.
Anxiety comes part and parcel with seizures I’m told. But she’s nasty even when she has NO anxiety. She switches moods faster than you can flick a light switch, she has pushed me more than once, she had flicked her cigarette as on me, she makes threats about killing herself ( has for many years) tells me she won’t go to all her Dr appointments, then always goes, threatens to leave home but doesn’t. Although she did go through a faze of running to shelters ( I’ve taken her back 13 times). She pushed a woman in a shelter and ended up going to jail/court.
She blames everyone and never looks at her own behavior and when I go to my bedroom to avoid the drama she texts me with more verbal abuse and threats. I believe she’s bipolar to be honest. Today she had an appointment with the cannabis Dr to see if they will put her on CBD ( the oil) which won’t make her high but should help with anxiety and her seizures. And for 3 days she’s been saying she’s not going. Yet this morning she was ready to go.
These roller coaster mood swings are truly unbearable. I’m emotionally on my last nerve. I pray the CBD works but it won’t give her a better attitude. I don’t want to tell her to leave but I can’t stay in this home that’s become my prison.
August 21st, 2015 at
Thank you for your comment, Tracy. We wanted to provide links to some resources that may be relevant to you and your daughter here. We have more information about what to do in a crisis at http://www.goodtherapy.org/in-crisis.html
The GoodTherapy.org Team
Tracy DAugust 21st, 2015 at 8:40 AM
BTW My daughter is now 25 years old.
SallySeptember 11th, 2015 at 8:07 PM
I understand the verbal abuse and anger from your son. My 33 year old daughter is the same way. I too, have not had a life with all of this chaos for 15 years. Trying to get an LPS Conservatorship to contain and control her. It
Is unrelenting and tired of it. It is not fair for them or us. Please take care. We have to deal with our own anger and live our own life. Have not got the answer yet. There is nothing like this. Over 50 ER hospitalizations. Constant suicide attempts in last 20 months.
KimMay 24th, 2014 at 2:46 PM
I came to this site because I felt like I was about to have a nervous breakdown over my adult son. He has been diagnosed with Bipolar I with psychosis. He is continually abusive to me when he is manic and says scary things. For example he calls himself lord Lucifer. He looses touch with reality during his manic times. I feel like I am watching a slow moving train wreck and worry about what he will do next. Will he end up in jail again or take another trip to the mental hospital? Will I survive this? Will he survive this? My son has been successful, owns his own business and performs comedy. He is able to keep it together for short stretches of time. But that’s it. Short stretches of time. Then the mania takes over and ruins his life and everyone around him that loves him. He is extremely abusive and dangerous. He stops showering, shaving and taking care of his house. I try to tell him to get help because he is on a downward spiral, but I’m speaking to deaf ears. He is in his own reality right now. I think this is going to kill me as his mother who loves him and worries daily. All I can do is to give myself some space from him and try to keep it together myself. But when I try to get space from his abuse he says that I’m not supporting him during his darkest times. Help! What have others done to get through this insanity and stay sane while trying to help them out of their trauma?
CherylJuly 12th, 2014 at 7:23 PM
Funny how you kind of trip over things like this as you blindly search…..search…..search…..the Internet for anything to help: answers, information, support, empathy. And so I found this page — an interesting article, but more than that a collection of people whose stories are so much like my own.
I am a single (divorced) mother whose husband washed his hands of parenthood a few years ago. My 24 year old son has suffered depression and anxiety since age 16, and is getting worse. He refuses treatment but continues sinking deeper into despair — becoming hostile and abusive (mainly toward me, but also to his sister and others), pushing people away, and having difficulty thriving and becoming self-sufficient in the world.
I am perpetually holding my breath, living in fear that he will one day tire of the battle and take his own life.
It’s sad to see the lack of responses to posters here who ask for coping tips…Maybe there are just no tips to be had. Maybe, like all of life’s tests, we simply survive it because we have no other choice.
There’s a quote I’m reminded of: ‘I feel so much better now that I’ve given up hope.’ Maybe one key is to have low expectations: don’t even hope to be rescued. Once you resign yourself to it, there’s no more reason to think about it and you might find yourself feeling OK sometimes.
I am in awe of the courage and strength I see here, and the infinite love of parents for their children. Godspeed to you all, and thank you for sharing your stories. I feel less alone.
VickiOctober 3rd, 2014 at 9:58 PM
My family is in the same boat. My brother is mentally ill and has many struggles. He has punched holes in my parents walls and has even slapped my dad. He was recently baker acted. Five days later the mental facility contacted us and said to come get him because they needed the extra beds for new patients to come in. They basically we’re throwing him out without being stabilized. Here’s what we did. We made an immediate appointment with all his doctors with the entire family together. We discussed a plan and have stuck to it. We have no expectations and just keep pushing on. We decided that due to the violent behaviors perhaps my parents have worn out there welcome with my brother. Not to any fault of their own as they are the greatest parents ever. It simply had taken a toll on them and they were too tired to keep helping him at the capacity that they were at. So we looked into a mortgage that people who are rendered disabled to get him a home of his own. We moved him out and hired a life coach. The life coach goes to his house several times a week to help by groceries etc. when he is depressed we spend time at his house instead of bringing him to our house or we may even spend the night. We take him to his doctors appointments still but this is working great because we can be involved and still over see everything but we don’t have to deal with it 24 hours a day anymore and wear ourselves down. Utilizing the life coach prohibits us from micromanaging his life and doing things for him. It teaches him to do it for himself. It is natural that we wanted all these years to protect him and just do everything for him but it created a person who already has mental issues to now have resentment because he could read us like a book and manipulate. And when I say manipulate it is not intentional. When he doesn’t want to do something because it causes stress and anxiety he acts out causing us tons of stress and to just give in, he is only self protecting himself from anxiety. So with the life coach he is less likely to fight the battle with a stranger and more likely to cooperate out of fear of not really knowing that person. So far things are looking up. He will probably never hold a job or even have relationships outside our family but we have enough love to make up for all that. Best of luck to everyone but sometimes excepting and letting go and taking risks is the only salvation for a family dealing with a family member with mental illness.
JacquelineJuly 16th, 2014 at 11:28 AM
Cheryl, Thank you for your post it was insightful…letting go releases you as well as your love one.
LouiseAugust 8th, 2014 at 10:53 AM
I wish I had some encouraging words. I am currently dealing an with an adult daughter with bipolar disorder who can hold a job, she gets them but cant keep them. she should be on disability, but is in denial and gets more than angry when I make suggestions. there is a little boy involved here to that often is caught in the middle of her wrath when she is angry, and she doesn’t care. I am ready to cut her loose totally just to survive myself. I am home from work today because of so much stress from last night when she told me she was going to stop one of her meds. Any advice for support would be helpful
Nicole MclaurinAugust 31st, 2014 at 12:31 AM
My daughter is 26 years old. She was a pretty normal person most of her life. She had three little boys one after the other. Her mental illness getting worse after each pregnancy. She left her husband and came to leave with me. Leaving with her was very inpredictable. She attacked me twice, stole my car and broke my windows. I had to get a restraining order against just to protect myself. She went to jail twice because she does not show up in court when she supposed to. And today she’s coming out of jail. I love my daughter with all my heart. She’ll probably never know how much I love her but I have to let her go if I want to save myself. It is a heartbreaking situation and I feel for all the parents who are going through this.
SheilaSeptember 3rd, 2014 at 11:11 AM
My son is 26 and has been diagnosed as bi polar schizophrinic since 15. Son has been in and out of our home since he became an adult. My husband is beyond ready to have our home to ourselves. My son just got on Medicaid does not have Disability does not know if He wants it. My son just this pass week end slit both wrist and they sent him home. I didn’t even go to the hospital this time in hopes that if I didn’t show up to rescue him they would actually possibly see how much help he needs. Instead they released him to a have a therapist call him who my son has been listed under for over a year, but has never seen. Finally, today the therapist calls to make an appointment with my son and apologizes for calling late because he has been moving offices.
My son slit his wrist while drinking. He did this in my basement. Stole money from my wallet to buy the alcohol. Then I wake to find my son slurring his words again last night. I slept with one eye open in a chair at the bottom of my stairs by the front door.
Where does this madness end?? Where does his life begin??
Linda L.September 16th, 2014 at 10:55 PM
Dear Sheila, I know how hard this is for. My son is 27 yrs d and he’s schizophrenia is driving a wedge between us. We also had our son in the hospital several times. We kept putting off SSI in hopes he would get “better”. He hasn’t but now we are getting some financial help. They also pay me the care giver. Its so hard to deal with a grown man. Especially when he drinks. I really think they need to be pro active about mental health. The police had to pick him up last time. After two days, my husband said ” you know, it’s kinda nice. No yelling, being bullied etc”. He called 5 minutes later a was released! He’s a adult now. So we have no privileged info because of hippa. We know nothing more than day he went in. Its sad. We only want the best for our kids. But at 18, we are no longer involved on his plan of care. Best wishes to you all
sallyMarch 6th, 2015 at 12:04 AM
I have been through so much with my 32 year old daughter. She has been hospitilized more than 50 times over 12 years. It is so sad and no one understands.
hSeptember 24th, 2014 at 11:55 PM
My adult child(bipolar, borderline personality disorder, anger/relationship issues) and grandchild want to live with me and my spouse immediately).We live in poverty and are both in failing health. My parent is terminally ill, and these are my last days with her. I don’t want to lose my grandchild (foster care twice already)by saying NO. We have offered to take him in while she tries to get on her feet(never been able to do),but she wants to stay with him. We have tried to help her for many years(and so have countless others).She is on meds, but no therapy. She has difficulty keeping jobs, keeping shelter, paying bills. We cannot afford to pay for two households. I am not safe if she lives with me. Don’t know what to do. Pray for us all.
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Danielle CollinsOctober 13th, 2014 at 5:58 PM
Good day. I am 44 living and working in Texas and my sister who is 2years my senior, is l iving off of my aging mother, who is on a fixed income and i have to sometimes supplement her income. My mom has had some health issues in past (blood pressure, 2 hrt attks, blood clot to her left lung…that one was the scariest, high cholestrol…you get my point) she does not need any kind of stress in her life. That being said, my sister who is 46, has not worked in several years. She continues to hop from one person to the next, can never take responsibility for herself, tried for 2years to get on disability claiming mental issues…that didn’t work or so well and now she is back in Texas living off of my mother, making multiple trips to hospital claiming physically ill, 4 x’s in less than 6 weeks with all visits laying 5-7 days or more. All tests come back normal, nothing is found to be wrong…she she plays it up and insist she is ill. As i am sure there is a mental condition for that, so i do believe there is something wrong with her, how do i go about getting her the PROPER help that it’s needed and not this merry go round routine wearing down my mother (since i work and live in another town, i can’t be there to deal with my sister personally as much as is needed to remove the burden from my mother. I hope i am not coming off as harsh, as i have alot on my plate already deali b g with my godfather being resently diagnosed with stage 4 lung, liver and brain cancer, so please forgive me i seemingly have no smypathy for someone wanting to be sick when i have another wanting nothing more than be healthy.
SharonJune 10th, 2015 at 2:25 AM
You are most definitely not in a place to care for or understand your sister’s or mother’s needs. Simply sit on the sidelines and feel ‘level’ enough to analysis the situation from a healthy and priviledged distance. Let’s just hope the members involved in the day to day care understand that you ate not be n a position to help. It is the only issue you will have to deal with. Bless them and yourself in understanding this.
BarbaraOctober 14th, 2014 at 7:20 AM
I stumbled upon this site by chance, and I’ve seen nothing like it anywhere on the ‘net’. I have a 29 year old son who’s had severe mental health problems since he was 17 years old. He has his own flat, but spends most of his time living with me. When he’s taking medication (aripiprazole) he’s fine, but he hates taking it and periodically stops, leading to a rapid downward spiral. I am, to put it mildly, totally and utterly exhausted by it. I feel as if I have been living in a nightmare for the past 12 years, with brief periods of respite when he’s taking medication. I hope this site will help me to feel less alone. I live in the UK and there don’t seem to be any appropriate support groups here.
JaneFebruary 5th, 2015 at 11:29 AM
My nephew done two and half years studying higher maths n science but they let him go as he was acting strangely. Still has not been diagnosed properly what kind of mental illness it is. He thinks he know everything, questions everything, is very rude but he thinks other people are not being fair,will only take tablets when HE thinks he needs it. Do not have friends. He will not accept that there is anything wrong. Will not sign in sickness benefit as he wants to work. But after couple of days employer lets him go.
He wears you down after being in his company and I cannot stand his verbal abuse. So should I just tell him he is rude and stop his silliness..I know this is illness but this is no way to speak to people and get away with it.
What do you think?
lOctober 15th, 2014 at 10:21 AM
Looks like Vikki comment #24 is the only one offering a solution, which requires extended family involvement. I had never thought of the life coach idea. My son is currently Baker acted. He is 31. He has had problems since he was 6. I ended up divorcing his father for substance/mental health issues. He (father) committed suicide after we were divorced. My son has been in and out of facilities since he was 12. He does well for awhile, especially in controlled environments, was in the military, has held jobs, but the addiction spirals out of control and we are back to square one. He is married, but I dont see how it will last. I think the hard thing is knowing how involved to be or not to be. He is my son, and I love him, but it takes a toll. I have to try to focus on keeping myself well too. My heart is with all you out there who are living this nightmare. We are not alone.
lizette A.October 15th, 2014 at 1:20 PM
We are parents of South Africa our daughter is 10 and we had living hell from the time she was born. She has 10 different diseases , Addison, multiple personality disorder , depression,ostioporoses , hart problems , left hip problems ,third disorder,hormone divescincy ,epilepsy ,list goes on and on. we love her and do our best but can say with all our love this life is hard and it sometimes feel like now one out there know how you feel and what you have to do to keep going every day this is not a joke. She has so many mental problems and with that Addison’s her hart is giving problems and a whole lot more. We can’t remember when last we had a decent night of sleep or did not get up in the morning with body pain of being so tired working your self to the ground and still not be able to meet all the bills in a end of a month some time me as her mother just want to stand on a mountain top and scream HELP maybe some one will come and fix everything.
Linda C.October 16th, 2014 at 10:42 AM
Comment # 26 I am in a very similar situation to you and have been trying to find a carers support group in London to no avail. If you do read this please get in touch and maybe we can support each other.
Barbara L.October 17th, 2014 at 4:46 PM
Hi Linda, (#29)
This is Barbara (#26). Thanks for replying to my comments. I live in London too! Maybe you could say a bit more about your situation? I wonder how many of us there are in London, looking for a support group! I would find it difficult attending a group, though, as I work afternoons and evenings. However, I would really appreciate being in touch with people who understand my situation. Hope to hear from you again.
SueOctober 24th, 2014 at 4:31 AM
To everyone who has shared their stories, wishing you strength. Mental illness runs in my family. There have been some very dark times but I still thank each day that my loved ones are still alive. One year my dad died of cancer and both my mother and brother both attempted suicide all within a week. Ever since I have decided that life is the most important thing even though at times it is hard to hope. For myself as the ‘well’ person, setting boundaries is very important. My love is endless but my money, time and sleep has to be protected or I can’t help anyone. I try to appreciate the small moments of calm and beauty like a sunset or the scent of jasmine. Probably sounds lame but it works for me. I am very lucky to have a good job and have developed the ability to switch my head into work mode instantly even after a stressful phone call or text conversation. Please everyone try to love yourselves and forgive yourselves when you reach your limits.
JanetOctober 27th, 2014 at 5:16 PM
Omg thank you for that. It gave me permission to protect my money, my sleep and myself. I had two bipolar adult kids. I now have one. My son died of a heroin overdose. Code for bipolar. My 38 year old daughter who is high functioning at work but not at all in her personal relationships to include ours. She says the most horrible cruel things to me and about me tho we are very close. She threatens suicide every month And attempts it often is shes a cutter. Her body is a chopped up mess. I just wait for that call again.
MatthewOctober 26th, 2014 at 7:40 AM
I want to live full time with my Mom and Dad. I am autistic and I live in an apartment with supported living. I visit my Mom and Dad 2 times a Month and thay are 2 Day and 3 Day sleep over visits. Mom and Dad want to live their own life meanning thay don’et want me to live full time with my Mom and Dad and I don’et like that. Do you have any places where me and my Mom and Dad can go to or any suggestions?
DeannaNovember 8th, 2014 at 9:00 PM
I feel lost at times like life is leading me into a dead end never dreamed my life would be like this three beautiful kids and I am divorced and my ex suffers from schizophrenia and bipolar and is off in another state in his own world well I fight this battle alone with our kids. Two of my kids suffer from mental health issues my 13 year old suffers from sever depression and spends all day locked in his room and even skips school to stay in his room has suicidal thoughts and wont talk to no one not even me any more, my daughter my baby suffers from bipolar, anger issues, adjustment disorder,adhd and ocd I believe she has schizophrenia I see signs everyday is different with her, she has been institutionalized twice, all adults and kids are scared of her when she gets mad and she is only 9. I have a mental health social worker in home therapist psychiatrist, counselors, teachers and myself all working with my kids. Someday’s I feel like no one understand how can I be so alone in this big world helping to kids fight a battle within themselves. People tell me to lock my kids up realistically what kind of parent would do that a monster in my book that is always my last resort when the police have intervened and said it’s not safe for us to have her stay in the home anymore because of her outburst. I would never send my kids away turn my back on them because they have mental illness like my ex, yes some days are tough but I prey and I get threw it. I do feel like I am collapsing though not sure sometimes how much strength I have to do this alone anymore. I reach out to find anyone else who understand me and my situation.
PamNovember 24th, 2014 at 3:45 PM
I hear your pain. It is lonely. The hardest part for me is I feel alone and no one understands or cares to understand. Some days I just want to stay in bed or end my life.
November 24th, 2014 at
We received the comment that you submitted on our blog earlier today. Thank you so much for visiting GoodTherapy.org. If you are experiencing a life-threatening emergency, in danger of hurting yourself or others, feeling suicidal, overwhelmed, or in crisis, it’s very important that you get immediate help! You can do one of the following immediately:
• Call your local law enforcement agency (911);
• Go to the nearest hospital emergency room;
• Call the National Suicide Prevention Lifeline at 1-800-273-8255 (TTY:1-800-799-4TTY)
The National Suicide Prevention Lifeline is equipped to take a wide range of calls, from immediate suicidal crisis to providing information about mental health. Some of the reasons to call are listed below: • Call to speak with someone who cares;
• Call if you feel you might be in danger of hurting yourself;
• Call to find referrals to mental health services in your area;
• Call to speak to a crisis worker about someone you’re concerned about.
If you are a victim of domestic violence, you can call your local hotline and/or call the National Domestic Violence Hotline at 1−800−799−SAFE (7233) (TTY 1−800−787−3224)
RAINN provides support for sexual assault victims and their loved ones through two hotlines at 800.656.HOPE and Online.RAINN.org. Whether you are more comfortable on the telephone or online, RAINN has services that can guide you in your recovery.
• The National Sexual Assault Hotline: If you need support, call 800.656.HOPE, and you will be directed to a rape crisis center near your area.
• The National Sexual Assault Online Hotline: is the first secure web-based crisis hotline providing live and anonymous support through an interface as intuitive as instant messaging.
• For more information visit http://rainn.org/get-help/national-sexual-assault-online-hotline.
The GoodTherapy.org Team
sallyMarch 5th, 2015 at 11:57 PM
I have a mentally I’ll daughter,age 32. I feel the exact same way. No one gets this or what it is like dealing with them and a system that does not help
Barbara L.November 11th, 2014 at 6:14 AM
To Deanna, #34, I completely understand your pain and exhaustion. My son is 29, and has had issues with severe anger outbursts all his life. He had his first psychotic breakdown when he was 17, and has been in and out of hospitals many times. He showed signs of mental illness when he was a child but no-one picked up on it. He was my first child, so I had nothing to compare his behaviour with. He made the lives of his brother and sister hell, with his violent outbursts. I have been on my own with all three children since my eldest son was 7, my younger son 5 and my daughter 2. I am exhausted and full of grief that my son has no real chance of having a normal, happy life.I live in the UK. It is good to be in contact with people who understand.
TinaNovember 19th, 2014 at 9:49 PM
When my son was about 14 I noticed something not quit right in his mental development. It was also about the same time he started sneaking out of house and using drugs. Before this he was doing great in school and in sports but then within a few months everything was upside down. I’ve raised him myself and have had no family around. It was difficult when he was young just trying to manage all the expenses and time to raise a child by myself but is almost unbearable as he is getting older. When he was 15 I moved to the other side of town hoping this would help. It didn’t. I found he was stealing from me and selling my things for drugs. The doctors said it is called self medicating. I started making police reports hoping the paperwork would lead to help. He was never charged- these were complaints. In many ways it did but it was a heartbreaking journey. I was missing a lot of work by trying to get him counseling and also the time chasing him down when he would disappear or not be in school. Since I was a single parent the state assisted by putting him into a forest care home which one parent was always supervising him. I request that the home be at least an hour away from Albuquerque due to my son going to local friends home that only embedded his behavior. He was with the other family for six months and while in the program the other family -along with myself and teachers agreed that if he stayed in high school that if may only make his behavior worse. So at 16 with only four credits of high school he went through the GED program. After the six months with the family he was released and had a probational officer assigned. However, the program was zero tolerance for drugs and he used pot on serval occasions. The state then siad they would either put him back into a two parent family so someone was always watching him or put him into a drug court program which was very intense. I chose the drug court program. It was a lot of work not only for my son but also for me. Almost daily we had to a counseling section or something with drug court. After a few months the counselor informed me he agreed with me that there was noticing something was off with my son but was not sure what it was and asked to run more testing. I agreed. This testing was done over a period of several months. The program was zero tolerance and if you messed up the Judge would put you into the juvenal center. A month before his 18th birthday he used pot and was being tested so instead he ran. He disappeared for a month. Two days before his 18th birthday he was picked up and once in juvenal center they did the last and final section of the full psychiatric test. He had going to spend a week in juvenal ,however, the test revealed that he had a developmental mental disorder which he no longer qualified to be in the drug court program but it was also very risky taking him out of juvenal center since his testing come back with multiple street drug in his system of a high volume. They keeper him in the center for five weeks to hopefully clean him up but this was the longer the Judge could hold him since he was also now 18. He was given medication which did help his behavior but after a few months he stopped taking. I couldn’t force him to take medication even with limiting what I would allow him to do. We applied for SS disability in NM in 2012 which we provided all the information and what he was diagnosed with and we went to their assigned doctor for the evaluation but have not heard back from SS. When he was 19 he did a semester of college. I though he was doing well. I took him and pick him up but at the end of semester he failed every class – he failed to do the work as assigned or instructions or had social fears which limited him. He is now 21 – no job- no school- odd sleeping patterns- outburst of behaviors- odd eating and very very thin- odd speech- very smart- a beautiful off mind. We have recently moved out of NM to MO and I just don’t know where to turn for help. He has no insurance and not a penny or asset to him name. Taking care of him is limiting me and we need help. I believe he needs to live in a group home that can help him with getting a job and on his feet. He is very bright but he can’t manage a bank account. I am at the point if something doesn’t change soon he may be out on the streets living because I need to survive and him continuing to live like a 10 year old I may be only abetting him if he doesn’t face hard reality . Him on the street maybe the only way to get government support but I don’t even know if that would be what it takes to get them to do something. If anyone knows of a program that can help support please let me know.
LadyDiJanuary 10th, 2015 at 1:52 PM
To everyone who is suffering on this forum… I feel your pain. I understand how none of your family or friends know your pain because they have no idea the hell every second of every day is when a parent lives with a child, young or adult, with a mental illness.
For ten years, my husband and I have done everything humanly possible to help our grown son. He is still not diagnosed correctly. He’s been to a dozen psychiatrists, been baker acted, gone to outpatient therapy, and he fools them all. We’ve been told he’s an alcoholic or he has ADHD, which he doesn’t… just so he can get on Adderal. He’s been prescribed that drug for almost 10 years.
I look at my son and I see a little sweet boy, even though on the outside he is now a 30 year old angry lonely man searching for the normal life he should have had over a decade ago.
He has many successes in school in terms of full scholarships and degrees. But he can’t get along nor socialize with others. He hasn’t had a friend in years. He was best all around as a Senior in highschool – athletic – popular – kind… then after going away to college something major changed in his personality.
It’s gotten worse over the years and all the doctors say he’s normal.
He’s been misdiagnosed and it’s like he’s still there trapped in his own body. He knows how to manipulate and work the system. He’s hurting inside, dying inside, all alone – a recluse for years.
His thoughts are jumbled, he thinks he’s being followed or spied on, he blames everyone else for all the hell in his life. He talks to himself – his life is a sad miserable one and we don’t know how it got to this point. It is pure insanity. Everyone who knew and loved him are now afraid of him. He rants and raves and has huge anger problems. His father and I have planned an escape route incase he snaps – like the others on this site… only we know the pure hell of thinking night after night the baby you loved and nurtured might burst through your doors and end your life.
Friends always give you advice, like stop paying for him and taking care of him, get him arrested, tough love… it’s easy to give advice when you are dealing with normal kids. If we stop helping him or anger him… he could kill us or himself.
We all, parents with children with mental health issues live in a world of Insanity. We become insane because the insanity becomes a normal part of our daily life. We walk on eggshells and never know when the moods will change for no reason from one minute to the next.
Our children have been in trouble with the law, other people, cannot hold jobs because of their strange behavior, do not understand what’s wrong with them, but know something is.
They cry to us wanting to know why they’re not normal wanting so desperately to be. We see glimpses of our perfect sons and daughters and hope this time they will be the same… until the monster within them comes out again.
When we try to explain to them they have a mental illness and need help they explode. If our children were diagnosed with diabetes and needed to go to a specialist, that is acceptable. But a child with mental illness getting help from a psychiatrist… they are labeled as “crazy” and resist because it’s a taboo. Mental Illness is an “ILLNESS” and the world needs to start treating it as such.
It should not be a hush hush subject – just as any other diagnoses should not be. They did not ask to be born with a mental illness, just as a child with diabetes or asthma did not ask to be born like that. It’s an illness that needs to be treated without a stigma attached to it.
When one has an adult child with mental illness – we cannot get or give any info to the psychiatrist UNLESS the patient with mental illness who cannot rationalize or make informed decisions for themselves, is the patient who has all the rights. We are left out of the helping and gaining and sharing pertinent info in helping our own children because they are over 18. This is ludacris and the HIPA laws do not work in these cases.
I felt better having read your forums and don’t feel as alone as I have knowing others are going through my hell. I finally got my son admitted to a very expensive facility, but another problem is insurance helping defray the outrageous costs of getting help for a loved one with a mental illness. It’s not fair. All illnesses, no matter if they are in the brain, stomach, leg, etc… should be treated and considered equal. They are all an illness in the body.
In closing, my husband has been asking me to “Pick One” either him or my son after the last few years of living this hell together. I could never pick between the man I love or son I love. He abandoned the family 3 months ago. I am all alone with my son dealing with the same hell by myself. He escaped. I wish I could. But I have a heart and am not a coward. I have a responsibility to those I love. We are all on this earth for a reason. Right now I’ve been wishing my life would end already. The stress and pain is too much for me to handle. I’m beyond depressed missing my husband yet having to keep my sanity in helping my son and aging parents everyday. Life can be hell.
I can relate to you all.
Keep the faith, I will try to do the same.
cassieFebruary 9th, 2015 at 11:12 AM
I will pray for you and your family! Yes your husband is a coward! A man will never have the nurturing love of a mother no matter how old our children are.
Irene wJanuary 20th, 2015 at 3:40 AM
Hi my son is 29 over the last 9years we have had diagnosis of anxiety depression bi polar2 adhd lots of meds and talking therapies to no avail. My son said he is depersonalised if you read about it it does make sense. He has been trying for the last 3 years to complete his 4th year of architecture in London He just doesn’t seem to be able to get himself together he says he can’t string sentences together or draw because he’s not a person and doesn’t exist. When he’s low he rings to say he wants to end his life as there is no hope or cure for him. I live in fear that one day he will do this I feel like I’m drowning in sorrow I don’t want to wake up in the mornings. At other times I’m so cross that most of our savings have gone to pay his rent and support him in London (we liveinthe north) there is a clinic at kings that deals with depersonalisation of course he says it’s no good and won’t even try to get referred. I’m at my wits end emotionally I’m of to the docs tomorrow for some pills that hopefully will help me to cope Sorry for the rant and after reading all the posts I know I’m not alone I just wish we where all in the same city so that we could support each other.
January 20th, 2015 at
Thank you for your comment, Irene. If you would like to consult with a mental health professional, please feel free to return to our homepage, http://www.goodtherapy.org/, and enter your zip code into the search field to find therapists in your area. If you’re looking for a counselor that practices a specific type of therapy, or who deals with specific concerns, you can make an advanced search by clicking here: http://www.goodtherapy.org/advanced-search.html
Once you enter your information, you’ll be directed to a list of therapists and counselors who meet your criteria. From this list you can click to view our members’ full profiles and contact the therapists themselves for more information. You are also welcome to call us for assistance finding a therapist. We are in the office Monday through Friday from 8:00 a.m. to 4:00 p.m. Pacific Time; our phone number is 888-563-2112 ext. 1.
The GoodTherapy.org Team
Barbara LFebruary 4th, 2015 at 2:40 PM
I wish there was some way in which I could meet up with other parents who are going through the hell of having an adult son or daughter with serious mental health problems.I live in London, and have a 29 year old son who has suffered from severe mental health problems since he was 17 years old. He will soon be 30, so his entire adult life has been ruined. The pain for me is almost too much to bear. People try to understand, and do what they can to support me, but the only people who could truly understand are the people who are experiencing it themselves. How I long for the companionship of such people, so that we could understand and support each other. If reading about such people can help, even a little, I know that actually being able to talk to them, face-to-face, would be immeasurably comforting and helpful. How do we get together to support each other? I live in London.
JayneFebruary 7th, 2015 at 2:18 PM
Hi Barbara, I could have written your post myself.My son is 23 and was diagnosed with paranoid schizophrenia at 17. Funny how that one sentence seems so matter of fact. Only someone who lives the daily reality of this stinking filthy cruel disease could ever understand the chaos, pain and devastation it has on all our lives. My heart goes out to you Barbara. I’d love to hear from you
cassieFebruary 9th, 2015 at 11:01 AM
Not sure if this support group is in London but there is a group called N.A.M.I. The way it looks is the way to pronounce it Nami! My son has been diagnosed with schizophrenia about 1 year ago and it really is heart breaking! I walk around all day with this heavy weight on my chest of what if my son kills himself before his meds can be figured out! He constantly talks about doing it almost every other day! Yes we all need someone to share with!
tonyaMarch 4th, 2015 at 9:45 PM
Hello cassie, I’m in the US Illinois my son was diagnosed with paranoid schizophrenia in 2013 now he is twenty,he want take his meds or admit he has an m.I.,he had an psychotic break, attacked me went to jail and now has to get help in order too stay out,I feel like I’m grieving and I can’t shake it,the depression, the pain,guilt,resentment I feel daily has affected my life in so many ways,work,relationships,etc, the isolation,loneliness, we both feel,I feel like either checking my self in or death but then what will he do without or when I die,yes we need support. Hugs to everyone
Carolyn H WApril 10th, 2015 at 12:19 AM
I have a grown son age 45 has been diagnosed with paranoid schizophrenia and bipolar has been this way for so long now I have almost died for time I’m 63 years old he lives and his own apartment but is here everyday and almost every night he yells and screams throws tantrums one day he’s fine the next day he’s terrifying he scares me sometimes I love him with all of my heart I’ve gone through this for several years I do not know what to do he has been in the hospital he was on meds for 2 years he was doing fine then he went off of his meds and all hell broke loose and he refuses to go back on them he says there’s nothing wrong with him he’s angry he’s has weird thoughts he can’t stand women he’s not gay angry at the world angry at everyone hates the world wants to go to Japan constantly same thing all the time driving me crazy he’s on SSI because he cannot work cuz of his outbreaks what am I to do he is Health does that he’s diabetic type 2 he will not take any of his meds he won’t go to the doctor to get a check up won’t let them take his blood he is literally killing me and himself each time I get him help with stuff got him the apartment all the things he needed in his apartment then now he wants to run away ends up losing everything he has I’m at my wits end I don’t know what to do when I die he’s going to be in a lot of trouble he has no one else my only child my only son wish I knew what to do
JulieMarch 13th, 2015 at 8:27 PM
Hi Barbara, I am going through this with my 26yr old son. He also has ADHD. He won’t accept his fiancé breaking up with him. Threatening suicide, smashing things up. I am scared of him hurting himself. My mum and brother have schizophrenia and taken overdoses in the past. I moved away for my own sanity when my son was 11. Now I am going through IT all again. Here if you want to talk . I feel so scared and alone. He reads my texts thinking I am plotting against him so have to delete everything and guard my phone and IPad.
AnnApril 17th, 2015 at 10:16 PM
I understand the pain you are feeling also having a 30 year old son with Bipolar, ADHD and severe anxiety, all since a young child. I feel emotionally exhausted at all times as I have constantly looked for ways to try and bring some normalcy to his life. He has never had a date, gone to a school dance or experienced most of life that others his age have. He is trying to live on his own but it is draining us financially and his apartment is always in horrible shape no matter how often we organize and clean.
I am close to you in age (64) and now take an antidepressant and sometimes use some anti-anxiety medication to help with sleep.
I am planning to join a NAMI support group. Have you looked for support groups in your area? It is so important to have this kind of support to reduce the feelings of isolation and aloneness. While friends can offer empathy, unless they have to face each day with the stress from worry for a child with mental illness it’s not the same.
JessicaFebruary 6th, 2015 at 8:19 AM
My son just got out of the hospital last night. He will be 18 at the end of this month. He refuses to go to school, fights with my husband and me daily, and is cruel to his sisters. He doesn’t have a job, or any desire to find one, or so it seems. We feel so lost and alone. None of our friends or family knows what we are going through. My son has agreed to taking his meds, and outpatient treatment. Since we have been through this before, we know it will probably be short lived. The scary part now it that he will be an adult. I will have no control over his actions. My husband and I made a contract that he signed before being released from the hospital. It’s hard, but we have told him he will have to find another place to live if he breaks it. It basically says that he has to take his meds, go to outpatient therapy, and go to school or work at least 20 hours a week. I feel that I can’t expose his sisters to this behavior any longer. It is having a negative impact on them.
tonyaMarch 4th, 2015 at 9:56 PM
They say its demon,drugs,poison or bad luck for his schizophrenia,what does it matter its hear and like many other illnesses,I don’t know what to do, but I just want to support him, no friends no girls,no normalcy I’m his only friend,some days are good some are bad,its like dementia,some days he is like his old self and other I don’t even know this person
TamaraMarch 5th, 2015 at 4:21 AM
First of all, God bless each and every one of you for not giving up on your children. I too, am about at the end of my rope. My daughter just turned 18 last week, she’s been diagnosed Bi-polar II with Axis traits, Severe Anxiety Disorder, ADD and Depression. She has been in different treatment plans, hospitalized, etc. since 6th grade. She should now be a senior, but the school won’t upgrade her status because of her grades, even though she has 16.5 credits. The only thing that kept her going to school was Drama Club, and the Teacher of that cut her from the play citing grade issues. It’s really because he’s afraid to take her to State Conference (even though I would be there to help) because of her illness. She is very timid in school, she just melts down at home. She threatens suicide at every turn, has broken everything breakable in my house, says terrible things to me when she’s upset, blames me for not being able to do something about the school situation, etc. She refuses to do school work and by the time I find out she’s behind it’s too late for her to turn it in. I’m a single mother also, her biological father is just now coming around (now that she’s 18 and child support will stop). Her stepfather and I divorced over issues with her, and he basically supports us now because I can’t work, she can’t be left alone. We had a decent Psychiatrist for her meds, and a really good Therapist, and both of those women left their practices within a month of each other. Now back to square one and she just is stuck with the Dr. on staff that day, no one is taking an interest in helping her. My family is not supportive, they think I spoil her and she’s just doing it all for attention. I feel so incredibly alone all the time.
Isabell N.March 6th, 2015 at 2:22 AM
I have a son in his late 30s who has been seriously depressed for all of his adult life. He is even more dependant now, than he was as a child. I’m his only friend. All of my days off outworking are spent with him. Too much to go into and painful also. I’ll be 60 this year. I worry conconstantly. He is an only child of an only child. His father left when he was a toddler and has never been in touch. The worry of him committing suicide is constant. I’m at my wits end.
ManuelMarch 10th, 2015 at 2:40 AM
I READ ALL THE POST AND I WAS SO TOUCH BY ALL OF THEM…..I WAS READING MY LIVING HELL LIFE!!…….IM A 58 MALE WIDOW, MY WIFE DIED 5 1/2 YEARS AGO…..AND I WAS LEFT WITH MY SON 25 NOW, WITH ALL KIND A EMOTIONAL PROBLEMS, AND IT GOT A LOT WORSE SINCE SHE LEFT, BECAUSE THE DEMONS OF DESTRUCTION, ARRIVED AT HOME TO MAKE THINGS HORRIBLES….”DRUGS”….I HAVE TRY TO FULLFILL ALL SPACES OR GAPS THE MY WIFE LEFT UNDONE, JUST TO GET ALL KIND OF UNGRATEFUL AND HORRIBLES REPONSES…
-MY WIFE WAS 2 YEARS UNDER IV STAGE CANCER TREATMENT, AND MY SON WAS VERY MUCH THE SAME, HE NEVER REALLY CARE ABOUT HER, HE JUST DEMAND HIS NEEDS.
-I STILL REMEMBER MY WIFE PLEADS THAT I SHOULD NEVER LET MY SON ALONE, THAT I SHOULD CARE AND PROTEC HIM, SHE DID WORRIED A LOT ABOUT HIM, SHE WAS OVERPROTECTED WITH HIM,,,,AND YES ALWAYS SHIELD HIM FROM ME, IF I WAS GOING TO ASK HIM TO DO HOUSE, HOMEWORK, SCHOOL WORK OR JUST HIGYENE ON HIM SELF….I WILL ENDED UP LOOSING EVERY TIME.
-GOD KNOWS THAT I HAVE TRY HARD TO HELP, GUIDE, AND CARE ON EVERY ASPECT OF HIS LIFE……AND NEVER GOT POSITVE RESULTS.
-I WAS LIVING A DREAM, THAT MY WIFE ALWAYS TOLD ME THAT SHE WAS GOING TO COME AND HELP ME!!!!…..GOD FORGIVE ME, BUT I LOST HOPES THAT SHE’S AROUND…..AND AS THE MATTER THE FACT, I DON’T WANT HER TO SEE HER SON LIKE THAT.
-THANKS TO ALL THE POSTS THAT I READ, IT GAVE ME THE COURAGE TO STOP ALL THE VERBAL, HOME, RELATAVIES ABUSE,THAT HE WAS DOING.
-WITH PAIN IN MY HEART I KICK HIM OUT THE HOUSE, BECAUSE IT WAS INTOLERABLE….AND YES HE STARTER TO LIVE OUTSIDE OF THE HOUSE BY THE PORCH,,,,,YES I’M SO BROKEN HEART AND ALWAYS TRY TO GIVE HIM FOOD, OR BLANKETS…..AND OFFER HIM HELP, BY GOING TO A CLINIC, BUT NO LUCK AT ALL….SO IS ONLY BEEN 2 DAYS SINCE HE DEFENTLY STOP COMMING TO SLEEP OR STAY BY THE HOUSE….AND I JUST TRYING TO LIVE IN FAITH WITH GOD, ALWAYS PRAYING, THAT HE FINDS BOTTOM BEFORE IS TO LATE, IM IN ONE BREATH EVERY TIME I HEAR AN AMBULANCE…DID HE GOT A EPILEPTHC ATTACK??…DID THEY HURT HIM?…DID HE DIED FROM OVERDOSE??..DID HE COMMITTED SUICIDE??….UFFFSSS…..I HAVE RASH ALL OVER DUE DERMATHITIS NERVEUOS…..
-MUCH TO MY OWN KNOWLKEDGE,AFTER READING “ALL POSTS” FOUND OUT THAT IS NOT A “HUMAN POWER” THAT CAN EXIST THAT CAN CURE HIM.
-SO I BEEN PRAYING, AND PRAYING, AND MORE PRAYING, BECAUSE I ALWAYS BELIVE IN GOD….AND HE’S MY ONLY SURVIVAL SOURCE, AND HE WILL BE THE ONE, THAT WILL “ENLIGHTED HIM”, IN ANY GIVEN DAY,,,,EVERYTHING ELSE HAD FAIL!!!…..SOOO….DRS., CLINICS, MEDICINES,,,THEY DON’T HAVE ANY MEANNING CURE, IF THEY ARE NOT BLESSED BY GOD….
-I HOPE I DON’T DISTURBED ANYBODY HERE, BEACUSE I THINK YOU’RE ALL WONDERFUL PERSONS.
LAST WORDS:…IS TERRIBLE THAT THE GOVERMENT SYSTEM, DOESN’T NOT ALLOWED US TO HAVE POWER OVER THE MEDICAL, AND IN SOME CASES (AS MY CASE)…FAMILY THERAPY, BECAUSE THE PATIENT, DOESN’T ALLOW US….’CAUSE HE JUST WANT THEM TO HEAR THEIR SIDE OF THE STORY…..
THANK YOU…..AND GOD BLESS YOU ALL.
MichelleApril 11th, 2015 at 12:13 PM
My prayers are with you. Life is hard enough. But when it’s you’re children that suffer, nothing can be worse
damumMay 3rd, 2015 at 12:41 AM
Hi there. Let’s remember that our person is ill and not a behavioral problem or a wild animal who can live outside. States have 1-800 #s for adults just like for kids. Please call this number and fight for your person’ s rights and needs. Parents do not have skills in all areas of care needed by their person. As we can read here, most of our kids have complex, multiple diagnoses. We need help. If you are at the end of your rope, have your person taken to the Emergency dept of a hospital with psychiatric care. They will have to evaluate your person and provide care and referrals. Do not let a suffering human being spend another minute sleeping in the cold, alone and without care. You have a phone, so use it. None of us deserve to be abandoned and ignored. And yes, I have an adult child, age 33, who needs care 24/7 and I am a disabled single parent providing for her. I give up several times a day! But she is my baby, and I am responsible for getting her the help she needs. She is in bed now. The most quiet it has been all day. Take that next breath slowly, and tie a knot in the rope and hang on! We don’t have to be perfect but we must be responsible adults in regard to our kids.
TammyMay 16th, 2015 at 7:12 AM
KimJune 1st, 2015 at 12:06 PM
Very well said! Not everyone is equipped to deal with this!
Anne W.July 10th, 2015 at 4:35 AM
I feel for your situation, which is so similar to my own.
I don’t even know how to put my son out. God bless you, and please,I hope you do return.
RescueRehomeMarch 14th, 2015 at 11:21 PM
Good Evening (Day) those parents and families who are trying as hard as I am, my name is Dori by the way, to hold tight by a fragmented thin thread of hope and of love… in the midst of a life that I know myself I couldn’t have ever fathomed having to actually live – with my beloved and absolutely gorgeous young adult son.
My handsome and brave son has been diagnosed with first break schizophrenia. We have both known the meaning of fear and of confusion and of bewilderment since that diagnosis 3 yrs ago – beyond the depth of each of the meanings of those words. Those words however, scrape the surface yet describe perfectly these realities we are now faced with which we cannot wish away, and that is in every way, in all facets of life now, a mother and a son navigating a horrendous mental health system that adds more stress, heartache and full time energy, often than actual help! An endless list of case managers, psychologists, psychiatrists, treatment teams have replaced the everyday lives we thought we once had.
I have been thru what seems like an endless nightmare-and I feel a hundred years old – and yes this has likely taken years off my life, I now worry about my son’s years ahead. I was a vibrant, beautiful woman fighting the aging thing well! In the 3 years since my son returned home from his first college year away- literally our lives have been ripped to shreds, torn inside out, glimmers of hope fading fast. That is with a relentless woman like me fighting every lying clinician, becoming an expert at the system itself and then trying to save my son his dignity all the while. Be relentless in your pursuit until your loved one is stable, when you have fought the abuse, pain, and every awful thing that accompanies parenting a suffering adult child-realize this: it is not a sprint, but a marathon with no finish line, if that makes sense.
Please don’t misunderstand me, I am not here to vent and I am not a victim, neither is my precious son. We are however 3 years now fighting to get my son back, as much his surfing, riding, laughing and charming self as we can possibly grab a hold of – to a healthful life, a full and enriched life…a LIFE. A LIFE. This journey – this mental illness my beloved has is NOT going to run his life if I have a breath left – do NOT GIVE UP. That in a long way is what I say to me, and to all of you.
RebaApril 2nd, 2015 at 10:26 AM
I have a 22 yo daughter who has been diagnosed with bipolar, borderline personality anxiet and depression. She now has 3 beautiful children but has a difficult time dealing with having young children. She no longer lives with me but I am the only person she can go to when she’s having a meltdown. She has moved from place to place so often because of bad choices. She can’t hold down a job due to constant meltdowns. I do all I’m able to help financially but I am mentally, emotionally and physically drained by her constant needs. I work so much I’m completely worn out so that I can help her. Nobody in my family understands what I deal with. I’ve just been blamed and shamed for her behavior. My children were my whole life after they were born. Now I’m just trying to have some kind of a life of my own. I wishi knew where to find a support group.
AmyApril 12th, 2015 at 8:16 AM
My son is 32 and lives with my husband and myself. He was misdiagnosed for ten years with various psychiatric diagnoses including ADD, depression, ICD etc. I now know that he has neurological lyme disease and we have a good doctor, but the ups and downs are so difficult. He really cannot take care of himself and the worst part is that he kind of missed out on 14 years of his life so he has no friends at all and is so isolated. He is on SSD, but any tries I have made at him living on his own have failed. I think the worst part for me is the isolation of not knowing anyone else who lives this life and
I long for support from people in similar situations. The details od not matter, the grief and frustration are the same. I would love it if people could contact me.
Diane SMay 8th, 2015 at 10:49 PM
Amy, you are definitely not alone! keep trying to find a NAMI support group and even if the distance is too far to travel maybe someone would be willing to talk with you. I feel my son’s lost about 20 years of his life but he has had a life just not the one I’d imagined he’d have! I struggle with depression but mostly about my adult daughter’s rages rather then my son’s schizophrenia. take it a day at a time and be grateful for small blessings then the journey you and your family are on will not overwhelm you.
RobertApril 12th, 2015 at 1:25 PM
A lady i was dating for 6 months has a child eho is msi. I could no longer be around the child. My blood pressure would grt dangerously high snd i would get terrible anxiety.
The child eith msi is now 30 and requires constant care. Anytime her mother and I would sit together, she would curse, tell her mom she hates her and at times hit her mother.
I am paralyzed from the waist down and have been for 30 years and that is enough stress in my life already without dealing with a child with msi.
The mother has no life except working and caring for her child with msi.
Am I wrong telling the mother I couldn’t handle being around the child?
I told the mother and she was verynupset snd ended our relationship.
I think thr mother is doing a disservice to her child and herself by not putting her in a safe, healthy group home.
Do not understand
AnnApril 17th, 2015 at 9:49 PM
I sit crying and feeling intense grief and sadness about the life my 30 year old son has not had, and will neverhave. Although diagnosed at age 16 with rapid cycling Bipolar illness he was undoubtedly rapid cycling throughout his childhood. He also has severe ADHD and
generalized anxiety. He currently lives in his own apartment in Colorado but it is always in horrible shape as he throws all trash on the floor. We live in Wisconsin and try to travel back and forth to clean his apt and open his mail to pay bills. At times he has opened credit cards(how can this happen since he does not have a job?) and constantly asks for money. We are supporting him but can’t afford to do so much longer. However we do not want him to live with us nor does he want to. He won’t apply for SSDisability as he says there is no reason to live if he can’t work. I found this website tonight as I sit in a hotel room in Colorado on one of my trips to help my son. Today I convinced him to see someone at a mental health center who helps with employment. During the interview he lashed out telling the interviewer how his parents have done a myriad of things to ruin his life. Although he has done this in appointments with mental health providers before(which I spend hours on the Internet looking for) I didn’t see this coming. As with all parents in this situation I feel such anguish from my worry about what will happen to him when we can’t be here for him. I also feel as though my life will be shortened because of the extreme stress I feel 24/7. It is a life sentence for both of us.
SuzannaApril 20th, 2015 at 7:23 PM
I feel your heart ache. You are not alone. I have so many of the same feelings you described. I also have an adult son, younger than yours but I fear is on a similar road. I hope you and I both find a light at the end of the tunnel.
MayaApril 28th, 2015 at 10:15 PM
Hi There is no support out there! Drs all they do is pill pop! The patient does not take the meds anyway!
My son is 34 ADDH never treated although small group setting and accommodation even went to the university for 2 years!
Lost his roommate which was his child school BFF! Died year 2000! My son snapped!!
Now and then he has schizoaffective disorder /maniac depression!
No support anywhere! I even wrote to the NAMI for help! Nothing !!
I am sick and tired of being a caregiver and when my son despises me worst! His life is my fault!!
I am bipolar myself so they say! I never medicated now at 57 to start Bipo meds! I don’t think so! I worked 38 years w/o major difficulties ! I would say I was just a problem person that did the job! As I was forced into SSD due to Inmmulogo disorder because of high level of stress and walking on egg shells!
Everything I had is either broken or spit at! I’m just done!
I don’t want to be a caregiver!
Does that mean I don’t love anymore?
I’m exhausted! My BFF was the casino and that just tore my life in 2 pieces, lost my significant other to brain cancer!
He was the only person that could deal with me and my son roller coaster behaviors!
I wish I can have better suggestions, but all I have is isolation, shame , disgust, insomnia!
Thank god I quit smoking and drinking if not I would be in some corner loosing it!
I think either I will be a statistic or my son will!!
I want to move on! I’m a women and I delt with my demons and have lost many times!
So I need to let go of my son so he can find his way in life!
I can’t force a horse to drink water from the river! I refuse to keep beating on a dead horse!
He is old enough to take care of himself! He gets his SSD find a partime job and if it makes him happy to live in filt then let it be ! May God bless us all!!
JocelynApril 29th, 2015 at 11:46 AM
Ann I too live in Wisconsin, I have 2 daughters one has been diagnosed as bipolar with add and anxiety disorder and I believe my youngest also has the same yet different issues as the oldest. I have been searching and searching for support groups in south eastern Wisconsin if you reside in this area do you know of any? sometimes I’m so frustrated I just want to wash my hands of the problems that are associated with loving them but saying it is one thing to actually do it is impossible even without the grandkids involved, I just want my children to be ok. Anyways if you live in south east Wisconsin would you be interested in helping me to start a support group?
SueJune 25th, 2015 at 8:11 PM
I to feel the same and from WI. Often feel guilty for wanting to give up but know i never would. I would not even try to join local support groups due to fear of non confidential. Many don’t really understand mental illness and it’s sad how even depression is labeled as “you’re crazy” by employers, courts defenses for divorce, custody, etc. So many have no choice but to try to hide it, even if your intelligent, kind, have degrees, or are well respected in community- once you let the cat out of the bag you can’t get it back in, and many would use it against you to gain a leg up. So I tell no one about the struggles of my adult son or dealing with depression myself , and I’m thankful for sites like this.
Amy WatsonApril 18th, 2015 at 10:45 AM
Thank you so much for your post. I wanted to add that I also tried to put him into an apartment for a while, but the shape of the place was always filthy
thought it would make it easier for me , but it did not. My biggest problem is that he has been diagnosed with lymes and he always gets a lot better when he is first put on antibiotics. For three months, my son was healthy, pleasant, etc. I try not to get my hopes up, but “I always do. Now we are in a bad place where he is is so agitated and mean and even though I know that his brain is swollen, I feel totally alone, frustrated, depressed, and isolated. Like your situation, he has no one else in his life and has no life so that makes it so much worse. I need a support person who understands this hell because I feel so isolated and alone.
theresApril 21st, 2015 at 9:00 AM
I too came to this website at wits end.
My daughter is almost 21 years old and has a dual diagnosis of drug addition and borderline personality disorder.
We tried sending her back to college but that was a disaster. Her drug addiction just picked up and escalated.
By the grace of God she got arrested for shoplifting so we brought her back home. It’s going to be a life long struggle and both my husband and I just have to be strong
LisaApril 24th, 2015 at 1:04 AM
I have a 22 yo daughter who has Paranoid Schizophrenia and either rapid cycling Bipolar or panic disorder (yet to be determined). Her first psychotic break was when she was 19. First hospitalization when she was 21. Second hospitalization 6 months later (February of this year) because she secretly went off her med….She became so paranoid that she spent every waking hour trying to find ways to block the rays of “Direct Energy Weapons” from hitting her. I was able to see messages she wrote to some people on Facebook claiming that she was hearing a voice that was telling her to get her dads gun and kill herself. Thinks she is being watched and “gang stalked.” I gave this info to her psychiatrist who then wanted to put her on an injectable antipsychotic med. she refused so had to have her committed and got her medication court ordered. She begs me not to be on injectable meds, but then turns around and says she doesn’t think she’s ill and that Psychiatrists are in on her torcher….it has been nonstop drama for about a year. I am so exhausted. I feel that years are being cut off of my life. It is heartbreaking. I need to talk to other parents who are going through this. I can’t even think straight right now…
Edie MApril 24th, 2015 at 12:13 PM
Hi Lisa Maybe we can help each other I too have a daughter with Schizophrenia she was missing and somehow ended up New Mexico the cops call us we told her she is ill they took her to the hospital then let her go then she was calling boston threateining them the police not a good time to be doing that with the bombing anniversary we kept calling the police there asking to do wellness checks at the hotel we put her up in so she wasn’t homeless they finally put her on a 7 day hold now today they are taking her to the state hospital which is a hole we have no idea what to do we know no one there and we are not her guardian wouldn’t matter anyway cause it doesn’t cross state line This system is so messed up beyond they have no fricken idea what they are doing. You must not be sleeping either !!
JocelynApril 29th, 2015 at 11:30 AM
I have a 26 year old bipolar daughter she has 2 children the oldest being autistic. Exactly a year ago she was hospitalized for a week as a result of bipolar psychosis in which God was speaking to her. This was her first real episode where I as her mother was unable to reach her and it terrified me. Her eyes darting rapidly, foam at the corners of her mouth and the movement of her head almost snake like. I was sure she was on drugs but her tox screens came back negative. Since that time she has convinced herself I want to steal her children and that I care for them more than I do her. No amount of assuring her this is not the case works however I am very worried for my grandchildren and weekly interaction with them is all that keeps me somewhat sane as I need to know they are ok. Approximately 2 months ago my daughter stopped taking her medication she says she prayed on it and God has healed her. She has become trembly paranoid of me and will not let the kids see me at all even when they ask to see me she has now made the statement that she is moving away after she gets her disability approved. Her father is sociopathic schizophrenic and I have been the only one to help her or be there for her in the last 12 years. She has had a long term boyfriend but every time she’s has an episode ( she is often paranoid or delusional) he leaves the state and leaves the kids with her. I have already had temporary guardianship on three separate occasions. I am heartsick that I cannot help her and so very frightened for my grandchildren.
Mary EMay 3rd, 2015 at 2:31 PM
I a a single parent of a young adult son with schitoaffective disorder. I love him dearly but I am beginning to feel depressed. My whole life is affected by his illness. I am losing my self esteem, my energy and my joy in life. He was recently evicted from his apartment and is living in my garage/home. He has not ability to handle money and doesn’t seem employable. It is a rough go…for both of us. I am happy to have found this site. He is disabled and collects a minimal amout. I just need to read others’ stories..it is very therapeutic to know I am not the only person going thru something like this.
HollyMay 8th, 2015 at 8:41 AM
I’m right there with you. I feel like this is someone else’s life. Things weren’t supposed to turn out this way. My son is nineteen and newly diagnosed, although I’ve known it for a while. Suddenly, family members who were always there before, have disappeared. And my family was close. I feel like I’m mourning several losses at the same time. I feel like those who are experiencing this are my new family. I see the world and the people in it so differently now. Hang in there. Day by day. Big hugs
DeannaMay 7th, 2015 at 10:33 PM
I have a 33 year old daughter and have been trying to help her all her life she has suffered from depression as early as 5 years old.
I always blame myself her father was abusive so I left when she was 4 months old. Then married again and my husband then adopted her and gave her a sister. My second husband cheated on me we divorced all of this has such an effect on my oldest daughter. She had troubles in school and the work place it was always some one else’s flaut not hers. Over the years we had her in counseling we had family counseling. I did remarry and have been married for almost 25 years so he has lived and stayed devoted no matter how bad it has gotten. Alisa has always thought of him as her dad they are very close. I have been working to get her on Ssi she is not able to hold a job and she has son to take care of she has lived with us off and on for the last 10 years. When I was visiting her sister in Houston she called and said she is moving to Florida to be with her husband who abused her and only saw his son twice in 10 years.
She told me she hated me and that I ruined her life. She recently found her birth dad about 3 months ago and every since then she has become defiant and mad at me she says I was never abused that I lied and took her away from her real father. Her birth dad is the one who is helping her move she was trying to move out while we were on vacation so we made her move sooner we caint let strangers in our house and she thinks I am being unreasonable as usual and proves her point and said after she moves she will never speak to me again. My grandson is the one who will suffer because his mom just caint see with her mental problems she is not being rational. She is moving where there is none of her family and we can no longer bail her out it has drained us financially and mentally I have many health issues now and caint work I have hit rock bottom and we told her she can not live with us again and we will not be able to rescue her so far away. I have never felt so defeated just when things were looking up she got on Ssi it is still not enough to support them both I have always taken care of her bills and made sure her son was taken care of I don’t know what else I can do without bringing my own self down. After more than 25 years of dealing with this it has crushed my spirit and heart. After reading all of this it is nice to know my husband and I are not alone I am lucky in the fact that my husband has stayed through it all he is an amazing man and the Love of my life. Good luck to you all.
DianeMay 9th, 2015 at 12:17 AM
I am a 68 yr old mother of two adult children, one with schizophrenia the other with a mood disorder. I have an easier time dealing with and have more compassion for the schizophrenia symptoms of my adult son then the frequent bouts of unexpected rages from my adult daughter…finding this website is a bright light in a stressful week! I am humbled by the compassion I hear in everyone’s comments and also challenged to reframe my thoughts about our families journey in mental illness land, thanks everyone!
RobinMay 11th, 2015 at 6:55 PM
I have read many of your comments and many of them I feel I have written myself. I am so over wrought and stressed to the max over my 35 yr old son. He is bipolar ,anxiety including social anxiety disorder, depression and lives pills like candy. Thousands of dollars we have spent trying to help him…….my husband is his stepdad…… Which is been very good to us but we are both just down to our knees. I feel so guilty for I want to get off this roller coaster and give up which has me so upset. Yes I am feeling health issues and my husband is at his end and beginning to have some marital problems and I cannot make my son do anything…….I am so mentally tired and it is killing me to see his life passing him by. I see no normal life for him or ever getting married and having a child….. In his heart he wants these things but I do not see him ever being stable enough to obtain them.
Like all you say…….where is there any help???? Our monetary resources are tapped out to continue down this road…….I have a very loving husband that I am scared I may lose and a son that can steal and lie to me with no remorse.
I have been the one to always say but he is my son and I love him and have to help him………but he has beat me down and I feel so guilty and a hole in my heart. Anybody that is living this way I would welcome just to hear from…….this is causing me such heartache and pain. I am in SC. God Bless You All!!!
lissetteJune 3rd, 2015 at 8:35 PM
I have a 26 year old son with paranoid schizophrenia
I can feel your pain, my son lives on his own with another mentally Ill guy,I’m so frustrated of going to his house and finding such a mess, trash, clothes, cigarette buds, you name it is everywhere… it just drives me crazy with anger, because I don’t know what else to said to them, today I went to his house and found flies all over
…they haven’t been cleaning the cats (4)litter box !!!!….I’m just tired of having to do it myself if I want anything done. You have a good support with your husband, Mine is not my son’s father and doesn’t care about him and I’m basically the only one taking all the burden….Do everything you can to take care of your marriage ,because you will always have the responsibility with your son and believe me is even harder when you don’t have a shoulder to cry on .
LindaJune 16th, 2015 at 7:18 AM
Hi I really need to talk to you as I feel I am going to have a nervous breakdown because of my 29 year old sons abuse to me,my husband,and my daughter. have spent thousands of dollars maybe hundreds of thousands to try to help him. we don’t know where to turn and what to do
damumMay 11th, 2015 at 9:40 PM
Hi Robin! You sound like me! Ready to collapse and give up!! At least we made it through Mom’s Day, right? Some times, you just have to get through the next hour. Just drop everything and try to make life nice for just one hour. You may have to ask your person to stop talking, leave the room, whatever. You have to fight for yourself at this point. Isn’t it crazy that our govt spends so many billions on wars we don’t even approve or understand, but we can’t get any level of help for our mentally ill adult children? Try to contact your state and county agencies, and see what they have for housing, job assistance, medical care, and respite for you. I was flattened one Summer and found out that I could have 2 weeks of Respite Care (in Missouri). I was able to deliver my Girl to 2 competent women who owned an Emu Farm!! I was so relieved and happy to have been directed to this fantastical, fun respite placement!! I enjoyed feeding and watching the emu and knowing that I could get 2 weeks of rest! Whoooppppeeee!! So, keep calling numbers and asking for help. So much of it is out there; we just need to discover it. Many blessings, Suzy
AnnMay 12th, 2015 at 7:21 PM
I have not joined a NAMI support group yet as there are several in the southeast WI area and I need to check them out. I guess I would like to see how the already established support NAMI support groups are before thinking about starting one. I took the NAMI Family-to-Family class and it was just great to meet weekly with other parents/relatives living with the same struggles we all have. I would highly recommend this to all.
JocelynMay 13th, 2015 at 6:56 AM
Thank You for responding Ann, I think I will begin with that class if I can find one in my area. There is a group here but it meets once a month in the A.M. and I am at work at that time. I have been talking with friends from another support group I attend I am part of a 12 step program. This last week has been especially hard for me as I have not spoken with my daughter now for over 2 weeks and my anxieties and fears have really been in full swing especially because I know she is not taking her meds and making very poor choices right now. One thing that people keep saying to me is “Why are you letting this effect you so much? It has happened before and she always comes back.” I had to really sit down and think about that, I think the biggest emotion I am feeling today is lack of control… I cannot control the way her brain works and it makes me feel helpless. When I feel Helpless I become frightened. There are many things that I can control though like whether I am acting rather than re-acting. I say this because as the years go on and my daughters symptoms progress I find myself re-acting more often and I think its possible this can aggravate her symptoms. I can take this time to work on me, sometimes a step back is good to put things in perspective (I say this because although that step was not voluntary it may be just what I need to regroup for myself) My daughter is 26 and the lat three years I have spent running in circles my days existing on checking on her and caring for the kids walking on eggshells so as not to over excite her or cause a reaction of some negative consequence … I am tired regrouping will be good. I am so thankful my husband sent this link to me as just being able to read others stories and share my thoughts has helped me greatly. I did contact one of the therapists from this site and so badly want to meet with her but it is well above my price range and not covered by insurance so I will keep typing away and in the meantime looking for other alternatives. Like I said earlier thank you for responding it is just a huge help knowing others are going through the same things as I am.
AnnJune 21st, 2015 at 10:51 PM
I have been working very hard to diminish the level of fear I experience around my 31 yr old son’s Bipolar Illness. He has cycled into a more stable period the last month so I have used this time of respite to think about how to hold myself in a more emotionally stable mood. My fear emanates from many sources of his illness: intensity of his anger when manic and feeling traumatized by his verbal beatings, financial concerns realizing we will have to support him and not having figured that into retirement, wondering who/how he will be cared for when we’re gone, and the list goes on. I find that my sadness causes me to lose sight of still having some life for myself. It feels so selfish to enjoy anything when my child is suffering! However, I have started to take small steps in my thinking and actions toward developing some “selfishness” and find that it is creating a healthier balance for me. I am consciously working to replace old thoughts, so easy to slide into, with new phrases about it being ok for me to do things I enjoy and try not to diminish the enjoyment, no matter how small, with guilty and sad thoughts. As a friend of mine who is a psychologist said to me, “in the end we can only save ourselves.” To me that doesn’t mean that I do any less for my son but it means I see him more clearly as a person separate from me allowing me some self protective distance. Another phrase I am continually saying to myself is to not let fear rule my life. After stopping and thinking about the inordinate amount of time I devote to this emotion I realized how much of my day was taken over by it. When I see him cycling into depression or mania I am trying to stand firm internally and remind myself this will happen again and again as it has for 20 years. My loving him, supporting him financially as best we can, and his knowing that we are emotionally supportive is enough as in reality it is all I can do. Beyond that I find some peace in knowing that life will play out as it will and that I have to keep trying to hold a stable/balanced middle ground for myself as he cannot see beyond his own needs to make room for that.
SallyJune 26th, 2015 at 3:52 PM
I am really glad to hear from you. I am experiencing exactly the same as you are with my daughter. This is the saddest thing ever in life to deal with on a daily basis. Constant worry and an inability to have a normal life, and the pain we feel for them.This past year my sister lost her daughter who was 30 years old to a sudden death. Married and had a 2 yr old son and received her Masters Degree and working in a good job and up for a promotion.Very well loved. My sisters other daughter had been diagnosed heart disease called Pulmonary Hypertension and hospitalized and on a wait list for a heart and lung transplant 2 years ago. Anyways, it is possible that my niece had an undiagnosed familial heart condition,as well. The point is that people like us who are dealing with serious issues so often and worrying constantly are doing ourselves in. I am trying to get the right perspective and balance on this too. A sudden death, is not about worry constantly but profound pain suddenly. We can not control any of it either way.I too am relearning how to take care of my self better. Need strengthened faith, self love. Again, so glad to hear from you.
eddyMay 20th, 2015 at 3:01 AM
Well,here is my story,I met my female partner 8 years ago,3 of my children and 4 of hers was living in my house ,ok its a big house,she was very regimental and never got on with my kids,they now are all gone ,but my girl now 31 who suffers bi bola and cutting and schizophrenia has to move out of her house as her boyfriend turned carer has decided to leave.So be aware that my girl was with me from the age of 18 to 27 ,she is non violent ,plays piano like an angel,and loves her guinea pigs,basically she has never grown up and she is stuck in her world.I love her dearly.
I was put in a situation from my partner in that she did not want my daughter back,Well my respect and love for her has gone.And as such we are now parting ways.
I will be looking after my daughter and find this not a burden,I brought her into the world and i have a responsibility to look after her.
Not the support i was looking for.
sherie hAugust 29th, 2015 at 2:03 AM
Eddy , I think you have basically manned up to the responsibiltys of your child . And you have my respect.
CassandraMay 23rd, 2015 at 5:22 PM
Hello, I am hoping someone may relate to my little story. Currently I am a person with a traumatic brain injury from a seizure fall and am unipolar. I was just about finished at ASU with my BFA when head injury occurred but had to withdraw due to memory issues. Anyhow, since I live alone it is not easy to gage how I am socially. Earlier this week I mistook something my mother did as a poke at my mental health and I snapped, quickly told her I had to leave, kissed her cheek good bye. I can tell I hurt her feelings and my two sisters have called ‘out-of-the-blue’, so I am sure they must all agree I travel by broomstick now. I do feel bad, maybe I overreacted only I don’t know how to make this whole thing ‘right’. Apologies don’t seem to be working. :(
carolMay 26th, 2015 at 11:57 AM
My son is 45 mentally ill and emi and is recently violent …throws things…fits…rants raves..etc etc etc……..he is ocd too…throws EVERYTHING AWAY…my clothes….you name it …..cup , silverware…I am way too old for this…the dept of mental health kicked us out because the say he has insurance……but his insurance is medicaide with hmo..the hmo claims to offer mental health …but I have yet to find a psychiatrist that will take the insurance………I am dying …mentally and physically…….I CANT TAKE ANY MORE OF THIS TYRANT CRAP….my husband is a working alcoholic…..and offers no help…just wants him out of the house…but he had never worked cant count or do money , educationally functions on a 3 rd grade level at best…….nobody to help us……
PattyMay 31st, 2015 at 7:36 PM
To Holly (#75) I, too, feel I am living someone else’s life. My 20 y.o. granddaughter was diagnosed with schizophrenia at age 18. Her mother left the state with a boyfriend. None of my family members will help me. I did get SSDI and Medicaid for her. I had her in an assisted living facility, but she left after 6 months and removed me as the payee for her SSDI. Since then, she has been in and out of the hospital. Last month, she bought a bus ticket for California and I had to find her and bring her back to Flordia. It kills me, but I do not feel safe with her in my house. I don’t know what to do. No one will help me…
HollyJune 14th, 2015 at 10:26 PM
Patty – Are things any better? Are you doing okay?
AmyJune 1st, 2015 at 5:57 PM
I am overwhelmed by hearing that the anxiety and depression I feel is not an anomaly, but is typical of someone in this situation. I feel a connection already from these posts that is helping me.
My case a little different, but the feelings are the same. My 32 year old son actually has lyme disease which took forever to get diagnosed and it greatly affects his brain. When he first got sick at age 16, I used to tell doctors that he always did better on antibiotics, but no one ever listened to me.
There is such a long story here, but his illness manifests in agitation, depression, and isolation. The hardest part for me is that he has no one else in his life and has missed out on the last 16 years.
What makes it worse is that he has had months of total remission from alternative treatments like hyperbaric treatments and antibiotics and every time this happens, his whole personality comes back and he has made many attempts to try to start a life for himself. During those times, I have my intelligent son back and I unfortunately let my guard down.
Unfortunately, every time he has gotten better, he has gotten really sick again and before he knows it, he is back on the couch all day with no mental or physical energy.
I am finding it so hard to cope with this and feel like I keep mourning his loss over and over again. WE have been all over the country to various doctors and I refuse to give up on him.
I have no extended family at all and my husband who is not his father is supportive, but it is not his son and he is sick of all the time I spend worrying about him.
I have tried putting him in apartments, but it never works out because he is not very caring for himself at times.
Does anyone else feel like this runs their life and they have trouble getting away from thinking about it?
Louise A.June 12th, 2015 at 1:09 AM
Yes I’d to also feel this way.
sherie hAugust 29th, 2015 at 1:59 AM
My ex husband and I think and talk about this continually , it rules our lives .
Neither of us have met and moved on in another relationship since he’s been ill.
JoyJune 8th, 2015 at 8:37 PM
My heart goes out to everyone who has posted. My story is along the lines of everyone here. No one knows the lonliness or the dread you feel when you have a mentally ill person. I lost a son who was 20 and to lose a daughter to an illness who takes her senses away at times is the saddest of it all.
We struggled for 2 years and nine months and I had to let go and let God. In jail he reached out to her and told her she needed help. We still had to go through four more hospitals and a LOT of stuff when she admitted she needed help.
Everyday is a new journey. A new thought. A new intention and eveyrday I get up, work on myself, work on my habits of cleaning the house, cleaning the cats boxes and taking care of me.
She has a new kind of day, thought and motivation everyday. Our lives can be going one direction one minute and the next the entire plan is changed. I have learned to live this life alone with no one understanding but always having an opinion.
Nothing in the world and no one in the world will know the pain or the suffering and sacrifices you give but God and yourself.
There are days when I have thought all the things that others have said on this blog. However one thing I have found to cling to….God and his word. His word says…I will never leave you nor forsake you. The day I began to thank God for her recovery was the day I began to see great things happen.
Today she is halfway through her Bachelors degree. Has her own apartment, bought a car and is in touch with her six year old son.
Yes, we have crazy days. Yes, I have to pray and praise God ALL the time. If you knew me, you would think I was happy all the time but inside I am touch with God because he is the only one who really knows what I am going through.
I know that this will work out to be a great testimony and it is with gratefulness that I give him honor and glory for all the things he has done and all the small details he has taken care of in her life.
The struggle is not to lose yourself to the chaos they want to create. Not to get lost in the devastation. But to focus on the good things and enjoy those small tiny victories everyday.
I have to be strong. I have to be solid with God and his word. I have to not get involved in her problems and let her work it all out. She always makes good choices and when she is rude, if I am quiet, she figures it out and apologizes.
I am blessed because this has meant learning a lot of patience and learning most of all to take it to God. Every second of the day. Every minute of the day. It is his job to watch over her and not mine.
I will put each of you on my prayer list.
KathyCJune 10th, 2015 at 8:05 AM
thank you for encouragement….
carolJune 9th, 2015 at 4:47 AM
cindy and everyone,
My son is 45 and mentally ill and also developementally disabled. He was denied a real education so he is further dependent on me. He was diagnosed with schizophrenia at 16…however, they diagnosed him several times with several labels . when he is good , its so nice. but he is also OCD, he throws EVERYTHING AWAY. meaning my clothes , my everthing. I am trying to lock things up. but its impossible. cups, silverware, his clothes too. He will break or rip things and say they are junk and throw them away. Thousands of dollars thrown away. We are not wealthy …even everyday necessities add up. If you catch him he is a tyrant. My husband is no help and just sits in his outdoor room after work and drinks . I am the only one my son has. We were kicked out of community mental health in November because they say his medicaide insurance covers mental health….My mother just passed away after years of struggling to find her help with dementia. I am worn out too …beaten down. I have NOBODY to discuss this with . I cant get help for my son . but I wont stop trying. My husband said If I die he will just call the police on him and have him removed..(he is not his father , although he has been with him since he was a baby). My son is not able to live on his own. He is totally dependent on me for everything. Im sure this adds to his issues……menta illness. Im sure he is afraid.
We need help too……god help all of them and all of us caregivers……..NOBODY UNDERSTANDS WHAT THIS IS LIKE …..NOT EVEN THE “THERAPISTS’, DOCTORS .ETC
Louise A.June 11th, 2015 at 11:20 PM
It’s almost as though you’ve lost your child that you raised and have a completely different child and it breaks your hurt cuz I can’t fix it….my daughter has schizoaffective disorder and it’s one of the most mind boggling thing to understand. But I keep hoping and praying everyday that she will come back…I need a good support group of parents to talk with. Any in or around Muskogee or Tulsa Oklahoma area?
Jeanette J.June 13th, 2015 at 8:48 AM
I’m from Chennai India and recently my 36 year old son was diagnosed with manic bipolar for which he is under medication starting from today. His condition is a result of years if ignorance on my part and like you I too suffered with an uncaring man who never felt that this was his son and who was going through phases of depression since 18 yrs of age. Yet I as expected
,blame myself for not seeking medical help in the early stages. I always thought he was rebellious and just spoilt rotten by me. His father passed away 7 yrs ago and I somehow got him to do several software development courses and he excels in that. A great programer too. He worked for two years but abruptly snapped two years ago and since then it is a harrowing experience every single day.
He damaged ripped important documents and hit me on occasions. Today I had to seek medical help as he seems entirely anti social and threatening me with murder etc.
He is in medication since morning. God bless you Carol …i am with u in this troubled situation…i will stay in touch once I hear from you.
sherie hAugust 29th, 2015 at 1:54 AM
I’m sitting here thinking that you may as well remove your husband as he is no use ?? Is that cruel ? Sorry if you think it is ! .
But surely having someone living in the back room and being of I support at all must be worse than having none.. Unless he supports you financially it must add to your stress.
Robin N.June 16th, 2015 at 5:11 AM
Sorry I have not been back on in a while….I myself have fibromyalgia and my memory is really bad, I forgot the name of this website.
But I want to thank Damon and Lissette for their responses to my post…..I am still a mess over my son that just hearing from someone else is a comfort. All of us that come to this site is in need of support and hearing that someone cares and can really understand.
My son is still in bad shape as ever and I fear he may be experiencing the beginnings of a nervous breakdown. His bipolar has taken complete control of his life along with the woman he says he is trying to break up with but cannot stop texting her and probably still seeing at times. He is so obsessed and I have real fears if he does not cut ties with her she may end up physically hurting him, she already has destroyed him mentally. So far she has busted his computer and slashed his tire which they were in a full blown argument during the time , he had called me in tears and I could hear part of their fight and she was doped and drunk and going crazy with a knife in her hand. The other day she did do something that hurt his thumb, I think maybe a pulled ligament.
What is going to make this situation stop?
I feel dread that something bad is going to happen to my Son, he is a grown man and I have no control over all these bad choices he is making. He is not working nor looking for a job for he says he is too stressed to work.
I love him dearly, but I am so tired of supporting him and living his drama?
What am I supposed to do?…..
BarbaraJune 16th, 2015 at 1:34 PM
It’s quite a long time since I last wrote here. My 29 year old son has been ill for 13 years, diagnosed with schizo-affective disorder (though every time he sees a new doctor he seems to be given a different diagnosis). He has just been admitted to hospital yet again. He’ll spend his 30th birthday in hospital, next Tuesday. He’s has no adult life at all, as it’s been destroyed by his mental illness. He has no friends, and has alienated his brother and sister with his hostile behaviour. I have no family, other than my three children, though I do have supportive friends. However, friends can’t help, because the only thing which makes me feel less alone is when I’m in contact with other parents who are going through the same thing. I would so love to meet up with some of you lovely people, but you live so far away. I am in London UK. I feel as if I live constantly with a bleeding, open wound in my heart. The pain is beyond anything I could describe to my friends, but you will all understand. People say I am strong, but I’m not; I have no choice in what I’m going through. It isn’t the kind of pain which makes you a stronger person; it depletes me. It makes me feel sub-human, because I operate on auto-pilot, like a robot, to get through work and every-day life.
SallyJune 18th, 2015 at 7:25 AM
This is so difficult and the only people who can understand are people who have experienced this. My daughter has gotten worse and I can not get her long term care. She has been hospitalized 13 times in the last 13 months, and many many ER visits and hospitalization before these. Truly have had it. Will talk more later.
ChrisJune 21st, 2015 at 1:28 PM
My son is 17 and has been in a secure psychiatric unit for almost a year. I am in London and know exactly how you feel so please get in contact for a chat.
SueJune 25th, 2015 at 7:27 PM
I too operate on autopilot to work and survive and keep my life private from coworkers etc who would never understand. I get upsetting texts at work from him and I have no sick days, can never leave job due to providing major medical care to others, and i have to block it out and smile to get through day. If i leave work i lose my job which supports us all. So while others try calling in for a sick dog i work knowing i could find my son dead any day from depression. If they only knew. My son is 21 & i pay to have him live in apt out of my home because i need to protect his younger brother from verbal physical outbursts as well as myself. Due to anxiety he won’t talk on phone, make appts, get license, etc. So i do it all, work non stop and suffer from chronic back surgery pain constantly. Not sure how long before break myself. Looking back i often feel i was young and niave having kids knowing family has history of depression etc but you never think of the life sentence for everyone involved. The kids and yourself. I love them more than life, but this isn’t living. glad i found this web page today. Sorry for venting!
SallyJune 25th, 2015 at 8:37 PM
Yes, I relate to this entirely. No one can possibly understand what we all go through. I too, do not have a life with this. It is pathetic. I am trying to find a way to enjoy and get my life on track.
Vicki W.August 5th, 2015 at 2:00 PM
I am not in London but in Kent. My son has just been sectioned again- he suffers with delusions and paranoia, refuses to take any medication except illegal drugs and blames me for all his problems. He is 26 and my only child. I despair for him- he managed to get out of the PICU in Maidstone yesterday ended up coming back to me threatening to kill me or himself. He is now back in hospital. All the anger is slowly killing me. I am in utter despair so you are certainly not on your own
The GoodTherapy.org TeamAugust 5th, 2015 at 4:20 PM
Please know there is help available! Working with a therapist can help you manage the anger and despair you feel, and give you tools to help overcome it. You can search for a therapist on the GoodTherapy.org directory here: http://www.goodtherapy.org/find-therapist.html
Wishing you the very best,
The GoodTherapy.org Team
VickiAugust 26th, 2015 at 2:40 PM
I can completely understand how you are feeling- I have many good friends but it is hard for them to understand exactly what I have been going through. My son is currently in Dartford, Kent awaiting a forensic assessment. I have taken a break and am with relatives in Devon for the next three weeks- trying to take my mind off this awful situation but it’s always there. I will be back in Kent mid September and if you would like my contact details leave a message here.
AnneJune 16th, 2015 at 4:17 PM
I am a mother of a beautiful 26 year old daughter who battles with severe mental illness. She has 2 children (5 & 6 yrs old) and they all live with me. I am divorced. I have no immediate family near me. My question I have is this. Have any of you dealt with issues at your job because they don’t understand the enormous battle we caregivers face daily. I have worked at my job for 14 years and am just about to lose it. I’ve missed work because the last 4 months have been awful. I have taken vacation and sick leave, but am at the end of that now. The sad thing is that I work for a church. I am so hurt and angry that it has come to this. I sit in staff meetings each week and hear prayers going up for people with severe diarrhea and want to scream, “My world is falling apart! How about praying for me and my family for once!) I don’t say anything because I just can’t believe nobody asks how things are with us.They know I spent 27 hours in an ER and watched my daughter be taken by ambulance to a Psychiatric Hsp. a month ago and that she was gone for 10 days. I had to take care of my grandkids and couldn’t afford a sitter! It’s summer! I get my work done (Financial) coming in at all kinds of crazy hours. I don’t know how to explain this to them, because if you don’t live in this world..there’s no way you would ever understand what a toll it takes on you. I didn’t mean for this to turn into a rant. Any advice would be great.
PatriciaJune 27th, 2015 at 4:52 AM
I sure don’t have any answers at present, except to tell you I know how hard of time you are having. Finding yourself suffering And being unacknowledged is painful. Being a decent person and getting your butt kicked as payment for your efforts for trying to support your child and her children. I get it. I’m doing it. Other people telling you it’s your fault your kid broke your heart again cause you let them do it-and it’s your fault by continuing to allow them to do it to you…and it’s your fault fault fault… Isn’t there a big fat hug in any of this? You know somebody saying to you the following:Your wounded, you’ve been hurt and it was wrong…life isn’t fair but I acknowledge that you have been hurt. Another big hug. Let me help you work thru your grief anger and sense of helplessness and try to help you figure out how to make lemons out of lemonade–or to find peace thru breaking the dysfunctional connection you cannot control. You know that since I sought you out, I have an ugly version of your issue that I have not solved, and I can’t go on as it is. Well all I can do is listen and send you the big hug my inner child needs !
AnneJune 16th, 2015 at 4:21 PM
(Continued from above)
When I say “lose it”, I mean I’m about to be fired. Personnel committee is meeting tomorrow night. I refuse to be put in front of a panel of people asking me questions, because it is so difficult for me not to get extremely emotional. And I won’t sign a form saying I will be here everyday from 10-2. I can’t make a vow that I may not can keep. They ought to know that. It’s in the Bible not to do! (Anne)
JoyJune 20th, 2015 at 3:05 AM
Hey everyone! I love reading your responses because it makes me feel like I am not alone. The journey is so difficult and there are times when it feels like I will explode.
I am blessed in so many ways. But I have to learn to not “listen” to her when she is depressed. She says things which are so hateful and then I get to doubting myself.
Its so hard because people who have never been through it will never understand and you can’t talk to people who have not seen this side of your children. My daughter presents a very polite and understanding person but I get all the inside hate and all the rudeness and telling me what to do all the time.
I just got a new therapist and I am excited to see if she can help me with techniques to help me set boundaries.
My daughter has an apartment but lives with me because she can’t be alone. which means no social life for me….no club meetings, no Bible Study and nothing that is life giving.
No gym. It is just me and her. I work from home and she interrupts my work all the time. It gets so frustrating.
The way I found out helps me cope with the situation is to sit and write about what is going on and why I am so angry. This way I keep the peace and she has a peaceful home to be home in.
I just moved the entire tv and tivo into her bedroom so she can watch when I am working and that seems to have helped.
Her divorce came through this week and that was a blessing because the man she was with was completely toxic and horrible to her.
I have to view my home as a hospital of sorts. I keep the house very quiet and very still. NO one can come over because it is stressful for her and I just have decided that this is going to be the way it will be for the rest of my life.
I have to find a way to cope with the lack of social interaction I have. The lack of freedom is very difficult. I don’t dare date because bringing another person into this type of situation makes the entire world a worst place.
Yes, there are tons of sacrifices. So many. I feel so much of your pain and I have had to learn to be quiet and learn to let God do the talking for me.
Three years of going through this and it is not easy. But I know that there is a light and I hang on to the moments when its quiet and she is asleep and I have time to do the paperwork and homework for my MBA.
Thanks for reading!
What a relief to see a forum like this.
DogloverJune 22nd, 2015 at 5:12 AM
My heart goes out to all you caretakers. My son is 33 and is bi polar. He has been
On an extreme manic episode for the last 2 months. It’s amazing how he can
Destroy his life every year and a half. When he is manic he can’t stop himself
He has to keep moving. He always gets thrown in jail. This time he took his friends
Car and just started driving. He ended up in jail for car theft. I did the most stupid thing
Possible and bailed him out. I have been regretting that move everyday. Of course, he never
Went to court, so we lost 3000 in bail. Next he got in the car and went until I blew up. My husband and I are retired and live in a small town in Mexico. He called me from a borrowed phone and told me
He has crossed the border into Mexico ,with no.passport or ID ,of any kind. I am scared to death for
Him. He has no money and w/o I D you can’t get him any money. We live in Baja Calif. almost to the
Tip.about two day drive. It has been three days now. He called me from Ensanada. I don’t know who
To contact. You don’t want to end up in jail down here. I should have drove up and got him, bout he is
So confused and delusional , truthfully I am afraid of him. My husband is fishing for a living in Alaska.
I haven’t told him what is going on because his job is stressful and we need the money! so I am on my own. I look in the direction my son is coming( if he makes it) probably a hundred times today. Don’t know how to find him if he doesn’t show up soon.i have such mixed feelings. I love him but I am also afraid of him. Anyone have any ideas what steps I should take if he doesn’t show up?
sherie hainesAugust 26th, 2015 at 1:25 PM
Your problem with your son actually makes me feel humble, I too have a son with mental health scitzophrenia he blames everyone else In his life for his problems and blames me most for sectioning him when I did , today we had the dreaded news that he’s been allowed too come off of his meds completely by some brain dead doctor that hasn’t read his notes !! My only gratitude is that I live in England because the police are very understanding over here .. We are waiting for the violence to start .
Heaven hell us all ..
VickiAugust 26th, 2015 at 2:33 PM
Heard the news today that my son has now been given a Section 3- his Section 2 was coming to an end and he was sure they would release him. He has been trying to convince the doctors that his delusions have disappeared as he now accepts the results of the tests that show his head is not full of tapeworm. This evening on the phone he again told me that as he was dying from the tapeworm there was no point to anything. He has talked about killing or beheading random people. Thank goodness they have seen through him this time and finally are looking at some sort of long term care plan rather than releasing him and expecting him to comply with medication. I fully expect this to take months as the NHS is under so much pressure but I have a glimmer of hope that maybe just maybe he will get some help this time. Fingers crossed
ShellAugust 30th, 2015 at 11:34 AM
Hi vicki , well that’s a relief.
Maybe they will find a medication that suits him and it will be for the best ,..my son went to littlebrook and was on a section with a proffesor there.
And I’m pretty sure that he sorted out his meds for him..he took him off of everything and then started again.
It was hard.
I’m in a different place now, we moved from dartford as my sons friends used to all take drugs and I believe that it’s a better place that we live in.
He’s come off of his meds completely now, with his doctors advice , I know there’s gonna be firework but here we go again.
It’s like a bloody merry go round isn’t it???.
I hope he’s sorted , they seem to only act if the patient talks about suicide or killing other people ..it’s madness.
SJune 24th, 2015 at 4:15 PM
I am in my 30s, daughter of an undiagnosed 65yo bipolar father (my whole life, he has always refused to be diagnosed or treated but clearly exhibits all the symptoms to severe extremes). He is an only child, and his 85yo mother is elderly and lives alone. I find myself having to care for them both, and he cannot care for her even though doctors etc look to him for decisions. I strongly suspect that 40+years of this illness have caused him early dementia, has anyone else see this happen? Is there any hope for intervention from local government, especially in terms of protecting an elderly woman from him stealing her money? Right now, it’s looking like suing him is the only option I have. She loves her son and thinks he can do no wrong, even when he spends $50,000 a month on booze and strippers.
ValJuly 9th, 2015 at 12:27 PM
Call your local or State mental health center or Child Protective Services and ask for Adult Protective Services. Usually a social worker for the county or State will evaluate her situation. Her money can be managed too. GOOD luck. Or see an attorney specializing in senior citizens (getiatric). If your dad is her official “representative payee” you notify the federal agency to challenge your father managing her money. More investigation and info from you can help the Social Security Administration etc.
Anne W.July 10th, 2015 at 3:44 AM
Life was hard as the only child of abusive alcoholics. They could be violent and disowned me more than once for my faith (Christian). I gave up professional singing to marry the man I loved and wanted a better, larger family. After our son was born I developed serious autoimmune problems–no more children. Then my dear husband got cancer at 44, and I did care-giving. During my husband’s years of cancer, my sweet son became angry and selfish to the point that his Dad and I would cry together in our room. My husband died in 2011, and now I’m a widow on disability, no family, and live with an abusive son who has isolated me in a filthy home where he ignores chores. I really don’t know what to do. When he bashed in my bedroom door in June, I thought police would remove him. Other times I thought they would help me, but even though I own the home, my son can refuse to move at age 20! They said I could try to get an eviction notice through a court, but then he would be more dangerous during the 30 days after it’s served… I can’t handle the stress and my son drives up my blood pressure. He’s driven away many people from from my life too…
Sharon DeeJune 27th, 2015 at 1:33 AM
I have four children with SMI. There is little help for me in dealing with them. The government refuses to allow them to have SSDI, and makes them appeal their case, which can take five or more years…in the mean time, I am the sole support of my 41 year old son. My daughter who lives with me and my son, is working full time, but has personality issues which can be very stressful. There is a lot of talk about the problem of mental illness, but in reality, you are pretty much on your own. It would help if the government changed its policies of denying SSDI to everyone who applies. But then no one said that the government is helpful.
PamJune 27th, 2015 at 6:01 AM
I have a 33 year old son, who has bipolar and schizophrenia. He is emotionally 12 years of age. He lives with me because he is unable to live on his own. We have tried several times. Each time, he would stop taking his medication. Start using drugs, which always led to a psychotic episode. Each psychotic episode became progressively worse until he had to live with someone who would give him medications, be institutionalized or dead.
The longer he lives with me the angrier I stay. I have 6 things I expect him to do. Keep his room and bathroom clean. Walk the dogs. Take out the garbage. Keep the kitchen clean. Take his medication. The only thing he does is take his mediation because I hand it to him twice a day.
I remind him to do the the things I expect. The answer I receive is later. Remind him again and the answer I get is stop telling him what to do. This cycle continues.
At first my anger would come and go. Now, I am angry with him all the time. I don’t know what to do. I know if he lives on his own, he won’t make it. I also know that he uses this against me.
I want the two of to be able to live in the same house with out all the anger. I really need help.
susan sAugust 3rd, 2015 at 3:56 PM
I replied to someone above but i understand you exactly. My daughter is 22 and we only ask her to clean the kitchen & take out the trash. Always “later!” screamed at me. The anger is eating me alive but she can’t take care of herself either. She even admitted to one of her doctors that she uses suicide threats to manipulate me.
MJJuly 4th, 2015 at 5:40 PM
I am the mother of a 29 yr old male, who has Asperger’s , is Bipolar,and has Type1 Diabetes. His father is Bipolar and is a Borderline. My son has to live with me to survive. His father is out of state, and we have been separated for almost 4 yrs. He supports us, but I am sandwiched between them. I am 53, and the stress from the two of them has damaged my health, severely. I have no family left, and have no social life. People do not understand my stress.
My son was diagnosed with Diabetes at 7, and he does not take care of himself. He was arrested for stealing at his job, and almost again for shoplifting. He gets very little Social Security. You know the drill. He is a genius, but cannot function in society, and his age group has fallen through the cracks with help in the Aspberger’s dept. The Bipolar cycles are all over the map, and they have him on max meds.
My heart goes out to everyone here. I just need to know that I am, also, not alone.
susan sAugust 3rd, 2015 at 3:52 PM
I read a lot of the other comments but yours is the one i relate to most. My daughter is 22, diagnosed with severe aspergers, bipolar II, major depression, and now conversion disorder that causes seizures. i could handle her if she was only sick but she is continually angry and argumentative. She has never been able to keep a job more than a couple of weeks, she has been in 4 mental hospitals but actually thrown out of one for being disruptive. We are going broke paying for everything…trying to get her disability now. She fights when we ask her to clean around the house. But the worst thing is that my husband has mild aspergers. He gets along fine in life but together they are like fire and gasoline. the stress i feel is killing me. I have no life, no peace, and i live in fearful waiting of the next blow up where i have to physically get between them. Many people say “kick her out”, but you other parents of mentally ill children know what that feels like. They can’t take care of themselves and no one else will. I don’t know what to do.
JennyAugust 14th, 2015 at 4:21 AM
My husband and I are beginning this journey with our 23 year old son. He has always struggled with mild learning and social disorders, but was diagnosed with T1 diabetes before his senior year of high school and does not manage it at all. Within the last few months he has become depressed about his future with this disease and decided he will live like he doesn’t have it. Big problem as the diabetes will eventually (slowly and painfully) disable him. We were able to convince him to seek counseling, but after an intense and hopeful week long program, he is back to work a crappy job and see someone weekly and we are seeing the same patterns arise. This week he was involved in an auto accident which hurt no one physically(thank God) but emotionally has sent him back to square one. It seems his eyesight (already low due to a birth defect) has been compromised because of the diabetes rendering him unable to drive. His dad and I are heartbroken and scared. His future and ours looks dark. I know by reading this forum that we are not alone, but we definitely feel like we are. How do we help AND deal with the guilt we feel for being angry he refuses to take care of himself?
LaurieJuly 6th, 2015 at 1:34 PM
Have a 20 year-old with psychiatric disorder who’s father for many years convinced her to stop meds. He also told her that I am a bad mother. She stopped the meds and became revengful because “I” had taken her to the hospital when she was small, she didn’t make it home until fifth grade. She is revengeful for having had to take meds, she became very violent and has horrific OCD known as an obsessive disorder which is brought on by fears. She refuses any help and is ruining the home. Her father read about her psychiatric disorder finally very recently and finally understands but it an abusive man.
BillieJuly 7th, 2015 at 9:24 PM
Hello, I’m new here, I’m bipolar.I’m 38 year old and I live with my Mother & step-Father. I originally came to this website to bitch about my Mother, instead I read all the things I am probably doing that pisses her off, take care everyone! Believe me, I feel ur exact pain;)
AndreaJuly 7th, 2015 at 9:44 PM
We, my husband and I are just beginning this heartbreaking journey with my 21 year old baby boy. Listening to all of your struggles it quite honestly frightens me that this is going to be a very long road. Although my son is going to therapy and on medication, which at times he does not take, he sits home and watches t.v. all day which gives him nothing but time to think and that’s not a good thing as we have found a few times we’ve come home and found he has been drinking and then begins to cry, that tears at our hearts. He talks about how we did nothing, that we just stopped caring. Trying to explain that we had no idea is nothing he wants to hear. I do feel guilty because we were and still are very overprotective parents and the fact , as he states that he was a teenager at home while dances and football games were going on and we didn’t think anything of it, to us it was relief because he was home and not out in harms way so no we didn’t question it but looking back now I feel like we were some of the cause for his depression. Although the therapist tell us not to feel that way. I look at him and just want him to be happy, to enjoy whatever he wants in life he is such a bright boy and it hurts so much to see him like this. I will pray for all of you. Stay strong and supportive for your babies.
KelleyOctober 21st, 2015 at 6:21 AM
A few days ago, I gave my son an ultimatum, either agree to see a doctor, or leave. He packed two bags, and left in shorts and flip,flops. It was freezing outside. He was gone for 5 hours. We called police and we were all out looking for him. He finally returned at 3 am, we called police to come back, they determined he was not well, but refused to take him to a hospital. They suggested next time he is manic, to call an ambulance instead, or evict him. I can’t seem to do the eviction tho. He literally has no where to go, no money, no friends. He isn’t a threat to himself or others, just seems content to spend every waking moment up in his room. If I ask him to help me around the house, he does so. He is just a shell of himself, and it makes me so very sad. I wish there were doctors who,could come to my house, as he wont leave mine, even to get a haircut. I sometimes think the successful microbiologist i raised was a fake, and this is my real son. NAMI meetings were no help, as the other parents in my situation were just as frustrated and no one could offer any advice. My only alternative is to call an ambulance to come here next time he gets manic, but I’m so sick of hitting a brick wall. I’ve probably called police 5-6 times and no one does anything. If my son thinks he killed Osama bin laden, isn’t that a threat to me to have someone living with me who thinks that way? I just don’t understand the system at all.
Diane S.July 9th, 2015 at 3:08 PM
This was a Godsend to find this site today. I have a 40 year old daughter with bipolar, borderline personality disorder, obsessive compulsive disorder, ADD, and severe anxiety. She is also medication resistant. She currently has been living in a residential care facility owned by her psychiatrist. She is currently getting ECT treatments but wants to stop. I go to court on August 17 for legal guardianship. Did I mention she also has a learning disability! I found you today because I Googled “can mothers of an adult with mental illness experience post traumatic stress disorder. YES WE DO. I love my daughter dearly, but it is overwhelming to deal with her. I hope this new rcf can take some of the burden off me. She’s been in the hospital 2 times in the past year..each time for a month. Dr did genetic testing on her to see how she metabolizes her meds, but don’t have the results yet. My heart goes out to all of us….I’ve raised my daughter by myself, having been widowed since she was 7 months old. Thanks for letting me talk. Diane
SallyJuly 11th, 2015 at 9:43 PM
Yes, this is so difficult! We are all so alone in trying to deal with this. We are not able to live the life we would have liked to. I guess we all need to look at the whole situation differently and truly carve out some space for ourselves. God help us all.
July 10th, 2015 at
I tried leaving a post, but perhaps my last name shouldn’t have been on it… There is a “diagnosis” for everything now, and it’s messing up lives. After going through an abusive childhood, I’d found my dream husband, but after getting a lupus-related disorder, my husband got cancer(those diagnoses are real, at least). During the 9 years I became care-giver, our son became more and more selfish and rebellious ( though they called it “oppositional defiant disorder”or ODD, though it should be called what it is–nasty).Now I’m a widow in my early 50’s on disability and I can’t just ask my son to leave my house! Even though he has no claim to my house, it’s his “residence,” and a lot of police won’t do anything even though he was arrested as a juvenile for attacking me. They say I can go to court to get him evicted, but that is too much for my health and will make him more dangerous. He’s 20 and still doesn’t drive or do daily chores.despite promising everyone I got to help that he would, plus the MST team assigned to his last arrest. Multi System Therapy finally said he didn’t comply so he should move out. Yet when he refused their offer of a free appartment, they did nothing to take him. Even when he last bashed in my bedroom door, police didn’t take him. I don’t know what to do anymore! I love him, but he doesn’t let me live my life and I’ve been a prisoner in my home since my husband was on hospice and died 41/2 years ago…Has this country gone nuts? He can just refuse because it’s his “residence” that he’s been getting mail at?
JuliaAugust 25th, 2015 at 2:36 PM
If he is 20 you are legally allowed to just change the locks when he goes out and refuse to allow him in the house, as long as it is only in your name. Yes I understand this is hard for you to do as he is your son, but there comes a time when our children need to be responsible for their own actions
BettyBJuly 11th, 2015 at 5:33 AM
My 30-year-old bipolar son lives at home. He ranges from hostile and rude to downright overbearing and clingy. He’s manipulative and controlling. One of the things that bothers me the most about him living here is the noise he makes. I’m a writer and graphical artist, and I work from my home. I need quiet so that I can concentrate. I also have severe noise intolerance. Noise makes me anxious. He comes in and doesn’t care that I’m working or that he’s disturbing me. He starts loudly calling for the dogs and playing with them. He hums and whistles, bangs doors, clangs pots, and rustles bags. He marches around the room repeatedly and won’t stand still. If I’m watching a movie, he loudly repeats what the characters are saying or makes loud comments about the film. If I’m having a conversation with someone else, he frequently cuts in on a topic that he knows nothing about.
Right now, I’m in a high traffic area of the house as my dog is recovering from ortho surgery, but even if I was working upstairs in my office, he’d do the same things. Sometimes, he’d barge in, take a seat, and hijack my office, forcing me to have a conversation with him even if I’m busy or trying to meet a deadline. In fact, if he knows I’m under pressure, he’ll be all the worse.
I believe he’s doing this on purpose. He seems to feel that I should drop everything and cater to him, that my whole life should revolve around him, but it shouldn’t now as he’s an adult. I’m so tired of it, and I guess I just needed to vent. I don’t know what to do or how to get him to move out. He does have a job and makes good money.
LindaAugust 5th, 2015 at 4:39 AM
Wow! I Am living your life in a lot of ways. I feel trapped like I’ve been kidnapped by my adult son. I feel helpless most of the time & wonder if I even love my son. I went to a counselor to see what advice he had to help me with my son. He said first you need help so you can be strong enough to help him. Never thought about that in those terms! He said I had major depression. I function ok but I am spent emotionally. At least your son has a job! I am doubtful that my son could ever hold down a job. I,guess I too needed to vent.
susan sAugust 7th, 2015 at 12:35 PM
It makes me cry to read your words because i understand well. I went to a counselor to see what i could do to help my daughter and she told me that my depression was so bad that i could apply for disability. I love my child but i don’t like her. It tears you in half to watch them hurt & not understand but at the same time you want to run far away from them to keep them from hurting you anymore.
sherie h.September 11th, 2015 at 9:52 PM
Hi Linda , I don’t think my sons capable of holding down a job either , I am .. I work three waking nights at the weekend , two cleaning jobs during the week and two pet walking jobs !! Because I have to subsadise his living and simply because the uk government have cut all benefits … Sometimes I’m so tired , I’ve taken an allotment so I can grow my own veggies and I ask him to work on it for the money I give him .
DianeJuly 20th, 2015 at 3:12 PM
I just stumbled upon these comments looking for a forum for parents of mentally ill adults. My 26 year old granddaughter who lives with me whose mother is deceased and father unknown has been having mental health issues for the past 6 months. Two ER visits without meeting the criteria for psychiatric hospital admission. She’s becoming very reclusive now and paranoid along with extreme anxiety. It’s heartbreaking to watch. She left her job, has no income, no health insurance and cannot pay her bills. Just seems to continually spiral downward. I am a retired teacher on a very fixed retirement income and cannot afford to carry her financially. I can’t even envision the future for either of us. I make it a priority to put myself first as much as I can with my morning walks, after swims and daily meditation class. It all helps, but even so it’s so difficult.
It helps to know that so many of you understand how I feel. Very few of my friends or family can relate.
RuthJuly 26th, 2015 at 4:17 PM
I live in the UK so I guess the system works differently over in the U.S. We had very similar problems with my 22 year old son and carried him for 2 years without any income after he dropped out of college. His mental health detetiorated so much that he stopped performing basic daily tasks such as washing, changing, shaving and even struggled to eat one meal per day. He developed severe OCD and spent all day performing rituals instead. It got to the point were he was stick thin and would not go out the house and had started urinating on the floor and sofa. I too could not see a future for me and my partner as he wolf not engage in therapy and there was no way that he would ever move out or be able to live independently. The constant stress and worry was too much to bear and I felt that the only option was to move out of my own home. In the end that’s what happened. We moved house and refused to take him with us. He now lives in a care home and is receiving the help he needs. There is a big hole in UK government services for people with mental health issues who are not severe enough to be admitted and are too ill to receive care in the community.
SallyAugust 18th, 2015 at 11:45 PM
It is do difficult and sad. The system is broken everywhere. Here in the U S we have a zillion programs that do not work to help them especially if they are severe. They find every loophole to get out of doing anything. My daughter has been hospitalized over 50 times in 15 years. For the last 15 months, has been hospitalized every month. I am currently still going through this. She was also hit but a car. Two weeks later she was in jail for 2 days gor trespassing and they released her. It is do hard to get an LPS Conservatotship. It is not right. So sick of it all.
SarahJuly 28th, 2015 at 5:32 PM
My husband & i are caring for
Our mentally & physically
Handicapped 34 year old daughter. She has had seizures since 8 months of age. They are fairly controlled by her medication at this time. She works 6 hours each weekday at a workshop. She had a boyfriend & was treated badly. She blames us for trying to
Control her life. We cannot trust her around men. She is very friendly & is easily a target for a sicko. We are on a program which we get a sitter. Right now we are having trouble finding someone because of her behavior. She is verbally abusive to us & is manipulating. We are close to the end of our rope.
DarlaAugust 5th, 2015 at 10:15 AM
My family has suffered 8 years of hell, just push rewind and play over and over. We set boundaries,
but sometimes are left defenseless when caught up in exhaustion- moving furniture and belongings for 3 days for carpet installation, , bad timing -middle of night , etc…. Our son came to our home
last night and threatened to “go to jail ” if we didn’t buy him cigarettes. He lives out of town, drove here on fumes. My husband went alone with him and in my son’s car and bought him a case of
cigarettes and gas. Almost repeat of same scenario before except this time our son brought him
home promptly. Yes, my husband did not feel he could follow our crisis plan due to fear of present
potential danger. We now have to figure out what to do. Figure we have a week, cigarettes will be gone then. He had been doing better . Recently got off trazodone. Non-compliant on meds and
CarolineAugust 10th, 2015 at 7:53 AM
I have no answers. My son is 37 and has had problems all his life, developmental problems, intellectual difficulties, lying stealing, failing at school, manipulation, estrangement from his siblings, my marriage breakdown, his homelessness, alcoholism, revengefulness, abuse, debt, and refusal to help me with anything around the house. He spends his day conniving and plotting on how to swindle people out of money, I am sick and tired of people knocking on my door looking for him as he owes them money. He won’t take medication because that will affect his ability to drink alcohol. Lately I have switched off I have had to for my own sanity, I wish he would get out of my house, I am tired of being his whipping post, I have no life of my own, I injured my back as an aged carer, work I was doing to support us because he can’t hold down a job. Actually he did work for 3 months, hurt his back and sued the company, gaining $135,000 which he spent on prostitutes and booze in a 3 month period. He gets disability support pension, the same as I do. I don’t care what people think of me, walk a mile in my shoes and see how you feel. I think I will have to move house and not tell him where I am going, yes I know he has a mental illness, but he refuses to get help, he uses it to manipulate people and gain sympathy. I have sought help here in Australia, I was told “oh you poor thing, it’s hard isn’t it”. Mental Health has become a HUGE problem worldwide, as I have read most of the blog, at least in the USA you have organisations to turn to.
His father does not help, he doesn’t want to know about this son, he only likes the other son who has made a success of his life mostly thanks to me putting him through university financially, and our daughter who has 2 great kids. But the 37 year old is my problem, even though he would love to have a relationship with his father it will never happen.
wendyAugust 10th, 2015 at 9:33 PM
Sooo grateful I happened to find all of you….I was “googling” how to cope with the stress of having a grown son with a character disorder +mood disorder+ + yes it feels very isolating…I am now estranged…he is 39…broke off contact with him in 2010…too many crises to mention….affected my health, finances and mental health…Al Anon helped …some of the tools were useful….but in the end having to live with “chronic grief”….my situation is NOT going to improve vs a vis my son…..anyway…agreed to try to repair relationship last winter….and the emotional and financial “abuse” started again…so I decided I cannot have a relationship with him for now…will post again just finding folks who share this “impossible” situation is comforting
SallyAugust 15th, 2015 at 12:50 AM
Thank you for your post. Yes, there is nothing that can fully describe our overwhelming feeling of sadness and being powerless with this. It is very difficult to get away from it. I feel we are all living less of a life than what we envisioned for ourselves. The sooner we take back our own life the better we will be. They are tormented far more than we are. None the less, we deserve to live our live and divest ourselves of this sadness as much as possible. Take care and hope to hear from you again soon.
AndreaAugust 15th, 2015 at 4:49 AM
I hear you Wendy…my son is 30…I haven’t seen him in 3 years and I hear he’s homeless…it’s heartbreaking…I don’t know how I
‘m coping…friends/fam are powerless also…if we ever needed a time when we could be able to commit a person until they stabilized, it’s now…
SallyAugust 19th, 2015 at 12:35 AM
We need to see major change in getting those with severe illness committed/conserved. They have too many rights and no one wants to address this problem and establish decent long term housing facilities that can contain them, as they get worse. They need controlled decent environments with jobs onsite. Something they can do and get paid for. Parents who are doing all this caretaking and are being financially drained need to be compensated too. No one can stay focused on the job with everything this takes to deal with. Talk more later. Sally
reneeDecember 26th, 2015 at 4:59 PM
This is exactly what I commented on earlier today. The mentally ill have way too many rights. They are not competent even on their meds. The only reason they can function is if they are taking their medication. The laws suck for the families involved. Mental health is just brushed under the rug. But in America we are so quick to help everyone else but not our own mentally ill and homeless first. I’m so disappointed.
MaddieAugust 15th, 2015 at 5:05 AM
thanks to all who contribute and share their pain and feelings. I feel such relief to have found a group of people who understand and it makes me feel less alone.
Stay strong together
wendyAugust 15th, 2015 at 4:08 PM
thank you for support and comments…this site is a “treasure”….who knew we would land on a page re: an academic
study and find each other….
meant to be
ShelAugust 16th, 2015 at 10:26 AM
hi there ,
Like many of you on here my ex husband and I have been struggling with my sons mental health for years now!!! But I find that we seem to stumble from one saga to another never quite knowing how we got there..
My son is now an adult and has been quite bad over the years scitzophrenia brought on by ..yes you guessed it cannibis or skunk as they call it.
We’ve got to a point where he is living alone..drives his own car and pays his own bills, and has been determined to get down on his meds..which he has , 2.5 miles alanzapene every other day , and he was rewarded by the government cutting his benefits before he could get on his feet and find a job.
He is about to go back up on his meds a little because of the stress brought on by interviews that he’s not quite equipped for yet! .. He is in the gym every single day.
Has anyone got any idea how I can help find him a job. ???? He is with a trust doing voluntary work twice a week and they’ve had no luck either.
EllieAugust 17th, 2015 at 9:22 AM
After reading countless and countless stories all very much the same. I search and search for hope but never find anything but the same heart breaking stories that mirrors my own. I should stop reading these stories because they just make me feel worse. I am angry because there is no help!!
My son is 22 and I have no hope at all. Countless institutions, medications, doctors, work programs, therapy and so on. He’s too normal for ssi.haha. and too different to hold a job or take care of himself. So I get the joyous job of living in fear and hell supporting my son that will never amount to anything or do anything with his life. All he does is consume everyone else with his whims, meltdowns, and fits. I am so sick and tired I just don’t think it is worth it. I have to roll my eyes at those that tell me to give him consequences, right…because they work so well and he listen so well. Yes, I took away his Xbox and he broke my TV. I came home to every window in my house broken. I got beaten and left with a concussion because I made him mad. I got cussed out at 8 this morning because I asked him to turn down his guitar amp. I have to stay in a relationship I don’t want to be in because otherwise I am scared my son will beat me again or kill me. Oh yeah I should call the police. Haha. I have had every cop in my county call to my home and half of the cops in the next county over. I left my last house Due to the massive humiliation of having the cops out to my house every other day. I nearly lost everything including my mind over the years. I could go on and on. I think death would be easier.
CentrinaAugust 18th, 2015 at 7:45 AM
My heart goes out to you Ellie. Please do not give up hope. Try to find the beauty in life. Go outside feel the fresh air look at nature. Do things that make you happy.
I to have a son 22 who is going thru in and out of the hospital one moment happy next voices take over get angery and punch the wall screaming yelling. He really makes me fear for my safety. I have to walk on egg shells around him. No one seems to help him. No job no school and no girl friend. His only joy is the Xbox. It’s hard for me every day seeing him my little boy suffer so much. All I do is try to stay as positive as possible that one day things will be better. I go for walks in the park with my little pug and watch nature. The birds, bees, the wind and trees. Fresh air away from all the pain. Yes I too have had cops come and hurt him to get him in the hospital. Life is not fair but I know it is a lessen for me to learn. Wishing you all the best, Centrina
susan sAugust 18th, 2015 at 11:44 AM
I understand too. My daughter is 22, been in and out of hospitals and even jail twice. It makes me cry to think those were the only peaceful times i had in my life in the last 7 years. We are walking on eggshells too and its stressed us so bad that now i’ve started having panic attacks and majir depression. we are waiting to see if she qualifies for ssi. If not, i don’t know what will happen because she is killing us living here. I feel like we are being held hostage. People say “throw her out” but you know these kids can’t make it on their own. I feel i am torn between choosing whether she lives or whether i do. i already don’t have a life anymore. My husband and i want peace more than anything as we grow older and we can’t even leave her alone for a weekend.
CentrinaAugust 19th, 2015 at 6:22 AM
I have a very long history of mental illness in my life. Both of my parents were in the military and both developed different mental issues when they got out.
My father OCD and very abusive physical and mental and my mother Schizophirenia. My mother is still living 100% disabled in a home. For two years I tried to take care of her but her illness got so bad it was more then I could handle. My son was straight A student and a collage scholarship to Stanford in the 11th grade. Then had his heart broken by a girl. He was very sad and anxious which the doctor decided he need meds. Now if I knew now what was going to happen I would have never ever gone to that doctor. But we followed the doctors advice and next thing we know he is hitting his head against the wall screaming in pain. Getting violent towards his younger brother and sister. We could do nothing but call the police. I thought I was going to die inside watching my son being taken away by the cops he was only 17. Now six years later and he will be 23 in Sept. He is home with us after two months in the hospital. And still the doctor have not found a med that is right. Even taking his meds he is one minute happy next mad next crying next talking to the voices next thinking we are going in his room taking his things. Both my husband and I are working full time and at times he is alone in the house. We have gone thru were my husband blames me my genes for our sons condition. We have had ups and real lows in our relationship. But have not given up hope. Right before he got out of the hospital we spent one day at Lake Tahoe Ca on the MS Dixie boat. So romantic and relaxing which made up for all the pain we have had over the years.
Please no matter what moments matter tiny moments with a look or a smile. If anything I have learned to be strong through all of this mental illness and go outside away from cell phones, TV, and people and just sit and see nature. Life goes by so quickly and we must cherish the good things in life. Even when things are so very bad I see good in My son.
I wish for everyone to feel peace and find the joy out of life. Do something that makes you laugh be silly what ever it takes to live.
All my best Centrina
reneeNovember 14th, 2015 at 10:58 PM
amen god is good!
KelleySeptember 22nd, 2015 at 6:28 AM
I have a similar situation with my 31 year old son. It’s like being held hostage in my own house. Miss piece and quiet. Just wondered if your situation has gotten any better
shelSeptember 25th, 2015 at 9:59 PM
The absolute worst thing with all of this is that your so alone with it all !!.
My ex is going away for a week with my daughter for a break and then after he comes back or maybe even just before my so should be levelled out , I’m praying that he will make it this time, he’s come down off of the meds so slowly and still does the gym every evening … This is all such a struggle.
His temper is starting to flare a little now and again but on the two occasions that he’s tried o come off before he was much worse .
So I’m still waiting o see if it’s going to work .. I have two allotments a d he helps me on both … He also goes to his volountary work still twice a week , they haven’t helped by moving him on to another place further away … More petrol money.
So fingers crossed.
SallyAugust 19th, 2015 at 12:23 AM
You are telling the complete and utter truth about this. I tend to feel and talk the same way you do. It is a road to no where.The illness gets worse and we become ill as well. I don’t sugarcoat it either. But trying to develop some faith to deal with this and other things.
We have to get unstuck.
Talk again soon.
DianeAugust 18th, 2015 at 10:04 AM
I agree with Centrina that being out in nature helps enormously. I walk and swim every day outdoors. I also find learning to meditate has been a great stress reliever. I try to meditate every day if only for a short time. Our lives are so caught up in the unpredictable never knowing what will happen next that good care for ourselves is vital.
RoseAugust 20th, 2015 at 12:57 PM
I have a 36 yr old daughter that finally left her abusive husband she stayed with because of being depressed, anxiety, & bipolar. She has a job but these keep her from going to work so she is on fmla a lot. She moved in with me as a temporary thing till she found an apartment. I don’t see how she will be able to live on her own. She has tried to work several times but ends up leaving because she can’t cope. I’m 62 and recently on disability because of being a passenger in a mva. So I can’t afford to help her. I’ve already helped her as much as I can. She can be nice, but try to talk with her about anything serious and she becomes verbaly violent and can destroy things. I made it clear she could not live here if she destoyed anything so it’s only verbal for now. It is still hard. I have to walk on eggshells. Shes been here 4 months and all she does is stay in her room and sleep and watch tv. She also has diabetes but won’t eat right. Never feels good enough to help with anything. But seems fine to go do things with friends. I’m alone so I’m afraid to set her off by talking to her because of past experiences. When I ask for help it’s always tomorrow or next time. I also have lupus and heart problems so I’m slowed down, but don’t let them stop me. The stress is getting to me. I think I’m getting depressed. I own my home and had it fixed up nice and it’s a mess now. I don’t see how she will be able to live on her own. I love her but want my peaceful, clean home back. Sometimes I feel guilty I hate having her here but I enjoyed living alone. She gets up all hours because of sleep problems so I’m not getting needed sleep. I feel like at my age its time to enjoy my life not have to take care of her. I won’t put her out on the street, but I’m concerned about my own health. I’ve asked her to apply for financial help and housing but she refuses. She just keeps saying she’s going back to work on… but it doesn’t happen. It is hard enough for me to adjust to not being able to work now and the loss of my income. I can’t afford to go to a counselor and there are no support groups in the area. I’m glad to find you. To bad we can’t all meet somewhere and have a break with others who understand. What happened to f2f support groups?
ShellAugust 20th, 2015 at 2:57 PM
It is a shame that we can’t all meet up rose, but I bet we are all over the world…I’m in England , Great Britain.
The whole thing with mental health is a struggle, but recently my ex husband said to me that he feels that my son leans on his mental illness to get things ..eg money .
And that it is part of his personality to be nasty.
I’m not sure .
CentrinaAugust 21st, 2015 at 5:55 AM
I would love to meet up if anyone lives in the Bay Area North Ca
Rose your life means so much and please try to do what ever you can to reduce the stress. I have found for me when things are really bad I do projects out doors in the sun. To keep my mind off my son and the issues and keep busy. Last night just finished ripping up grass for a walk way that I’m doing in my yard. Everyone has different things they like to do. I can not get my son to do anything for himself. So I try not to focus on what he does not do but on what he is doing. At least for now he is taking his meds.
Thank you for this website really is helping me not feel so alone.
Wishing everyone peace
Best regards Centrina
RoseSeptember 15th, 2015 at 9:04 PM
Thank you for your kind encouraging words. I haven’t been on for a while as I find it difficult to use this site on my phone. It’s my only internet access. I’ve tried to respond to someone many times only to lose what I typed. I miss having a computer.
I’m from S.W. Idaho so not to far from you. I think it would be great if we could all meet for a healing cruise retreat. It would be wonderful huh.
Back to reality. I’m struggling with balancing what I should or shouldn’t say to my daughter (36). It is hard sometimes with the stress building and bills pilling up and wanting to say “grow up and be responsible” when they have a good job but aren’t able to get up and go to work. And knowing I am financially sinking deeper and can not help. I sometimes want to yell “you are an adult act like one”. But know it won’t help anything because she can’t. In fact it might send her into a deeper depression. Or even worse she could manic. So then the decision of what I can tell her in order to be honest and let her know I will not take care of her but will emotionally support her to help her become stronger. I want her to know she has to be willing to do her part to get better too. It is hard to know if it is her mental illness, or if she just doesn’t want to get up.
I’m thankful to find this place where others understand..
KelleySeptember 3rd, 2015 at 7:36 PM
My 31 year old microbiologist son was diagnosed 2 years ago with schizoaffective disorder with manic behavior. He has lost yet another job, and now lives with me, but won’t leave the house. I can’t get him to a doctor, it’s a fight every time I even try to talk to him. He has delusions of grand proportions but when I confront him, he has no proof. Im at my last rope and no mental health facility will help because he’s not suicidal or homicidal. I can’t even talk to him on a regular basis because he thinks I’m out to get him, as well as my family. I have nowhere else to turn. He sits in his room and vegetates, and it’s heartbreaking. Does anyone have any advice?
shelSeptember 22nd, 2015 at 10:08 AM
It’s been a fortnight since he has stopped taking Alanzapine , he’s come down slowly but not as slowly as I would like !! He’s told me that he doesn’t care if he ends up living on a bench he no longer wants medication .. So we’ve gone along with it.
So far so good .. I’ve been here before and ended up back at the start again .
So I think we will see how it goes for another two weeks.
DianeSeptember 4th, 2015 at 4:36 AM
Kelley: have you contacted NAMI? They have a helpline that might be able to assist you. Also, my police department told me to call 911 and explain that you have a family member in your home experiencing a mental health crisis and the mental health crisis team would come out to my home. Additionally, search to see if your city has a psychiatric ER, My city does and it is open 24/7. They also have a crisis phone line.
My heart goes out to all of us living day to day, never knowing what each day will bring.
KelleySeptember 22nd, 2015 at 5:32 AM
nami has been no help. I’ve called 911 out to thr house, but they won’t take him because he’s not sick enough. They suggested I evict him, but as a mother, how can I do that, he has no money, no car and no job. He’s extremely intelligent and knows what his rights are so its hard to argue with him. I can’t take him to an er department because he won’t leave the house.
sherilynnSeptember 11th, 2015 at 6:17 PM
All three of the tips you gave Tracy have been done by, I would guess, most of us. You just don’t get it. Can’t learn it in a book.
DianeSeptember 16th, 2015 at 10:21 AM
Rose….I feel much the same as you. I have to bite my tongue sometimes so I won’t say the very words you mentioned. It’s so hard to keep on keeping on…especially financially when you have an adult child living with you who does not contribute. My 26 year old has so many back medical bills that even though she is working again, her bills take every paycheck. I do not help her financially, just provide a room and some food. It’s such a Catch 22 that we are all in.
JRCSeptember 16th, 2015 at 2:15 PM
I am a 61 years old mother in a bit of a unique situation with my 38 year old married daughter. She and her husband live just a few houses away from me. They have a 10 year old son. My daughter initially began having mental health issues after the birth of her son. Since the birth of her child, she has been under the care of various psychiatrists after being diagnosed with post partum depression which spiraled into major depression/anxiety. Over the past 10 years she has had 3 hospitalizations and has undergone 2 rounds of ECT after learning she suffers with treatment resistant depression. In spite of the treatment resistant depression, she remains on various anti depressants, anti anxiety medication and sleeping medication. I retired from my teaching position three years ago due to the seriousness of her condition, hoping I would be able to help her find the right treatment plan. Sadly, that has not happened. She is getting worse. Her marriage does not appear to be healthy or happy, although her husband has a very good job and financially supports her. My grandson, an only child, has had to grow up too fast, due to his mother’s illness and lack of interest in him and his well being. She spends the majority of her days in bed. I’m constantly being asked to help with the care of my grandchild, household chores, grocery shopping, meals, laundry, etc. because my daughter is basically a non functioning individual. I’m exhausted, heartbroken, weary and feel powerless. My husband is unable to cope with this situation and has basically distanced himself from it as well as my married son (healthy) who lives out of state and another married daughter (healthy) who lives nearby. My daughter’s mental illness has destroyed our once intact family unit because when she is around, it is unpleasant as she just sits and appears to be a shell with nothing to offer. The mental health system in our country is broken and it not only destroys the individual suffering, but the negative impact it has on a family unit is beyond heartbreaking. I’ve sought counseling but did not find it very helpful. The last counselor’s final words to me were, “you need to begin distancing yourself from your daughter because her mental health situation will unlikely not have a happy ending.” This is obviously something I did not want to hear.
sherilynnSeptember 16th, 2015 at 3:16 PM
JRC: I am so sorry for your situation, especially when your grandchild is involved. I don’t have answers; I just now found this site myself. My story is very compelling as well. I am almost 69 years old (in Jan) and had my only child at age 40. I was married for 27 years to her father. She had many many health issues and mental health issues throughout her life even tho we could not get help for the mental health issues. She is now 28 living with me and sinking further and further into the abyss. Her father walked out on us four years ago to be with another woman and he left me helpless as he took all of our money. It has been a nightmare. My dtr has a serious auto-immune disorder, psoriasis, covering 95% of her body, in remission now, and then turned to alcohol. She also developed grand mal seizures; depression; anxiety and panic attacks. She cannot deal with her father’s abandonment (he has moved to France) and I have been dealing with divorce and settlement for 4 years. She is violent when she drinks even against me. It is all such a nightmare. I have struggled to support her and take care of her. I love her very very much. We are just now being accepted into a smaller town home so we can get out of this large family home after all these 4 years. My dtr finally got into a good psychiatrist and we are seeing a neurologist about her seizures. (So much more in between.)
I just wanted to let you know that I feel your pain and suffering. We love our children no matter how old they are and I will never abandon or leave my dtr. no matter how much I suffer. I just want her to be well and get on with her life. I am sure you feel the same way. The medications all come with side effects; in my dtr’s case, she has to have seizure medication which has caused her weight to plummet to 88 lbs. It is very hard at this late stage of life to deal with these devastating mental health issues. The only thing I can suggest for you is to keep your head and chin up high and we both have to accept what is. Find an outside source of comfort for yourself – girlfriends, luncheons, shopping, painting, coffees; whatever. I even go to movies by myself just to get out of my head for a bit. (Usually a comedy!) Yes, the mental health system is EXTREMELY Broken in this country! They took my dtr to a “behavioral health center” (mental health hospital) and it was bar none ridiculous!
Good luck to you! I will look for more posts from you. My heart feels your pain and suffering.
CentrinaSeptember 16th, 2015 at 3:51 PM
Well here it goes again
My now 23 year old son had to be hand cuffed by the police and taken to the hospital today. Just six days ago he was doing so well. Started working again taking meds with no fight with me. Seemed so happy and balanced. Then as each day passed he started again being Angry, happy, sad, back to anger. Destruction where ever he went to his room and his cell phone not working anywhere. Today he spent an hour hitting his head against the wall and laughing. When he would look at me it was very scary
like it was someone else not my son.
I have a friend ThunderBeat.com
who suggested to try playing Chakra Journey Cd this has helped me today
It even made my home feel so peaceful.
Not sure it will help you all but it does not hurt to check out her web site
Wishing everyone peace and love from my heart
RoseSeptember 17th, 2015 at 11:45 AM
I’m so sorry to hear you got your hopes up that all was going well then have him start acting out again. I hate it when that happens. Its a never ending cycle. I am amazed we are able to keep it up some times. My heart goes out to you. I know that unrecognizable look. It brings tears to my eyes just to remember it. Hopefully you’ll get a break while he is there to do something just for yourself. You’ll be in my thoughts. Rose
RoseSeptember 17th, 2015 at 10:25 AM
I have finally finished reading all the posts this morning. It saddens me that there are so many of us all over the world in so much pain stuggling to do what is best for our loved ones. And that there is so little help. I wish I had the money to start a retreat for all of you to get away for free for a break. There is so much sacrifice going on because of the love for our ill ones. There were very few posts that mentioned us caring for ourselves so we can go on helping them. I wish I had answers, but I do know that it has made me think a lot about what I do or can begin to do for myself. With my own health problems I’m concerned about how my daughter will live when I’m worse or gone. So I want to take care of my needs too so I live as long as I can. Life is difficult but There has to be things that will help us survive all of this. This post is a good example of one way. Nami gave me some good information but around here anyway once the class was over no support.
I can’t afford counseling so I will have to get creative on my own. Before my accident I used to write a lot. Some people call it journaling. I have notebooks full of things I’ve written. Poems, silly stories about my life, angry rants or blessings. Thankfully no one else reads them. It is physically difficult to write very long now so it’s been a while. On my phone I am able to speak and it types for me. This morning I started writing again using that. There are programs for computers too. I can say/type things I feel and would never tell anyone else and put a password to lock it and it felt great. I also recently bought myself a coloring book and plan to take a few minutes alone regularly to work on that. I am choosing to stop caring if the house is messy and stop to play with my sweet little dog. She has given me so much love and helped me survive all this and I know she feels the stress too. I don’t have the money to go shopping, coffee, lunch, movies etc. But I can take my dog to the park on a picnic. I’ve spent my retirement money helping my daughter. Now on disability from the mva I’m having to learn to live very frugal. Thankfully my house payment is less than what rent would be. I love to garden so this year had to learn to downsize it to a few plants in pots. I have a large double lot yard and have let the extra lot go, spraying it so nothing grows there. Thankfully I live where I can do this. My lupus keeps me from much time in the sun but I still make sure I get a little. I would love to hear ideas from others.
Btw I also have a 46 yr old son who used to live with functional Aspergers like my ex until he was rear ended while stopped at a light by someone going 55 mph. He will never be ok again. He moved back and lived with me 4 yrs after that and sat in the rocking chair watching tv for hours every day. It was hard to to see my very intellegent son gone. He is now on ssdi living on his own and has a social worker checking on him. For some reason he has decided not to speak to me for 3+ years now. Every since he had a bad episode and was hospitalized not long after he moved out and called me for help. We were always close and spoke often before. I’ve had to let him go and put him in Gods hands because I could do nothing. Sometimes that is all we can do.
Please everyone find ways to do things for yourself. I’m starting to see we can’t help them if we don’t take care of ourselves. Love to you all. Rose
shelSeptember 17th, 2015 at 11:41 AM
Hi rose , you sound like your struggling and my heart goes out to you.
Keep up with your mindfulness ,that’s what we call what your doing in England.
My son is off of all his meds now and is leveling out soon, calm before the storm or will it all work out for him!! It’s the not knowing that’s hard for us because the person he becomes isn’t nice.
I have taken on two allotments and he helps me and I pay him (arghh) the government have stopped paying him any benefits because he’s off of his meds.
In other words they’ve dropped him when he needs them.
His dad also employs him and he’s up the gym (mindfulness) every night.
Were all in a pickle but what your doing is working for you.
Keep it up .
wendySeptember 17th, 2015 at 5:57 PM
thank you ‘x’ for your kind words and support
SandraSeptember 22nd, 2015 at 9:59 PM
1. If your adult child is abusive and dangerous, remove him or her from your home. You will worry. ‘What will happen to my child?” Well, they will find a way to survive, even if it means going to a shelter. Shelters have case managers, addiction specialists, etc. If your child is dangerous, removing them from your home is the direction you’re going in anyway. How long can you tolerate having things destroyed in your home, being punched, not knowing if you are going to be killed by your own child. Don’t let them come back. Don’t believe their story that they will stop the behavior. They can’t if they aren’t on medication. Does you child have a history of going on and off meds? If yes, keep them out of your home. If it will make you feel better, help them find a room to rent, etc. Help them pay for the rental.
2. Train your mind to stop worrying. As the song goes, “whatever will be will be. The future’s not ours to see, que sera, sera.” You always imagine the worst, and it doesn’t happen. Can you stop the worst from happening? Maybe this time, or the time after that, but what about all the times to come? You are wearing yourself out thinking like this. You know doggone well that there is always one crisis after the other. Try to live with the uncertainty. One suggestion, go to bed and get a good night’s sleep so you can wake up sane to go to function.
3. Stop giving away all of your money. Develop a budget to help your child. Maybe it’s $100 a month, or whatever you can afford. It’s really stressful when you give so much money to your child that you can’t pay your own bills.
4. If they’re homeless and don’t want to go to a shelter, don’t feel like you have to put them in a motel room every night. Too expensive. Say no.
5. Treat them like an adult. Don’t fuss over every little thing. Let them figure things out on their own. If they don’t have anything to eat, direct them to organizations that provide hot meals. Chat with them on the phone. Get off the phone when they become threatening. Don’t listen to that crap.
6. Incarceration. It’s a shame, but what can you do? Jail is a revolving door for some of our adult children. Actually, some parents say they only have peace of mind when their psychotic children are locked up or hospitalized. Don’t waste your nest egg on legal fees if you’re middle class. The lawyers we can afford are actually no better than a public defender. They all just try to get a plea deal. Few will work up the energy to mount an insanity defense. Be careful with bail.
7. Civil commitment. You could go to court to get a commitment for outpatient treatment. Be prepared for a backlash from the child, even an assault.
In conclusion, get your home back. Let your home be a sanctuary for you. Help your adult child from a distance. Stay in touch. Help when you can. Stop thinking the worst is always going to happen. Get some rest so you can function. Accept what is. You can’t make someone go into treatment if they don’t want to. Make a list of social services where your child can get food, clothes, the location of drop in services to do laundry, etc. Keep pushing them towards independence.
I have been there and done that, so that’s my advice.
DanaSeptember 26th, 2015 at 11:51 AM
Sandra- thank you gor the encouragement. My 23 year old son is currently hospitalized and so mentally ill I dont know if he will ever be well . I wont go into detail. Im sure readers have their own horror story. No need to hear mine. But I need to keep reminding myself I not a horrible person for refusing to buy into his drama.
shelSeptember 26th, 2015 at 2:38 PM
Hi Dana , it’s so hard not getting involved though !!! I looked at it with my son that as it was drugs that caused it I had no guilt !!! But I still had the need to get involved and try and get him well.
Scitzophrenia brought on by a fine selection of drugs , I’m still trying to help him but he does drag me down and blames us for just about everything that’s gone wrong in his life .
I think by reading these comments that we are luckier than most because he wants to get well and fights for it !!
We’ve decided to give him a few more months and then stop subsidising him so he gets out to work …. Fingers x
shelSeptember 26th, 2015 at 8:21 PM
Sandra , your so right !! But it’s so hard .
How can a mentally ill person find work to earn money if nobody will employ them ?
JackieDecember 14th, 2015 at 2:01 PM
Sandra thank you so much for your sensibile advice. This is exactly what i am doing. It is the hardest thing i have ever done. Will it work out? I don’t know but i have tried everything else. Every comment i am reading is what my son and i have been through. The courts can force people to go to jail but won’t force our children to get the help they need. There must be a way. All of us shouldn’t have to go through so much trauma, our adult children and us deserve more.
wendySeptember 23rd, 2015 at 6:42 PM
SANDRA ….you said it all! I let go of rescueing my only son (today39) 5 years ago…I had a physical and mental meltdown gratefully I had accumulated several months of ‘sick leave and 1/2 pay” …long story…a support group helped me learn the tools of “detachment with love”….he called me last winter….I agreed to allow him back into my life….someone helped him access services but he was “starving” and almost homeless for a while…it was very painful for me to interact with him…..because he is very smart but mentally ill…..so he would go off into monologues….5 months into our ‘new relationship” he began asking me for money…experienced one crisis after another and called to be rescued ….and when I refused sent me scathing emails…full of contempt and insults….so again I have made the decision to break off the relationship…..its painful but I have to take care of myself..I am 67…and I did everything in my power to help him for 25 years.
DianeSeptember 26th, 2015 at 1:59 PM
Shel, I agree about being so alone. My 26 year old has been relatively stable for the past few months, but today the paranoia has reared its head again. And now she believes her identity has been stolen and wants to involve the FBI. I’ve told her she needs to discuss this with her therapist and that I cannot be involved or talk to her about her disturbing thoughts. And that I cannot have these issues affect my surroundings. If it escalates, I will have to call the 911 crisis team for assistance. There never seems to be an end, does there?
shelSeptember 26th, 2015 at 8:15 PM
Hi Diane , no there really doesn’t , do you live in America may I ask ??? , I’m wondering if your treatment over there is the same as ours in England ? Do you have to have your child sectioned and is it as hard as it is over here ? The doctors over here seem to try and help them to come down slowly off if there medication ? Do they do that over there. ? And the medication is it the same as over here ? My son Has Alanzapine !or he did until he stopped taking it recently ?? .. And are drugs a big cause of your daughters mental illness as it was my sons ? Sorry about the questioning .. And you really don’t have to answer but I’m curious ? X
DianeSeptember 27th, 2015 at 2:23 PM
I am in Texas. She has not been diagnosed even after 2 ER visits this past summer. Apparently at the must recent ER medication was advised and she said No. She is working again, but with the paranoia escalating I think it won’t be long until she is unable to keep the job. I told her yesterday that her disturbed thinking cannot impact me or my surroundings and she needs to discuss this with her therapist. It seems unending as no professional has given a diagnosis and she has periods of being functional.
shelOctober 2nd, 2015 at 7:06 PM
The periods of being functional and their ability to bring normality to the table when an doctor or specialist is questioning them seems to be the problem with most of them.
I’m in the stages of my son levelling out from slowly coming off of all of his meds and the FBI thing you spoke about was a similar thing that happened to me last time he came off …
SueSeptember 27th, 2015 at 4:51 PM
I’m the parent of a 37 year old son who was diagnosed with bipolar disorder 3 1/2 years ago. I am now a widow and my son moved in with me because his second marriage was failing. I would like to know how to go about applying for disability ( in the United States) for him because he is unable to keep a job most of the time because of his illness. He has 3 children and 1 step child and is completely overwhelmed with child support that is past due.
Also the cost of supporting him has exhausted my resources. Any advice?
wendySeptember 27th, 2015 at 10:45 PM
Sue….please consult an attorney that specializes in Social Security DIsability….in NYS they work on a ‘contigency” fee.
she/he will explain..getting SSD and Medicare is a process and it is helpful to work with someone who understands.
good luck……ie attorneys listed in phone book
DianeSeptember 28th, 2015 at 4:50 AM
Sue…Maybe this will help you begin the process to receive SSI ssa.gov/planners/disability/dapply.html
RoseOctober 2nd, 2015 at 12:19 PM
3 days ago my daughter informed me that she had been feeling guilty that she had been lying to me. I am still in shock and have stayed busy and away from her since because I’m so hurt that I am speechless. Finally today I’m able to cry. I need time to think. I will talk to her over the weekend so she won’t have an excuse for missing work. She has been playing me for 6 months. The real reason she was missing work was to have an affair. Yes she was having guilt and anxiety because being a christian it made her feel bad. But those days she stayed home sick or crying was guilt not her bipolar and anxiety disorder being worse and uncontrolled like she said. I feel so manipulated and used. I gave her my only safety net money to leave her husband, store her things and pay movers. My summer was spent driving her to and sitting hours in hospital emergency rooms, worrying she would never be ok or on her own again and of course blaming myself and my failed marriages for her problems.(they couldn’t handle her behavior). I was uncomfortable going camping due to leaving her alone in my home. She moved in for what was supposed to be only 2 months. She refuses to be careful with lights and water therefore running up my utilities costs and really messes up my house. It has turned into 6mo so far. All the while claiming she was too tired and sick from being manic keeping her from sleeping to help me. It more than doubled my work load keeping up my house so I had to let the yard go because it was too much. I had to run up my credit card for food. We will now be eating beans and peanut butter. If she doesn’t like it she can go without. I’m going to get my credit card paid off. To make it even worse the man she has been with is someone from her childhood that tried to get her in a relationship when she was 13 and he was 17. I even had to call the police on him back then because he threatened to kill me when I told him to stay away. I’m afraid of what he will do now at 40. I know he’s taking advantage of her. Nothing I can do because she is not legally disabled. She is numb and dead brain like a zombie that can’t hardly think right. She just lets life happen to her. She makes no decisions just what ever happens and no emotions. I’m beginning to think illegal drugs may be involved. Or the dr has her over drugged. Has anyone heard of 4 mgs of lorazapam regularly. On top of sleep meds, bipolar meds and anti depressants. About 20 bottles of stuff. Seems like a lot to me. It’s really expensive to get guardianship but lately think that it might be necessary.
I told her he was not to know where I live and that she needed to move out immediately. But she has no money. What little she has made, since in 6 months she has only worked about 10 days, which has gone towards a 6 inch pile of medical bills and to hopefully pay her medical and car insurance. I really don’t want to put her out on the street it gets really cold here. I’ve seen no signs of her packing or looking for a place. When I told her she destoyed my trust in her and that I’d have a hard time ever trusting her again. Also that I felt scammed and used. She became very angry. Which can be a bad thing for me and my belongings. I’m going to buy a key locking doorknob for my bedroom today and put anything important in there. Although from experience I know that may not stop her. I will call the police on either either of them if needed. I just don’t need this garbage in my life now. With my health problems I need things more calm, not this. I understand it is not easy to kick her out if she established this as her home. I thought we were close despite her mental problems, but now I wonder what if any of it was real. Part of me has had it and wants to walk away leaving her to live with whatever mess she gets into and have nothing to do with her. And she’s using no protection so will probably end up pregnant or diseased. Not a good thing with all the meds for bipolar and anxiety she is on. Sorry for ranting. I’m hurting and confused. I have no one safe to talk to and can’t afford counseling. I’ve been searching for f2f support groups but we just don’t have them. Anyone else been taken advantage like this? I would appreciate your sharing. I know if I put her out on the street I’d feel bad too. So there seems like no way to bring peace to my life .
shelOctober 2nd, 2015 at 7:00 PM
Hi rose , can you look up on google as to wether she should be takingXxx lorazipan and how much of the dose she would need or get her to sign something to say that you have right to take control of her life ?? …
RoseOctober 2nd, 2015 at 11:45 PM
Thank you shel, I did look it up. I am concerned. I fear all her dr is doing is teaching her to medicate instead of teaching her how to be ok with feelings and how to work thru bad feelings. I always taught them that the best way to deal with tough things is head on because if you avoid it then it stays there till you do deal with it. She even remembers that. But I can no longer teach her, she needs more help
My dtr came home very angry and exploded towards me tonight. Accused me of all sorts of wierd things.
I should have expected it. She has done this all her life whenever she gets mad at me and she is angry because her lying to me made me not trust her. She runs to anyone that will listen and say how awful I am. She has caused me so many problems with people. Till they get to know her. I’ve lost many friends and dates because they didn’t know how to deal with her. She lives for crisis and for some reason directed at me and anyone I’m close to. The only person who’s ever been there for her. It’s scary to let her stay with me not knowing when/if that would show up. I asked her if she would go stay at the womans shelter because that would give her all the help she needs that I can’t afford to do for her. She exploded and swung at me like she was going to throw something at me or hit me but I shut the door between us. I then told her she needed to leave as this was unacceptable and she knew it. I refused to even keep her dog. She started screaming about me being crazy for being upset about her doing that. And even her dr thinks so.(funny since she doesn’t know me and she hasn’t talked to her since she swung at me) I had to threaten to call the police before she calmed down and left. So there is finally a night of peace in my home. And new locks are on too. yea. For how long I don’t know. I’m turning off my phone so she can’t bother me. She’s already been calling. You know I’m sure I am a little crazy from living with all this for 36 yrs. I’ve learned to go numb, walk on eggshells and keep a phony smile on, it’s the only way I can deal with being around her. The only way I kept working all those years. I do sometimes think I’m close to a break down. I love her so much but I really need a break from her and some help dealing with all this. I hate her disease. It’s to much to continue alone.
I know she is going to want to come back. I hope if I don’t let her so I can take care of myself that I won’t be condemned for it. I need to feel safe so I need some time to figure out if I can take it any longer. It is making me sick. But she may be sleeping in her car. It’s so hard.
I don’t want the responsibility of being her guardian. Not without more and better help.
shelOctober 3rd, 2015 at 12:26 PM
Hi rose , when I wAs reading your answer I felt suddenly very sad for the dog !! It must wonder what the hells going on .
I don’t know what’s going to happen to us ..
I live with loads of guilt. X
RoseOctober 3rd, 2015 at 4:10 PM
Yes Shel, I too live with an enormous amount of guilt. Boy do I understand. Yes I worried about the dog as much as my daughter. But I also know she wouldn’t let anything happen to her baby. And the reason I did this is she has taken advantage of me watching the dog so much and it has bit me, gone to the bathroom all over my house staining carpet and has torn things up and I’m just tired of it. She will not train him and never has. I have to be here at all times when he is here to protect my things and I needed a break. He is her therapy dog so should be with her it helps her. He is 13+ and not used to no dog door to come and go as he pleases. I’ve tried so hard to train him but his brain and eye site is failing. I’ve felt heartbroken for him all day. He wanted to stay with me,she scares him when she acts out. My dog hides from her too.
Its been so nice to be alone and have peace and quiet. I even had a friend over. My dtr called and is begging and apoligizing wanting to come back. There will be some things that have to happen first. And in writing. Including facing and telling the truth to those she lied to about me. Has anyone tried that? If so did it work?
KatieNovember 12th, 2015 at 6:41 PM
Rose, I’m so sorry hearing about your life and the suffering your daughter brings to you. I understand as I have a mentally ill 30 yr old that has basically destroyed my life and stripped me of all finances and even my retirement. The mental health system here is broken. My son is not suicidal or homicidal so he gains entry into no hospital to get help. Insurance will not cover residential care. My saving grace has been my faith in God. Without Him in my life I would have ended it long ago. But I place my trust in Him. I enabled my child for so long hoping he would find help. Boundaries were not set up in the beginning. But I’m to the point you are now. We can’t save them. They need to want help. We give them the basics they need that keeps them on life support until we are on our last leg. I don’t want to turn my back in my child just like you don’t but it gets to the place of survival. I want to find a support group. Need to talk to people that understand. This is what you need too. I’m putting your name in my bible and I’m going to,pray for you every day. For your miracle. For our miracles! I hear you. God sees you! Cry out to him. Lay it all out. He loves you. His Son died for you because you matter. Don’t give up. Get mad! Find help sweet Friend. Take care of you. I’m praying Rose. Love, Katie.
shelNovember 12th, 2015 at 7:48 PM
Hi Katie .. My son Gave up his medication two months ago to become normal , and at first he seemed to keep the normality and just literally dissapearing when he became angry or anxious .
Well he’s just got to the last day tommorow of a job that we had to really struggle to get him too it was for just two weeks and with one day to go he walked off of the job , I’m gutted .
And the worst thing is he’s saying and doing things that make not a lot of sense , but I’m not going to make him go bAck on meds as I’ve never heard the end of him bring on them .
So now I’m wondering what’s going to happen , me n his dad have had a two week reprieve of him begging for our hard earned cash .
I feel like running away
KelleyNovember 13th, 2015 at 6:15 AM
My 31 year old son quit the dream job of a lifetime, because the FBI or CIA told him to. He now lives with me. After various attempts to get him hospitalized, I have just given up, and until he decides he needs help, I guess this is my new normal. He’s not suicidal or homicidal, so I’m lucky there, but he makes no attempt to get a job, his drivers license or have any quality of life. I can’t get him on disability, because that would require a doctor visit, and he won’t agree to go. His disease has taken over his life, and instead of being frustrated every day, I guess I’m just putting my head in the sand until something makes him want to get help. I am living this way because I couldn’t take the stress anymore of trying to convince him he’s mentally ill. Police want me to go to court to evict him, and I cannot do that. He has nowhere to go. It’s pitiful. Praying someday he realizes he’s sick, but not sure that will ever happen.
RoseNovember 13th, 2015 at 1:54 PM
Katie, thank you so much for the prayers and encouragement. Yes, without God to help me I would not have been able to make it through this, or what is to come. One of the hardest things is wondering what will happen to them when I’m gone. My biggest fear is her living on the street. Especially since with all my medical and having helped her, I have nothing left to leave.
I will put you on my prayer list too. I agree we need people to talk with. I wish there was a way to talk privately to people that post. Thankfully we can post as it really helps. But unfortunately there’s no private chat room here.
So far asking my dtr to move out is going ok.
She is living with a friend of hers since grade school in a converted garage room. Her friend is also bipolar and has been getting help and married w/3 children. So hopefully she will be of some help to her.
She has been working 1-3 days a week now.Thankfully they have put up with it and not fired her.
She told me living alone makes her go to work.
She says she wants to feel better and is taking her meds, they just don’t seem to help much. But she doesn’t want to do the work to help herself. Even though she likes her counselor she cancels most of the time. And if it requires any kind of physical energy it won’t happen. She refuses to go to physical therapy and lives on junk food.
All I can do is pray for her now. But every day I wait to hear from her wondering if she is alive today. It’s a horrible way to live. But I am happy that for the first time in her life she is living on her own. It has already changed her attitude towards me, she is much more kind and understanding. She is struggling and calls me crying. I encourage her a lot but won’t take care of her. I will give her food if she needs it. I’m actually growing tomatoes, green beans and 2 kinds of squash in planters in my house this winter. Tomatoes and beans always do well the others are a test.
I haven’t been able to find a support group anywhere near here. And can’t afford counseling. I do have a massage therapist neighbor that I let store some boxes in my garage in exchange for a couple massages a year. It really helps. I’m looking at better medicare advantage programs for next year so I’ll be able to get a counselor. Sending a hug to you.
RoseNovember 13th, 2015 at 3:00 PM
I know that people on here are from all over the world. The news report just came on the television. I pray that none of you are living in Paris and if you are I’m praying you are all safe. You’re in my prayers. And my heart will be with you, my heart is breaking for anyone living there. You have enough going on without this too. Love and prayers.
RoseOctober 3rd, 2015 at 12:02 AM
I just spent hours trying to explain how my daughter attacked me tonight and wanting 2 post about it. it was refused. I also tried to answer what someone else had said to me. I am stressing out. I don’t understand why it was not allowed to post. Is there some limit to responses.
Well in case this gets posted. I kicked my dtr out tonight I can’t take it anymore I don’t know where she is. I feel bad because I love her I wanted to talk about it. I feel bad but I need to be safe. Can’t take her here any more .
October 3rd, 2015 at
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DianeOctober 3rd, 2015 at 5:05 AM
Thank you, Shel, for your most recent comment. My granddaughter seems to have periods of normal functioning where she can apply for and get a job and then after a few weeks she has some sort of relapse and is eventually fired. Her reasons for being fired are always that the employer thinks she is stealing from the company! Even thought his time the employer told her it was because she didn’t interact well with customers. Mental illness is so confusing and baffling and exhausting.
J RayOctober 4th, 2015 at 4:23 PM
I have a 37 year old son with a mental disability. He has gotten worse over the last year with seeing things, hearing voices, and sometimes describing terrible acts of torture. We have been waiting for his Meducare card to kick in so he can get treatment in December but that’s too far away. He is Schezophrinic and talks out of his head and it’s getting worse. He needs hospitalization but how can I do this? It must be done so he can get the right diagnosis and medication . I don’t want him hurting himself or someone else but it feels like he is getting close. Help as to please advise. I need him hospitalized now
shelOctober 5th, 2015 at 1:26 AM
Hi Diane. I’m not sure that I sent my last message !?
The only way I found was to lie and say he’s talking about commiti g suicide.
This normally happens any way , they do talk about it!!
But they wait until it seems that the problem is unmanageble
Then it takes copious amounts of medication to put them right !!
RoseOctober 5th, 2015 at 11:11 AM
I don’t know where you are from, but here in usa they used to have emergency medicaid. But he’d need to qualify for it. This used to help pay some of the recent back medical bills also. I hope they still do for you. It is so hard to watch them hurt and not be able to do anything. You’ll be in my thoughts.
KariOctober 12th, 2015 at 7:06 PM
I have a 24 yr old daughter who was recently diagnosed with Non Verbal Learning Disability. She had been diagnosed with bipolar, schizoaffective, depression and so on. It took weeks of testing with a neuropsychologist to find the true problem. She has been on so many meds that I cant list them all. None helped, some even made her depression worse! The depression and anxiety she has is a direct result of not getting the help she needed as a child. Now, we are left to pick up the pieces and deal with many of the mental/behavioral problems listed on this forum. We also have a 19 yr old daughter with autism. Because her condition was obvious, she was able to get into special education and received all the necessary interventions. She is a happy and well adjusted adult who goes to an adult program monday through friday to learn life skills. I’m so upset about the difficulty we had in getting the right diagnosis for our older daughter. It was very difficult to tell what her actual disability was. She seemed normal except for a lack of social skills and trouble in academics. She had alot of trouble making friends, always said the other girls were mean to her and didnt want her around. She struggled with social cues and always seemed to make people angry even though she didnt mean to. I suspected Aspergers but was told by more than one psychologist that she didnt meet the criteria. But her social difficulties were obvious to anyone who spent some time with her. My question to everyone on this board is, did your child struggle in school with schoolwork and social situations? Did they seem to have a hard time fitting in? They may have a learning disability. Some are not obvious to the untrained eye and they get labeled as having a mental illness. The behavior is actually years of frustration and misunderstanding. Where I go from here is anyone’s guess. I can’t find much on how to cope/help an adult with this condition other than buy books for her to read. It is exhausting and I’m not sure how much more I can take.
AnnOctober 20th, 2015 at 7:44 AM
My daughter is 22 years old and although she has not been formally diagnosed, she has the majority of the symptoms of borderline personality disorder. I could write several paragraphs on all the problems since she was quite young. I’m a single mother and pretty much always have been. Currently, my daughter is living with me, but spends her days hanging out with the local riff-raff, riding public transportation, and being with her boyfriend who is 28 and has a host of problems himself. She lies constantly and it’s very difficult to believe anything she says. She has begun stealing money from me. She has been given the opportunity so many times to seek help, but she refuses. She also refuses to go on birth control and I’m quite sure she is trying to get pregnant. Despite trying to set limits, my daughter ignores what I ask and now is having her boyfriend at our house during the day while I am at work and I know they are having sex in my house and I find this very upsetting. I have talked to mental health professionals and I’ve been to NAMI meetings and I keep hearing the same thing, she won’t get better until she hits rock bottom. I’m meeting with a lawyer today to find out about starting the eviction process. I don’t want to have to do this, and I’m getting conflicting input from friends and others, so I fluctuate on my decisions and I don’t know if I can go through with making her leave. I’m fortunate that I’m very valued at my workplace and I have a lot of leave time stored up, but I feel like I’m not doing a good job at work because it’s difficult for me to compartmentalize my feelings. Any advice would be appreciated.
RoseOctober 20th, 2015 at 11:45 AM
Ann, my heart goes out to you. If you’ve read my posts you know I am also a single mother and your story is in many ways so close to mine. I too had many others offering conflicting opinions. And talk about guilt, I have never felt so confused and bad. I finally looked at what I needed to do to take care of myself and stopped listening to them. I did make my 36yo daughter leave. I didn’t have to evict her because she didn’t know I had to in order to get her out. So far it has turned out to be a good thing. She stayed with someone on their couch. In days she was miserable and begging for forgiveness and asking to return home and willing to live with my boundaries. She also agreed to look for other housing and go to counceling. If she didn’t do these she would be required to leave again. So I let her back for now with conditions. I also notified her that police will be called and if needed charges will be pressed if her “friend” comes around, anything goes missing or if she hits me. So far she has keep to all boundaries.
She has found a room to rent from a friend and is moving in on the 30th. She is cashing in a small retirement acct from a previous job. She can’t seem to make it to work and wouldn’t apply for help or admit she needs help before, so it will be interesting to see how it goes. I figure she never will as long as I am here to bail her out. Making her leave scared her into following through with some things. She’s afraid of being homeless. I cried a lot as it was so hard. But in my case it turned out to be for the best, but you can never know for sure.
Are you in the US too? Can you get an order for her “friend” to stay away from your home where you are?
I live with nerve damage from a car accident in constant pain and lupus. I could not take care of myself and tolerate her behavior too. I can be of no help if the stress makes me worse. I also put a keyed lock on my bedroom door.
I will keep you in my thoughts and prayers. Keep us posted it helps to voice how you’re feeling.
DianeOctober 20th, 2015 at 12:22 PM
I feel much the same with my 26 year old living with me. Right at this moment we are on a good spot. But, things can change on a dime. If I were to evict her, I’d have to move far away as she will return home and pound on the door creating a disturbance and cause me to be evicted from my apartment. It’s such s catch 22 for me. I have no advice, just do understand the dilemma you are in. There never seems to be an answer.
ReneeOctober 21st, 2015 at 9:33 PM
Kelley! I am in the same boat ~ I really wish there was someone I could talk to going through the same thing as I. I have a 22 year old son still living with me. He has PTSD and Manic Depression. He just got a really good job a week ago, but quit today for no reason. We’ve tried all meds and they only make him worse…I come home everyday depressed myself. I simply do not have a life ~ he is not the son I raised. He went into the Marine Corps when he was 18 ~ finished boot camp and as he was training, he feel very ill with a horrible fungal infection…he refused to train one day from being so ill and so he was discharged with a OTH ( Other than honorable)…we have been fighting it, but the Marines are not responding to anything. I don’t know what to do. This is not the sweet, funny caring boy I raised. I’m heartsick.
KelleyOctober 22nd, 2015 at 4:38 PM
I started reading a book called I’m not sick, I don’t need a hospital. It has amazing tips on how to deal with people like us dealing with mentally ill adults. It has given me a whole new outlook on how to deal with my 34 year old son. They also suggest calling all the hospital and asking if they have a mobile crisis psychological team that will actually come out to your house for an evaluation instead of calling 911 and the cops not doing anything. It’s a great book, try it
ShellOctober 23rd, 2015 at 7:53 AM
In England we have early intervention , it’s brilliant !!.
They really do a lot to help and it looks like this is the same thing.
They even had meetings arranged for me and my ex husband to meet other people with the same problems.
RoseOctober 23rd, 2015 at 9:15 AM
Shell, I’d love to hear more about the early intervention you have in England and what they do. Maybe I could try to get it here in U.S. How does it work? Who runs it? It sounds great.
I’m going to get the book Kelley recommended too. It sounds helpful.
KelleyOctober 25th, 2015 at 2:45 AM
I’m not sick, I don’t need help is the correct title. I started implementing the tips in the book and I’m finally getting my son out of his room and to join family time. While what he says still is delutional, I’m learning how to ask the right questions to get him to trust me again. It truly is a great book
shelOctober 25th, 2015 at 1:01 PM
I’m going to get that book tonight. !! X
ShellNovember 13th, 2015 at 12:03 PM
Early intervention is only allowed before the person is 25 yrs old,. But they step in and take the mentally ill young person on and basically organise one day per week out ( dry slope skiing etc etc) the young person gets to meet other youngsters like them selves and they also have coffee morning s.
They have a centre that they leave open for droppins at any time during the day.
On the medical side they also have psychotherapy available and a psychiatrist that has the young persons best interest at heart .
And meet up with them on regular basis to judge wether they’re taking the right medication.
They also arrange for the carers to meet each other and have meeting where you can swop experiences and its amazing how much you have in common.
It’s brilliant and I miss it ..cos my son is 30 and now we’ve been dumped.
No medication so no doctor.
No medication so no benefits.
RoseNovember 30th, 2015 at 6:54 PM
Thank you Shell. That program sounds wonderful. It would be too late for my daughter but not for other families. It sounds like they need at least a support group for them and the caregivers to continue after 25. I will figure out who to talk to about starting a program like it and share the info you gave me. I don’t know if it will work but it can’t hurt to try. Something needs to change here. We have nothing like that. And calling the police when they act out can have very bad results. They still get benefits here when they quit taking their meds. So no incentives or accountability. And if they continue dr. care they just prescib more or different meds and nothing more for them or the family members caring for them. I’ve looked and asked for help everywhere I could think of for 30 years and nothing. NAMI had good info but no support. My daughter says she hates being this way and is on several meds but nothing seems to help. It’s hell for me but I can only imagine how frustrated she must feel. She went through NAMI but doesn’t even bother to try to find other help anymore. I’ve tried to get her to look for a place online that she can talk to others, like we do here, but she’s ashamed to admit to her illness. She won’t apply for help so gets none. Except from me. She has a job but only works 0-2 days a week. I think she would be a lot better off now if I could have been able to get her help like that program when she was younger, but the dr.s wouldn’t listen or help. They just called her active and stubborn and laughed it off. I loved her but hated her actions. Back then I looked forward to her turning 18 so I was no longer responsible for her and looked forward to my life getting easier. Little did I know it was going to affect my life forever. I keep reminding myself daily of the good times, because there have been and still are some. I’m so glad I found this site.
Ms SOctober 24th, 2015 at 4:23 PM
I am glad I am not the only one, although I wouldn’t want anyone to go through this. I have a 24 year old daughter who started having paranoid personality changes between 2009 through 2013. Her PCP was no help and would not refer her to a behavioral health provider. In 2013 my daughter had hallucinations and thought people was saying negative and obscene things to her. It broke my heart. She held offices in several activities and groups, but did starting to cut herself off from friends. She was heavily into church and started discussing with me how we are too privileged by having a car and paying to have shelter and utilities. She felt sorry for the homeless where she decided to live with them. It scared me. She kept feeling like God was punishing her for living in a way he never intended. She wanted to only eat fruits and vegetables. She wanted to wash her clothes at a lake, not take care of her hygiene, and quit college. It wasn’t until 2013 when she had an episode at work that led me to taking her to the ER. My daughter was so different. I had no idea who she was and why she thought she smoked and was talking really vulgar. She was referred to a behavioral health hospital for eval afterwards. When we got to the behavioral health hospital, she was evaluated and I was told they had to commit her. OMG! to have someone firmly tell me they will have to keep my daughter and there was nothing I could do was confusing. I am glad she got help. She has had several medicine changes, but doing better. The obstacles is her getting defensive when I suggest anything, jumping out of the car when she doesn’t agree with me, dealing with a codependent boyfriend she met at a center that helps mentally challenged adults. I am thinking about moving to the Atlanta area where she may get better help, but I really don’t know.
EricaOctober 25th, 2015 at 3:47 AM
What about those of with children with SMI? My 15year old daughter was diagnosed with Major Depressive Disorder 2 years ago after attempting suicide. She has been seeing a therapist & a psychiatrist for many years ( she is a shaken BAby survivor & has ADHD).she is also a self-harmer. Over the last couple years she has been hospitalized 5 times & has had multiple psych evals to see if she needs to be sent to a juvenile facility. My husband & I also have a 3 year old daughter that recognizes that her big sister is sick & sees the cuts. Our lives are not easy. There are nights that I must sleep in the room with our oldest because we are scared she could try to harm herself. I haven’t slept a full night since her suiside attempt.
DianeOctober 25th, 2015 at 4:58 AM
Ms S….although my 26 year old’s paranoid episodes are not as severe as your daughter’s, I have some inkling of what you are going through. Living with someone in this state of mind is so unpredictable and surreal. It’s extremely difficult. I’m glad your daughter received the help she needs. And I agree with trying to figure out the future. Everything is so uncertain. I know what you mean about your daughter getting defensive. Mine is like that as well. I have stopped advising her on anything and just make general conversation. I do the best I can to take care of myself so I can live as well as I can. It’s really all I can do.
ArleneNovember 2nd, 2015 at 9:43 AM
I’m so glad I found this site. I have a 46 yr old daughter who is possibly bi polar. She has been a handful since she was about 16. She had a diagnosis 12 years ago but decided it wasn’t true? when she was 30 I moved to a different state without her, it was the best thing I could have done. She was living on her own, and it gave me a ten year break which I needed because I’m back and in the thick of it again. She got pregnant and decided to keep the baby. I feel that this was more a manipulation than anything else. So I’m back living in the same state so I can help my grandchild. I have her every weekend for the past four years. And of course dealing with all my adult daughters drama. Some days I just cry and others I actually feel okay. After reading the stories on here I guess I don’t have it as bad as others. This really isn’t a real comfort and I feel for the other people on here. I never imagined having a child was going to create a life that was so very very painful. This is not what I wanted, I sometimes blame myself for her condition, although I know this can’t be. I thought old age was going to be easier, oh well.
shelNovember 2nd, 2015 at 10:34 AM
I feel like my life should be calming down but instead I’m working more to subsadise my son whom doesn’t want to take medication and is being penalised by the state because of it !!!.
I’m praying that despite him having no people skills and not wanting to work alongside anyone that he finds a job !! Which sounds very unlikely.
ChristinaNovember 9th, 2015 at 12:12 PM
My daughter is 30 years old and I am 61. She has been diagnosed with borderline personality disorder, conversion disorder with non-epileptic seizures, severe anxiety disorder, and for good measure, the Dr’s, threw in bi-polar disorder as well. The past 14 years have been a roller coaster of one crisis after another with her. My husband and I have tried distancing ourselves from her tornadic lifestyle by establishing boundaries, but she has always managed to circumvent them. She lives alone in a house that we pay for, cannot work due to her disability, and receives SSI and Medicare. That little bit of income she has (approx $600 per month) she manages to fritter away in about a week, leaving her demanding more from us for necessities like food and clothing. We are not well off, but have taken care of her needs in hopes she can live independently from us. But now she has managed to lose her license for dwi and evading police and we have become her source of transportation. The courts have also mandated that she continue her two-to-three times weekly therapy or risk being in contempt and going to jail. We live in a rural area and public transportation is not an option. So now I am having to drive her 1 1/2 hrs each way to therapy (my husband works full-time) and am being subjected to her crying, guilting, self-pitying, yelling, and other assorted emotional manipulations. I love my daughter with all my heart, but I am getting to the point where I resent the cards life has dealt us. I truly do not know how much longer I can endure the emotional and physical toll her illness has cost me. Just wanted to get this off my chest.
November 9th, 2015 at
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PatricaNovember 22nd, 2015 at 12:56 PM
Oh, we are kindred spirits, same age, same cluster of adult child symptoms–except I am forced to live with her because of my 4 year old granddaughter whom I adore!! ( what a hellish box I’m in). In addition to your issues she is outrageously messy and has no boundaries…I have nothing that is not used abused or stolen from me! I know I look like a door mat, but I don’t know what to do. No decent choices. The seizures are terrifying…but I’m no Buddha I am angry! And I don’t handel these seizures well as I feel like I’m being manipulated …I know I’m not I think but I just can’t Handel this madness well. I don’t like her and I frequently want to ring her neck. Nothing works. Pleading crying howling nothing. I have a therapist but it isn’t particularly helpful. I just would like a big hug once in awhile…I want my life back!!! I get it..and I am sorry for you and your drama. I don’t have the resources to move her out, but I sometimes think I wanna climb on a bus going anywhere but here…since it’s a fantasy I’ll take the 4 year old with me!!!
shelNovember 22nd, 2015 at 2:48 PM
Hi Patricia , I’ve just read your comment and I feel gutted for you … That feeling of running for the hills is Proberbly on the front of all of our minds !! But we all know that the guilt would be too heavy and we would all run back down again.
When I was growing up I never heard anything about people having mental health and now it seems to be everywhere .
I feel so down sometimes and then I read the comments on here and I feel that I’ve got off quite lightly . X
wendyNovember 9th, 2015 at 5:36 PM
Cristina…I am so sorry . What really helped me with “tools” i could apply was a 12 Step support group for
“friends and families” of folks who are abusing drugs/alochol….and the tools were helpful in coping w/my family member’s mental illness and character disorder.
wish you the best
DianeNovember 13th, 2015 at 11:23 AM
Kelley…I understand completely. My 26 year old has paranoia and holds similar beliefs, Her thinking is so disturbed that she has lost or quit job after job. She lives with me and like you I don;t have it in my heart to toss her out. She’s in somewhat of a good space now, but it never lasts long. She has seen many medical professionals, but doesn’t want medication. My heart goes out to all of us living with mentally disturbed adult children.
KayeNovember 14th, 2015 at 11:59 AM
Hi I have a 28 year old daughter with a mental illness she is stayi g with me at the moment .she was ok for a week and after that she she became abusive and controlling . She has fits of rage. She to will not take her medication . I have tried tough love changing lockks its a long story . At the end if the day she has nowhere to go .in Australia we dont have facilities for people with mental illness . I really believe we are a hidden society nobody knows what its like unless they go through this . Kaye
VickiNovember 13th, 2015 at 2:28 PM
Less stress as my 27year old son is in residential environment but still won’t take any help as he is convinced he has tapeworm in his brain and isdying- I need to get checked according to him, as I gave him undercooked pork to eat when he was young. The antipsychotics don’t seem to be working but at least he is detained under the Mental Health Act and the facility at Godden green, Sevenoaks seems better than where he as been before. He seems reluctant to get involved in any of their programmes a as he says he will die soon because of the tapeworm so that is stopping him from getting involved in any cognitive therapies to get him better.
shelNovember 13th, 2015 at 6:52 PM
Hi vicki , you and I seem to be the minority on here that come from England , I know of the godden green facility , my son was in Maidstone and dartford .
VickiDecember 11th, 2015 at 3:58 PM
I had a good meeting with the doctor who has got him yo agree to attend weekly psychologist meetings and I am seeing her on a one to one on the 21st of this month. The psychiatrist advises me not to get involved with any conversation involving tapeworm but that is virtually impossible because that is all my son wants to talk about. I spent less than 5 minutes with him the other day because of this. I have collected his post and there are loads of badly written hate mail notes put through his door which are very upsetting
shelDecember 12th, 2015 at 3:06 AM
Hi there , is your son writing these to himself ???.
Who ever else would do such a thing ? That’s awful.
Sending prayers x
VickiDecember 13th, 2015 at 1:00 AM
No he has been in hospital since August. They appear to be from neighbours. I have told the hospital when it gets to the stage of Section 17 leave I will not take him back to mine as it’s the same small town he has his flat in and he will immediately seek out theses so called friends again. Instead I will have to check into a hotel with him somewhere- none of the family would be willing to assist I’m afraid- it makes you feel so very isolated this disease
ZoeNovember 14th, 2015 at 1:48 PM
It is a gift to find this forum in times of despair. I am so sorry that so many of us struggle with sever mental illness in our families. I too have a son with smi living wit me. He is 29 and is mostly sweet young man and pleasure to be around. it took nearly 7 years of constant effort and not giving up for him to rich the insight about the necessity of medication. Slowly he is working through his emotional maturation and is far better off that I ever though he would be. I survived the worst I hope , he only can get better from now, under the condition I stay functional and cheerful. AT current I am worried about my 20 years old having no motivation and plans for future. It is hard to stay cheerful, being single mum, only provider and migrant in another country trying to get ahead. My traumatic life took toll on me. I am trying to keep strength the best I can and I so wish some of you live in Australia in Newcastle so we can meet and talk. Wishful thinking.
Stay strong , all of you, things do get better, really do, it is all in cycles.
DianeNovember 14th, 2015 at 2:40 PM
I agree with you about cycles. With my 27 year old it seems to follow this pattern of severe paranoia then less and then a period of calm for awhile before it begins again. Right now irbid calm and I am taking this time to restore my energy.
KelleyNovember 14th, 2015 at 3:45 PM
I’m wondering how you able to get through to him during those 7 years? My son also is very sweet and harmless, just will NOT consider seeing a dr or getting back in his medication. I’ve given up on trying to convince him he needs medication because I’ve learned he has to figure it out on his own, just wondering how I get him to realize it.
ZoeNovember 14th, 2015 at 7:58 PM
Few hospitalisations and court injections did the job. After few months he wad well enough to realise to stay on them. Was nor in hospital for 5 years now, finished some courses and trying to get job😃
I used all emotional strenght for rhis yourney do lacking energy for youngest
RoseNovember 27th, 2015 at 6:23 AM
My daughter found a friend that happened to see a psychologist and was willing to see her as well. Then the psychologist, who was a true blessing at the time, was helpful with diagnosis and information. However, obviously no medication through her. I have found there are so few Psychiatrists who know what they are doing. Its really sad.
shelDecember 10th, 2015 at 12:26 PM
I haven’t been able to talk him round to stay on meds .
I’ve decided to let it be as long he’s not dangerous to anyone or himself.
After all …. We don’t know if the meds are any good for them.
Mary JohnsonNovember 21st, 2015 at 8:17 PM
Thanks to all who have written. I am grateful for your words of encouragement to others as well as for your great personal courage. I am 80 years old and the mother of a 56 year old daughter who has been ill since her teens. I’m not sure of her current diagnosis because , of course, her doctors can’t discuss it with me and she only tells me what she wants me to know. But I know she has been diagnosed with bipolar disorder on two occasions when she was hospitalized over the last few years and she meets the description of someone with BPD almost perfectly. She refuses to take the drugs prescribed at the hospital but does take several other medications. My husband died 6 years ago. Through many years we supported each other in trying to help our daughter and endure her sudden mood changes, rages, accusations, inability to work or to function much of the time. Coping is harder now that I am on my own. She can’t get along with anyone for very long. I provide most of her financial needs. As I can’t live with her, I co-sighed for an apartment and pay her rent. I’ve also been paying some expensive dental bills and I’m in the process of buying her a car, which seemed to momentarily please her. She was severely stressed when her car became unfixable. She became ill and began picking fights with everyone. She is arguing and causing tension with the management of her apartment complex. She was forced to leave her last two homes because she couldn’t get along with the owners. Tonight, just as I thought things would begin to get better , she called to report a conspiracy among certain people to be rude to her and run her out of town. She said she plans to call the police to report this conspiracy, which includes people who manage her apartment. This is similar to what happened 2 years ago at Christmas. The Police came then, and because she was hysterical , belligerent, out of control, she was taken to the hospital and involuntarily committed. But she didn’t stay long and I can’t say it helped. She was not allowed to return to that apartment. Now I’m afraid her hostile remarks will cause her to lose her current home when the lease is up in two months. She won’t listen to my advice, and after her call tonight I was at wits end. I can’t move her again and she can’t live in my little condo. My money is running low. She has a brother who is a good son, but he tired of her rages and insults, and distanced himself in order to protect his family. Half the time I tell my self I can’t die because I don’t know what will happen when I’m gone; the other half I hope I don’t live too long.
JanNovember 26th, 2015 at 6:33 PM
Dear Mary, I relate to everything you said. My daughter does live with me because she has a son. When I let her move back I did not know her problems were so severe. I hate to come home! She’s depressed, cranky, unmotivated to do anything. We’ve been to a few doctors. She sees a psychiatrist for her meds, but nothing is better in three years now. She has isolated from everyone accept her son. She hates to leave the house. I’m about to lose my home from all the money spent for her insurance, food, clothes etc. I took think what would she do if something happened to me. Yet, I’m so tired of this depressing situation. I stay away as much as I can and that’s no life. I had a great Thanksgivng until I came home. Now, I’m in my room to get away from her negativity. I could go on forever! Jan
RoseNovember 27th, 2015 at 6:18 AM
I am so sorry for your situation. This makes me cry as it is how I feel at times. I keep thinking we are missing something. A thread that connects the dots. Something that could help them with these horrible feelings. Sending you prayers.
shelNovember 29th, 2015 at 10:46 PM
I know it’s wrong but I tricked my son into signing a bit of paper saying that I can speak on his behalf when he stopped taking his meds !! (With doctors permission ) I couldn’t stand to go through what I went through I. The begining trying to get him help but. Of being able to do anything without his permission .
So stupid .. This system turns us into liars and abused parents constantly trying to find help , it’s so un fair
KimmyDecember 10th, 2015 at 11:50 AM
Hello Shel, What type of papers did you have to sign. And do you have legal guardian over Adult son. Be blessed!
KimmyDecember 10th, 2015 at 12:02 PM
I agree! The system is so messed up. How can a person who mentally sick know what’s best for them. In their heads, they are not sick and don’t need to see a doctor. We has parents know when something isn’t right. Just like when they were babies. They couldn’t tell us what was wrong with them, so we took them to the doctors. We told the doctor their symptoms and the doctors treated them… This how it should be when their mentally ill. The system need to change for mental Illness.
shelDecember 10th, 2015 at 4:13 PM
Your right !! But how do we make it change ?? And it’s never gonna benefit our kids .
KimmyDecember 10th, 2015 at 5:21 PM
Shel, I wished I knew how we could change it!! Maybe a lot of prayer… Along with a letter to the White House!!!
shelDecember 11th, 2015 at 4:11 AM
Kimmy a letter to the white house wouldn’t do me any good … I live in England. Lol.
And we have the same problems here .
KimmyDecember 11th, 2015 at 2:51 PM
Shel, England? Maybe one day someone will ready all of our comments from the WH and feel our pain and change the laws on MI
shelDecember 10th, 2015 at 12:22 PM
Writing paper, I got him to sign it because I was dealing with one of his bills , and filled in the blanks later .
It gives you the right to make a desision on his behalf .
shelDecember 11th, 2015 at 4:14 AM
Kimmy .. Sadly much of what I’ve had to do to get my son Sectioned .. Cared for .. Etc etc has not always been the direct route sometimes I’ve had to be dis honest and if I hadn’t have been I’m positive that he would’ve been a mentally ill tramp living on a path way in London somewhere.
KimmyDecember 11th, 2015 at 2:55 PM
Shel, I understand! We all had to do that in order to get our love one the help they need. Be Blessed!
shelDecember 11th, 2015 at 4:03 PM
Kimmy I’m so pleased that you told me that !!!! , its such a relief .
I have problems with my son blaming me endlessly for his mental illness , Ive had to jump through so many hoops and lie about things that I should nt lie about .
And I suppose I didn’t realise that we have prob all in the same boat.
KimmyDecember 11th, 2015 at 8:02 PM
Everything is going to be ok! My son doesn’t blame us for his illness, but in order for me to get the help my son need. I’ve had to tell my son a WHITE LIE about why we were going to the doctor. My son was diagnosed with ADHD when he was 7 years old. Then Bipolar at the age of 14. In order for me to get him to the doctor for bipolar. I had to tell him we was going for other reasons(ADHD) so I completely understand how you had to lie in order to get your son some help. I think every parent has or will have to do that in order to help their kids, because a MI person doesn’t know what’s best for them. In their minds, They are not sick and they don’t need help. Be Blessed!
KimmyDecember 11th, 2015 at 8:14 PM
Since he’s been diagnosed with Schizophrenia. I’ve had to do 2 (10-13) He on his meds, and is stable, his delusions is under control for now, but I can’t get him to see a doctor for therapy! Hopefully, after this last 10-13. He will go to the doctor. If not, I will have to do what I have to do to get him to see the doctor! Be blessed!
ShelFebruary 6th, 2016 at 3:17 AM
I just wrote a letter saying that he gives me permission to talk on his behalf .
It is copied about six times , it has a date on it.
It’s just in case .
EvieDecember 14th, 2015 at 8:31 AM
Mary, you have carried such a burden for about 35 yrs longer than I have. I am 65 and feel the aging of the ordeal of despair involved with having a daughter with a severe mental illness. I hope you can find peace, my dear woman.
DianeNovember 22nd, 2015 at 3:13 PM
My heart goes out to you, Mary Johnson. I am almost 72 and feel much the same way as you about my 26 year old who also believes people are out to get her. It is so hard. I will keep you in my thoughts.
Margaret jonesNovember 23rd, 2015 at 3:44 AM
Hi everyone I couldn’t read all posts and am shocked of the amount, but just shows we are not alone. I am in Cairns Australia, my son is 36 and diagnosed at 31 with bipolar and borderline. He seemed ok for past coupla visits from melbourne wher i have paid his rent. Brought new girlfriend up, big break up, had mania from easing off meds, and doing ok, then she triggered a mania, taken to horrible mental hospital and seems now far worse and so angry towards me. Like others he holds me accountable for all his mistakes in life, can’t take any blame, abused via phone every 2nd day. Love him so much, wher did my son go ? Can’t say anymore I am so stressed by him anger towards me. I have actually alot to say but choked for words. Bless all you other suffering parents.
RoseNovember 27th, 2015 at 6:13 AM
I have the same issues with my daughter. I have been a single parent since she was 2. Her symptoms began around 14. I believe she would be so much better if she had never taken any medications. But that is water under the bridge. Now she is literally addicted to her meds which adds to her Anxiety disorder along with her BPD, OCD, PTSD, and the list goes on. This is a horrible existence for her. I wish I knew how to fix this for her.
I am constantly broke. She is verbally abusive to me much of the time. Blames me for all her problems. I have to work a high stress job to earn enough to get by. Her father has never been involved. Owes me 14 years of child support. His mother had many of the same problems. She committed suicide the year my daughter was born. I need guidance. Anything that would be helpful. I have serious stress and need to have a destress routine. But I can’t do it at home or work.
ShelFebruary 6th, 2016 at 3:14 AM
We all know how you feel MARGARET Jones , it’s simply not fair.
JonnaNovember 23rd, 2015 at 8:57 AM
Hi: Reading all of the posts has helped me tremendously to know I am not alone. I found the site after feeling such frustration and hopelessness, that I typed “I wish my son had never been born” into Google. God forgive me. He is 27, bpd2 and struggling with the side effects of the meds and the inability to find a job. He moved to south Florida to be with us about 4 months ago and has not been able to find work. We moved down in January. He is still receiving care from Wisconsin (our home state), does take his meds, and does work. I’m just at wit’s end because he can’t find anything here. And I think he should apply for SSI. Thank you all for helping me feel less alone. Jonna
DianeNovember 25th, 2015 at 4:26 AM
I am feeling in solidarity with all of you right now as my 27 year old has finally been diagnosed as schizophrenic and is on an antipsychotic med. It has taken almost a year for this diagnosis to come about after some extreme incidents, 2 ER visits and appointments with several medical professionals. Although I had suspected this diagnosis based on her behaviors, it still hit me hard because I know the burden she will have to bear for the rest of her life. Managing a mental illness is not easy and I hope she is up to the task. She’s a beautiful, smart and talented young woman. My own self care routine will be even more important now as I know I cannot fix her, only myself. Meditation, my crafts, walking, swimming and get togethers with friends and family all help me keep my head clear and spirits up. I have bad days like us all and sometimes it takes every fiber of my being to keep on….but this is the life we have and so we live it. Knowing there are others like me with adult children suffering from mental illness is a real comfort. Thank you all.
Kay H.November 29th, 2015 at 5:45 PM
I found this site as I searched for help when an adult child is in crisis but I am finding much more. I deeply appreciate the honesty I see, and I share the anguish that so many people feel when facing mental illness in a son or daughter. Reading the comments I feel a small moment of calm and that is unexpected. I am grateful. I know my journey is just beginning and I will need every source of strength.
This morning our daughter called to say she just found out that her brother, our only son, is in a deep depression. His ex-girlfriend contacted our daughter with this information. Our son is working and living in Prudhoe Bay, Alaska. He has worked for at least three straight months, long workdays, everyday. It is cold and dark, the sun won’t be up for nearly three months. It’s the worst possible setting for him right now. He is far away from family and friends. Apparently he did get five days off, which he spent in Anchorage. During that time he made references to suicide to his ex-girlfriend. I believe that he is in a deep crisis.
Immediately upon hearing all this his dad and I texted our son and I composed a heartfelt letter reaching out to him. He is working today and probably won’t read the email letter until tonight. I hope he will talk with us and we will continue to reach out to him. His dad worked on the oil pipeline for over thirty years and he knows the right medical person to contact. He will do that tomorrow but we’re hoping to connect with our son tonight. I just want to get our son out of there and down here with us in Oregon where we can get him professional help.
I don’t know what I can do next but worry and pray, even though I don’t have a strong belief in a intervening diety. There is more to the story but these are the basics of the crisis. Our son will turn forty-five on New Year’s Eve. I am terrified of losing him.
Thanks to anyone reading this who can hold Joshua and his family in her heart.
I’ll read more comments, am doing this in my phone right now. I feel a little less alone.
EvieDecember 13th, 2015 at 10:20 AM
Kay, I feel the pain you are experiencing. My daughter, Mary, did attempt suicide on Oct 19. Yet I have felt her absence in a type of death for the past 3 years. Since surfacing with schizophrenia she has become a totally different person. Our bond has melted in the fire of her ingoing dark delusions. I used to miss the old Mary. But now I have learned to love her the way she is despite the fact that she insists she is non-human and incapable of love. I feel I could not get through her being completely gone. She is so completely miserable that my need for her to keep living seems almost selfish. This entire experience of watching her suffer and my dread of her possibly killing herself has changed who I am. However, I have learned how important it is to keep seeking inner peace. Acceptance of her the way she is has provided some of that peace. The rest comes as I wait and calm my thoughts and choose hope. My faith in God has been under a transformation, so I know what you mean regarding that arena. Lately though I have felt the need to just start over with my faith which I think I need to have a healthy mind and outlook.
Mary, my youngest child and who used to be my best friend is simply day to day in how she survives. That applies to me as well. But I am grateful that I have the mental health to choose hope and peace. Every day.
My heart goes out to you, Kay— Evie.
GinaNovember 29th, 2015 at 7:07 PM
I think I need to provide a little background here first. My husband and I have been married for 36 years. We had two children in our twenties, a boy and a girl, now ages 34 and 32. We had another, a boy, in our mid forties who is now 11. We are 57 and 59 now. Moving forward, at age 21 our daughter was diagnosed with MS (she is not physically disable but cognitively disabled). She cannot hold a job. At age 27 she had a child with a 19 year boy. She temporarily lost custody of son to his father about a year ago for abusing medication and putting him in danger. She has since been diagnosed as being bipolar and I’m not an expert but I would also add narcissism and passive aggressive to her list mental illness. Issues with her are: she has the best room in the house above our 3 car garage, she gives us $400.00 a month for both her and her son out of the 2,000 she gets from SSDI, this includes everything and when I say everything I mean everything! In regards to everyday household chores she doesn’t lift a finger, she reads, or is on her cell phone all day. If I didn’t see to it that my grandson ate some healthy meals he’d be living on chipsahoy cookies and doretos. She expects everything and gives nothing and uses her MS and bipolar as excuses. She is a chronic liar. Tells people we are horrible, that we are mean and take her money (we occasionally make her pay for things like a gallon of milk or toilet paper). Not a bad thing when you’re getting 2 rooms in a eight room house, free food, free heat, free AC, free HD cable, person chef, personal maid for any mess made by her or her son that is not in their pig-stye bedrooms. Also free babysitting which I finally started saying no to, personal mechanic. I feel like my venting is getting out of hand and apologize. I have grown to hate her and If it wasn’t for my grandson I’d throw her out on her as%!!
shelNovember 29th, 2015 at 10:36 PM
I think we all know how you feel.
I’m lucky my son lives in a flat subsadised and I make a habit of walking away from him when he starts to get aggressive. , I don’t need to sit in a public place and be humiliated I’ve been a good a mum as I can be !!!
So I just say , it’s time I went home.
DianeDecember 3rd, 2015 at 6:53 PM
My 27 year old is having another psychotic episode tonight where she believes the government is out to get her. She came in from work very agitated and yelling about it all. I advised her to call the crisis line if she is having a crisis. Then she took off in her car for who knows where. I am sure I will be getting a call from the police sometime tonight saying they found her and took her to the ER. She was recently prescribed an antipsychotic, but I think it takes about 4 weeks to reach a therapeutic level and so her mind is still terrorizing her. It’s just awful that we, as parents, have to go through this…not knowing what will happen day to day. I am so glad I can come here and everyone will understand. The NAMI support meetings near me are in the evening which is hard for me to get to. I am so tired of living this way.
KimmyDecember 5th, 2015 at 11:03 AM
A little about myself. I’m married to a wonderful man of 14 years been together 23 years. We have 2 children. My daughter is 19 working and in college and My son who is MI.
Our son is ADHD and Biploar. He was diagnosed with bipolar when he was a teen. About a 6 months ago, He started to act strange. He started isolating himself from friends. He thinks everyone is doing him wrong or after him. We notice him laughing and talking to himself. He started talking about things that we knew wasn’t real. He thinks the neighbors across the street is flying airplanes over his head. He thinks they have his cell phone number(IPhone). He doesn’t have a cell phone, but he wants us to go across the street to get his number from them , so we can track his phone. We had to do a 10-13 on him in September. They sent him to pathway for 7 days, gave him a diagnosis of schizophrenia. They put him on 4 mg of Rispedone to take twice a day, 2mg at night and 2 Mg in morning. We was giving him his medication. After 3 weeks, We started to see a change in his behavior. He was sleeping at night. He was going place with us, but he was still having some of the delusions. About 3 weeks after his first hospital stay, He didn’t want to take his Meds. He said he wasn’t sick and he don’t need help. As a parent, I know he need to stay on his Meds because he don’t realize that he’s sick, so o started crushing it up putting it in orange juice. I did that until he gave out. He will not go to his treatment program nor the doctor. So he is non compliance with his treatment. He’s been with medication for 2 weeks now. On yesterday, we had to call the crisis center to our home to evaluate him. They did a 10-13 to have him sent to the hospital. I feel like I’m about to lose my mind! I need support and advice please.
shelDecember 5th, 2015 at 11:50 AM
Hi kimmy, my lad was diagnosed with schizophrenia nearly five years ago…
Similar stuff happened except he thought FBI were after him.
We quickly understood that he needed to b kept busy with volountary work where people understood him and it took a few years before we started telling people.
We’ve been on and off the meds for years .. We found Alanzapine to be the best anti psychotic for him.
He’s been off it for a few months now and we are very concerned about his behaviour but he’s said that under no circumstances must he go back on it , and we ( my ex .. Who’s brilliant ) decide we would honour his request and all was going well until he showed his violent streak yesterday .. We are now living on the edge.
But this time off the meds he’s been much better and we are going to try and get him to re – think his aggresive behaviour.
He does volountary three times per week .. The gym every night .. Psychologist once a week and lives alone because nobody can live with him.
My daughter plays an active part in his life .. He’s in and out of work regularly because every body who actually employs him trying to help him tells him what to do in a nasty way ?? V :( .
They don’t !! …
We’ve decided he’s not ready for work yet …
He’s thirty and both me and my ex have the feeling that we won’t ever be able to move onto a new life or relationship.
It’s bloody hard work .
I feel for you because you have a way to before u understand what is expected of you.
Over here in England we had early intervention before he was 25 which was amazing … Now he’s 30 and we’ve struggled alone for five years .
God only knows what is going to happen to him .
KimmyDecember 6th, 2015 at 10:43 AM
Shel, Thank you for responding back. I feel I need to talk with other parents who is going through what my husband and I are going through. I am very glad I came across this website. I’m very sorry that you are going through your trying time with your son. I pray that God will give you and your family strength to deal with your son. I know how you must be feeling. My son is in the hospital right now. My husband and I went out to dinner with friends on last night. This is something that we have done with our friends for over 20 years, but since we’ve been going through this with our son. I haven’t wanted to go anywhere or be around anyone. My husband wanted me to get out of the house. All I do is go to work and home. I was afraid to leave my son home because he was off of his medication and you never know when the relapse was going to happen. I felt guilty because my son is in the hospital, but we out with friends, but we really needed that. We are at the age where we are supposed to be traveling and have no worries because we have raised our children. We have a daughter who’s 19 working and in college. I really don’t know how to handle all of this. We were able to deal with the ADHD and BIPOLAR, but the SCHZO is all new to us.
EvieDecember 11th, 2015 at 9:10 AM
My heart goes oit to you, Kimmy. My 3O yr old dtr surfaced with sczo 3 yr ago. Recently she asked my permission to kill me. Her higher power delusion calls for her to be imprisoned for life to prevent thousands of deaths. The emotional pain involved with losing the dtr you used to know is unbelievable. I feel your pain along with mine…. God be with you, Evie
KimmyDecember 11th, 2015 at 2:46 PM
Hello Evie, I am sorry to hear that your daughter is dealing with this MI. Yes, It’s very heartbreaking. I pray that my son, your daughter and all of the love ones of the parents on this site continue to stay on their Meds and see the doctors. I know that if they do those things they can live a fulfilling life. I pray that God give all of us the strength to deal with our love ones. Be Blessed!
ShellDecember 6th, 2015 at 12:23 PM
It’s not fair kimmy , I’ve been thrown back into some kind of strange relationship with my ex husband because neither of us can move on…he ( my son) threw a wobbly in sainsburys the other day because of some gravy :( . I’m just glad I’m not dealing with all this alone.
You do need to talk to a psychologist because you shouldn’t feel guilty about living your life and I can tell that you are!!.
I actually started to live abroad when my son became ill and I ended up selling my apartment and coming home to live ….
Keep strong because while he’s in hospital he’s safe and it will give you time to try and enjoy your life.
ShellDecember 6th, 2015 at 12:28 PM
By the way …do your home work on the drugs that they give them.
Tbh I would rather keep my son off the drugs cos they have long term affects , but unfortunately in the beginning they need them.
KimmyDecember 7th, 2015 at 12:57 PM
Thank You for responding Shell,
Lately, I’ve been all in my feelings. I’m in denial because this is not the life I had imagined for our children. My son is the oldest! He is supposed to living his life to the fullest. He doesn’t have any kids. He is very nice until he Start having a episode, but we know that’s the illness that makes him that way. As I said before, I felt guilty because we went out to dinner with friends while he’s in the hospital, but it was much needed for me and my husband. Over the Thanksgiving holidays, My son didn’t want to go anywhere. We are a very close family and during the holidays, we go to my in laws and mom house. I didn’t go because my son didn’t want to go and I didn’t want to leave him home alone during the holidays. I most definitely have to find a local group to be apart of because this is one of the hardest things I’ve ever dealt with. I just need a clear peace of mind. These passed couple of days has given us a peace of mind because we know he’s safe in the hospital, but who wants their children in a mental hospital. Thanks for listening 😢
ShellDecember 7th, 2015 at 4:27 PM
Kimmy , my sons been ill for about five years maybe a little longer, it seems that nobody knows much about mental illness and that scitzophrenia doesn’t exist the same in every person.
My son doesn’t like loads of people … but tolerates them, he clams up and says nothing., which can be extremely embarrassing.
At the moment we’re on a merry go round of volountary work…he’s just leaving another place that he enjoys being to start somewhere else.
It’s so hard because he could do with a sympathetic employer.
KimmyDecember 5th, 2015 at 11:06 AM
Diane. I understand how you must be feeling because we are going through the same thing with our son. I’m here if you want to talk. We can help each other. Be Blessed!
KimmyDecember 16th, 2015 at 1:45 PM
Hello Everyone, I hope everyone is doing well. I need to give an update on my son and I need some advice. My son was just release from the hospital on last Tuesday. We have been having a hard time getting him to go to the doctor since the first hospital stay. Well, He started the Partial Hospital program on today. He said he’s not going back to the program because he’s not sick and he don’t need to see a doctor. We have heard the before several times. My husband and I are drained because we know he need to see his dr. What should we do? I know that once his medication runs out he will have a relapse and I will have to do another 10-13 on him. That’s what happen this the last time. Please! I need some advice! I am very strong, but sometimes i become weak when I can’t get him to see that he is sick.
December 16th, 2015 at
The GoodTherapy.org Team is not qualified to offer professional advice, but we encourage you to reach out. A therapist or counselor may be able to offer advice and offer support.
You can locate a list of mental health professionals in your area by entering your ZIP code here:
Please know that you are not alone. Help is available, and we wish you the best of luck in your search.
The GoodTherapy.org Team
shelDecember 16th, 2015 at 4:02 PM
Hi kimmy , have you tried talking to his doctor , try to get them to call him in for a check up or something .
And try and get him to sign something so u can take over his care ..
KimmyDecember 16th, 2015 at 4:50 PM
Yes, I’ve talked with his therapist and doctors on today… And I’ve signed a Advance Directive for Health Care.. I just really don’t know what to do from here on out… All I know to do is do a 10-13 on him for the 3rd time, but we are private people and don’t really want the polices in our yard all the time…. Just really don’t know what to do…. Thanks Shel for a quick response
shelDecember 18th, 2015 at 9:17 AM
Kimmy my ex felt the same way about the police bein called !!in the end we just put up with it .
But it’s got better.
KimmyDecember 18th, 2015 at 12:01 PM
Hello Shel, Yes, Iam learning to except that this will be our life until my son gets that he’s sick and have to take his Meds and see his doctor. How is you son doing Shel? Is he seeing a therapist? Is so, How did you get him to see that he’s sick and have to take his Meds and see a therapist.
Sherie hainesDecember 18th, 2015 at 12:48 PM
Hi kimmy , my story’s a bit different .
I couldnt get my extremely stubborn son to accept his illness and when his life became so bad and violent ….I had to lie to get him sectioned.
He was sectioned three times , the psychiatrist said it was schizophrenia .
It’s been going on for a very long time !! Different meds and always the same him wanting to come off of them, he left the care of the psychiatrist and went onto his G.P , he’s thirty now.
And he has managed to drive and live alone .
He has no people skills .
And he actually convinced the doctor to allow him to slowly come down off of his meds .
He’s decided it’s his human right to be able to say if he takes them or not.
We said we would back him 100% unless the violence starts again , and if it does he will have to go back on them.
Well .. He’s now levelled out , some days he’s impossible to be around and other days he’s fine.
He has no friends and doesn’t rub along easily with men.
But he’s still not taking them and has said he never will again.
And he’s not violent .
He sees a psychologist once per week and manages his own bills.
He does have to be subsidised by us a little because his money was cut when he stopped the meds.
He hasn’t got enough people skills to work properly but he does do volountary and boy can be work .. He’s a real grafter.
But he also likes to be in charge and it doesn’t work … So time will tell.
It’s not easy .. I had an awful day with him today , I was supposed to meet him in sainsburys and he turned up one and a half hours late and blamed me and then nit picked at me all the way through the lunch .
Telling me I needed a shower etc.
KimmyDecember 18th, 2015 at 5:28 PM
That is how our son is…. He has no people skills….. Have never really worked…. He doesn’t understand that he needs his medication and therapist…. He is Finiancally draining our savings….. He needs to be on SSI…. I haven’t had the energy to go help him apply for it because I don’t know what to do to even get it started….. He needs to volunteer on a job, but he want….. He was just diagnosed with it in September, so he needs his med right now…. God please be with us all! Thanks for your story Sherie and if you can tell me how I can get him started with SSI. I would greatly appreciate it, because he is 25 years old and has always depended on us financially. We have a daughter who’s in college and we have to help her too. She’s working, but we still have to help her…. Be blessed
KimmyDecember 18th, 2015 at 5:47 PM
Sherie, What is GP?
Sherie H.December 19th, 2015 at 11:14 AM
G.p is a doctor .. They changed the title to general practitioner .
sherie h.December 18th, 2015 at 7:14 PM
Hi kimmy , from what I remember we went to the job seeker place and they gave us a number and sat us on the phone to somebody who made An appointment for us to see them with my son and we applied and got some extra benefits for him .
It was bloody hard though because my son seems to be able to act completely normal when bein interviewed by someone …..but it won’t happen to u like that because your sons bound to mention what he thinks is happening to him .
You said previously that he talks about it a lot.
EvieDecember 16th, 2015 at 4:32 PM
Kimmy, all I know is that from my 3 year history with my 30 year old schizophrenic daughter, her belief that her delusions are real is stronger than my belief in myself. She has never once believed she has a psychosis. I have noticed a smugness and near arrogance associate with her personality. She has so much confidence it can be a manipulative power over me. It IS hard to stay strong. I have had to go to court and have her “probated” three different times to enforce a doctor driven plan of care. Each time this probate is allowed to lapse she refuses meds and becomes worse. It’s a vicious cycle. I just keep getting back in the ring.
KimmyDecember 16th, 2015 at 5:01 PM
Evie, Our son is the same way! He goes into the hospital . they keep him for 6-7 days. They Give him a prescription for Meds. He starts off taking them and go to see his doctor the first week after the hospital stay, then say he’s not going back because he’s not sick and he don’t need see a doctor…. This is so draining. This is just the beginning for us because he was just diagnosed in September of this year. :-( Lord please give all of us strength. Be Blessed!
Sherie hDecember 18th, 2015 at 2:56 PM
It must be the hardest thing in the world to accept that you have a mental illness with the stigma that is attached to it !!
I feel very very sorry for our kids because they struggle every minute of every day to become normal.
I could sit and cry for them all …. But I can’t start crying because I know that I won’t be able to stop !! I have years of trying to be the strong one and holding it all together.
If I crack then the whole thing will fall apart .
KimmyJanuary 4th, 2016 at 4:59 PM
My 27 year old son has a doctor appointment on tmw. He only have 2 days worth of medicine. This seem like an on going situation. In most of my post, I have explain that my son is on medication, but he want go to the doctor when it’s time to go for refills or to see a therapist, so he go without Meds and his delusions gets worse and we have to do a 10-13 on him every time this happens. This is so draining. My husband and I have raised both of our children. Our daughter who is in college and our son who’s sick with this MI! This is not the life that we had planned! I have good days and bad days. And this is a bad day because I know by next week we will have to do a 10-13 on him for non compliance… Jesus please be with us! Be bless!
KimmyJanuary 14th, 2016 at 12:36 PM
KimmyJanuary 16th, 2016 at 4:26 PM
This is an update on my son. He is going on 2 weeks without Meds. We see some of his symptoms resurfacing. Last night he was pacing and he said he didn’t care if he lived or die. This is a new one for us because he’s never talked like this before. On today, I got up and told him to put some clothes on we were going for a ride. My plan was to take him to a hospital to have him evaluated. I took him to the hospital in hopes that he would go in to get evaluated. He would not get out the car. I went into the ER and told them that my son is mentally ill and was talking about he didn’t care if he lived or die. They told me that they couldn’t force him come in to get evaluated, but I told them I think he’s suicidal. The nurse went to the car. She talked to him and ask questions but because he seem fine. They did nothing. This will be his 3rd time going into the hospital and I think he knows what to say and what not to say, so we left the hospital and I took him to a walk-in crisis center. I talked with a counselor and showed her papers where he been in the hospital twice. I told her that he was delusional and was saying he didn’t care if he live or die. I told her he wouldn’t get out the car, so she went to my car. She talked to him and she Asked him questions, but because he was not delusional and he didn’t tell her that he didn’t care if he live or die. She said she couldn’t force him to get help. This is crazy! The system is broken when it come to mentally ill Adults! She asked me how long has he been off of his Meds. I told her about a week. She told me to give him about 2 or 3 weeks and he will bad to he can’t control it even if he tried to. She said if I had guardianship then I could have him admitted. I already know that, but I don’t want to be responsible for him if he does something to himself. What should I do? I know I can do another 10-13 on him, but if the crisis center come to our home and he’s hiding his feeling or want talk about it. They will not take him to the hospital. I need some advice from my lovely parents.By the way, We live in GA. God be with all of us! Be blessed!
KimmyJanuary 29th, 2016 at 8:48 PM
I hope all is well with everyone!
May God bless all of us and our children! Be Blessed! 😘
DianeFebruary 5th, 2016 at 4:05 AM
Hello again. My granddaughter, 27, just told me she has stopped taking her medication for schizophrenia because she looked up the side effects online and didn’t like what she read. She has decided to try herbal supplements instead. I gently advised her to discuss all this with her psychiatrist. But, I doubt she will. I can see her slipping away again with the extreme paranoia returning. Thankfully I have my self care practice, friends and my hobbies which keep me centered most of the time. My heart is with all of us, both parents and adult children who are suffering.
ShelFebruary 5th, 2016 at 9:34 AM
Hi Diane , could you not get the doctor involved , my son wouldn’t stay on meds .. But he went to the gym every day and has things going on in his life , volountary work etc.
The doctor advised him to come off slowly , it took him a good part of a year to cut it down bit by bit , but he’s levelled out and seems to be managing , we have blips .. But it’s ok.
KimmyFebruary 5th, 2016 at 11:39 AM
Shel, I remember when you told us the story about the doctor winging your son off of his Meds. I remember saying my son needs his Meds because he was just diagnosed with schz and he was really really delusional. He has had 2 Hosiptal stay against his will. In Jan, he came off of his meds on his own and wouldn’t go back to the doctor. I almost lost my mind because I knew he was going to be delusional really bad again. He is still a little delusional, but not bad..We can’t get him to leave the house since he’s been off of meds, but it seems like he’s stable without them for now. We can’t get him to do any volunteer work nor find a part time job that’s not so stressful, so he can have a little money in his pockets. I can’t get him to go to a therapist. We can’t get a social worker for him because he want go to a doctor. He needs a social worker to help him with resources like coping skills, social skills and finance and housing so he can be independent. He depends on us a lot. His dad and I are supporting him as much as we can, but we have another child who’s in college and we have to provide for her too. She has a job and can provide for herself as for as food, but we have to pay for other things for her. I will say that since he’s been lifting weights and his music. He his stable, so my husband and I have backed off on him about taking his meds. Although, We know he needs them because he’s delusional, but he not that bad to have him sent to the ER like the last 2 times… He just need motivation. He don’t have any friends…. Be blessed!
DianeFebruary 5th, 2016 at 12:54 PM
Shel….I am not at all involved in her treatment. I have to remain neutral in order to have a life for myself. I would certainly act if her behavior was harmful or violent. She has very little insight about her illness, but does sometimes listen if I make a suggestion.
KimmyFebruary 5th, 2016 at 9:44 AM
My 27 years old son has stop taking his medication too. It’s going on 3 weeks since he last taken his Meds. It seems like his music and lifting his weights has him stable, but we have started to see him going down the hill again. God bless us and our adult children.
DianeFebruary 5th, 2016 at 12:56 PM
Thank you! I am not alone! I am hopeful things will continue to be somewhat stable with my granddaughter even though paranoia still is evident.
SusanDecember 7th, 2015 at 9:10 PM
I have a 20 year old who has severe depression and anxiety. I have dealt with it alone. His father won’t have anything to do with him. My son is aggressive and verbally abusive. He is in therapy and takes prozac. He also has cirrhosis of the liver and is on meds for that. He will need a transplant. I am a high school teacher. I am empty. I have no energy to help him. I am doing everything I can and I will do anything to help him. I have good good friends. All I want/can do is sit on my couch. I am so depressed and anxious. And very angry.
December 8th, 2015 at
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KimmyDecember 8th, 2015 at 4:27 PM
Susan, I understand how you must be feeling because we are going through the similar things with our son. My son was diagnosed with Sczo. As a mother, You don’t want to see your children going through anything that has to do with mental illness. I’ve been in denial for a long time. My husband(who is a great father and husband) and I are mentally drained. We can’t get our son to see that he needs help. He don’t want to go the the doc nor take Meds. He’s 24 so by law we can’t force him. He was just discharged from the hospital on today. He seem calm and is willing to take his Meds, but we have seen this before. He will take his Meds for a week or two then stop taking it. I hate that you have to go through this alone. I know how hard it is and it would be better if you had your husband there for support. Last week I was feeling like you, I didn’t want to go anywhere nor be around anyone, but because my son was in the hospital and we knew he was safe. We went out to dinner with our friends. I felt guilty by going knowing he was in the hospital, but Iam glad I did because the past two days I’ve had a peace of mind. I am here if you want to talk. We can help each other. Be Blessed!
VickiDecember 8th, 2015 at 2:24 PM
Your comment makes me feel so upset. It’s the same with me- I have done dinner for friends tonight to reciprocate really but it has taken so much effort. On the one hand I want to curl up and not get involved in the world but on the other I know I need my friends. My son went to court yesterday for an offence of pulling a knife on someone but it WA bizarre- he threw his phone on the ground, smashed it and then demanded the passer by give him his phone and pulled a knife. He pleaded with th judge to send him to prison but got a Section 37 (hospital order) as anticipated- I am in UK it’s a section under the Mental health Act. He’s back in hospital and. Guess for some time- he can’t move on because he believes he has tapeworm eating his brain and now amount of anti- psychotics are helping. Does anyone think hypnosis might help him….I am desperate X
shelDecember 9th, 2015 at 2:36 AM
Omg … I feel awful for you.
I don’t know where I would go with this one !!!
Please keep everyone informed on how you deal with this .
Please keep strong .
My prayers are with you
JonnaDecember 8th, 2015 at 9:00 PM
Hi all: my 27 year old son is bipolar 2. We have been soldier ing on together since he was in his early 20s though I will say his issues have been a lifelong evolution. He is battling depression now…its seasonal and brutal. I hate what this has taken from him…college, friends, milestones…the meds keep him from delusions and deep depression, but they are crippling.
ShellDecember 9th, 2015 at 10:43 AM
You’ve just mentioned something that I find really hard to cope with and that’s the friendlessness that our kids have to sometimes cope with.
I find that’s half the problem and trying to be a mum and a friend is almost impossible.
My son used to play me and my ex husband off against each other..but now we stick together on it.
I wish their were somewhere that they could go to socialise.
KimmyDecember 9th, 2015 at 12:38 PM
Shell, I agree with you! The need to have places for mentally ill person to go a socialize because my son don’t have any friends and he don’t go anywhere. He used to have friends but he stopped going around them because he thought that was against him. You mention that your son has been ill for about 5 years now. Is he on SSI? If so, what is the process. What do I have to do to get him some financial help. My husband and I are providing everything for him. We have been do that for a long time because he can’t hold a job down. We are having to go into our savings to provide copays when he go to the dr, food and clothing.
KimmyDecember 10th, 2015 at 4:47 PM
Jenna, I’m sorry to hear about your son illness and I’m glad that he’s on his Meds for delusions because that is what have helped our son. Most people may not believe in giving their love one medication, but it helps and works when they find the right medication for them. I pray that God give us all strength to deal with our love one. As you can see from this website, you are not alone! Be Blessed!
KerryDecember 9th, 2015 at 1:30 AM
Hi, in 2011 our son was admitted to our local mental ward at the hospital , with drug induced psychos and late diagnosed with schizophrenia. Since this diagnosis he was on antipsychotic medication , which was adminrstered by monthly injection, ( which seemed to numbify him) since June he stop going to see the doctors and therefore taking any meds. Our family is at wits end due to his behavioural change that’s getting worse on a daily basis. I am looking at trying him on some type of natural therapy that’s if I can get him to agree. We are in a desperate situation , can anyone out there please help us, as the only other alternative is to call the police and have him admitted even though he dose not show any violent attributes. We don’t want to go down that path(again) as he will hold it against us and last time the so called pharmaceutical solution seemed to alter both mental and physical behaviour . Once again we are desperate for help please.
KelleyDecember 9th, 2015 at 10:21 AM
My son was exactly the same. He’s been living with me for 6 months now, refused to to eave the house and get help. I called the police a handful of times, they always said, he’s not suicidal or homicidal so they wouldn’t take him to hospital. I was at my wits ends with his delusions. I spent an entire Saturday night calling every single hospital I could find. I finally found a hospital that would meet with me. I took police reports, all his insane writings, and they agreed to come out and evaluate him yest. He has now finally been pink slipped to a hospital today and I’m relieved I finally found some help. If I can give any advice, keep a journal of everything they do, anything they write, and anything they say. It truly was helpful getting my son help
KimmyDecember 9th, 2015 at 12:28 PM
Kelley, I’m happy that your son is finally receiving treatment. I totally agree with you on keeping a journal. This is what helped us on the second 10-13. We had videos and recordings of his behavior. And the delusions that he was having. My prayers are to ask God to give us all strength to deal with our trying time. Be blessed!
KimmyDecember 9th, 2015 at 11:14 AM
Omg Kerry, We are going through the same thing with our son who has been diagnosed with Szcho. Or son has been admitted twice against his will. The first time we did a 10-13 on him. They took him to hospital where he stayed for 7 days. They put him on Rispedal 2 mg. He was taking it twice aday. Once in the morning and once and night. He was doing very well on it he also was taking Bendryl to help him sleep. After 3 weeks of taking his medication, he said he didn’t want to take it that he wasn’t sick and that he don’t need help. He didn’t want to go to the doctor. We had to do another 10-13 on him through the crisis team. He was admitted for 7 days and was release on yesterday. He seem to be stable. You may want to try the pills instead of the injection on your son. We are having a hard time with getting him to the doctor. Kerry, I pray that things get better for you and your family. Everyone on this site are going through similar situation. My son was upset with us when we did the 2nd 10-13 on him, but he gotten over it because we explain to him that it was for his own good. How old is your son and what are his symptoms of Szcho? Be blessed!
KerryDecember 9th, 2015 at 10:49 PM
Hi Kimmy, my son is 23, he thinks someone is out to hurt him, he has withdrawn himself for friends and family, no concept of value money or property. I am constantly cleaning his place and washing his clothes. He not eating right, we try to get him to eat properly. He thoughts are over the place. Thank you for you kind words. We cannot believe there is so many people out there in the same position as us. I don’t understand way the mental health people can’t come and assess him at home. But that is the Australian system. It’s is so emotionally draining . Sometime we think want did we do wrong for this to happen to our beautiful boy. What he is missing out on, what we have missed out on, but there is so many of you out there in the same boat and you all understand how we feel and we understand how you all feel. But there just isn’t the help out there that we all need. The systems need to change so our loved one can try and lead a normal life. Our hearts go out to everyone of you. The stress is unbearable.
KimmyDecember 10th, 2015 at 11:41 AM
Kerry, We most definitely know how you are feeling. We have another child. She is 19 working and in college and is heathy. We aren’t perfect parents, but we have always made sure our children had everything they needed and most of their wants. And made sure they lived comfortably. Me as a mother, I question what did I do wrong. I think that is something most parents go through. The devil want us to question our parenting. My husband and I use to wonder why our son would not work because that’s all he has ever known us to do. and why was he acting the way he acts, but now we know it’s the disease. Up until last week, I’ve been very stress, in denial and feeling shameful. This site help me to know we aren’t the only ones that is going through this. This disease happen to most adults between the ages of 21-45…and nothing caused it…. And it has no cure, but our love one can live a fulfilling life with the right medication and therapy. I pray that God give us peace and strength during this trying time. Be Blessed Kerry!
GinetteDecember 9th, 2015 at 9:25 PM
I feel like i’m gona be sick.
Our son acted up,like every day:
Verbal,physical violence,the usual.
I was really desperate and helpless.
I had hope for a while to get confort,hope for a miracle as usual.
By surfing on the net for some kind of help,i found this site.
It hit me like a heart attack.
I knew ,we were not the only family living this hell, but..really..
It’s pathetic.We are so many families,friends;beeing hurted.
Here in canada,let say,our 29 years old son , had a big surgery or very expensive treatment, he would get the help needed fast and for almost free.
Same thing for a car accident.
All the costs for rehabilitation, transportation would be provided too.
Unfortunately, Mental health cares have very little budget.
Like many of you guys, our hearts and pockets are broken because of this hell.
Thank you guys to be there for us!
Very helpful site…
Just at time (needed it, a lot)☺
I red many parents comments and I was amazed how our routes in life are so similar.
The best feeling of all (we are not the only one)
Maybe more acceptable.
Let’s keep strong!
Please GOD, keep letting us feel Hope ….
Thank you! Thank you!
EvieDecember 13th, 2015 at 11:28 AM
Yes, Ginette, let us keep focused in getting and staying strong! If we fall apart, we will be of no help to ourselves, much less to our mentally ill child. My schizophrenic daughter lived with me for a year and a half. It did neither of us any good. She went off her meds, would shut herself up in her room, write criptic messages on the wall, and eat nothing but dog food. No bathing for an entire year. She ended up in the hospital and I had to tell the staff that she could not come back home. The hardest thing I ever did. I’ve NEVER been good at tough love. And so about a year ago she was placed in an adult foster home in our town. I visit her regularly. It is like the visitation you go to when someone has died. She is just a shell of the beautiful young woman she used to be. Although at least now she has to eat real food and bathe to prevent being appointed a guardian. My stress and ongoing knifing grief is still off the charts, but I think she is better off out of my home. I feel no guilt. Always suicidal, I worry about her doing that, and she did attempt to hang herself on Oct 19. But I think she would have SUCCEEDED had she still been living with me. To all of you who have posted your pain—I hurt with each and every one of you. And for those of you who have those precious grandchildren—I can see why the road you travel is much rougher than mine….. GOD HELP US ALL, Evie
joDecember 23rd, 2015 at 5:35 AM
I found this website today….I live in the UK. Reading everyone’s comments is like sitting among friends. The worry, guilt, anger,pain, hurt,frustration, stress, the list is never ending. I don’t have a life my adult son and his mental health consume my life and thoughts. I protect him daily but feel so trapped,to the point I think I would be better off not being here…not that I could ever consider anything so selfish because who would then care for my son x
December 23rd, 2015 at
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December 23rd, 2015 at
Jo….I so know those feelings. I have been there although my son is sectioned at the moment so the stress and anxiety has eased a little. It’s still the first thing I think about in the morning and last thing at night. It eats away at me in the night too and I sleep very poorly. I worry what the future holds for both of us but for now I am trying to concentrate on the present. I’m in the UK too x
KimmyDecember 23rd, 2015 at 5:39 PM
Hi Jo, I(we) feel your pain. This isn’t something I imagine my life to be at the age of 41. My husband and I feel so sad for our son. We have had to do (2) 10-13 on him. He’s stable now. He taking his medication, but he still say he don’t need any medication and he don’t need to go to the doctor. What is the MI that your son has and how is he doing? I pray the God give us the strength to make it through this hard time! May God bless you and your son! Merry Christmas! Be blessed!
KARENDecember 11th, 2015 at 6:17 PM
I want to thank all the parents who are voicing how they feel . I feel so guilty for the way I feel . I’m beginning to be depressed myself I just want to watch television and cry . My 26 year old daughter was in the hospital two times the last year exactly a year apart . She has psychosis . she is on meds .Sheis taking them and is back to work but is so angry with my daughter of 17 And myself. she atarrs arguing everyday throws things breaks doors . I have not returned to work In 3 months I’m afraid to leave her home with my teenager . I am having such a difficult time . I want to move her out but can’t afford it . My husband has a soft spot for her .. it is hard to be tuff . I resent that myself and my other daughter have to get help to deal with her . I know life is not fair .i just really am loosing my will .
DianeDecember 12th, 2015 at 3:57 AM
Karen….I understand wholeheartedly. I have a 27 year old living with me. I want to visit my sister in February, but am afraid to leave her here alone. Her extreme behaviors could get me evicted from my apartment. I try to live in the moment and cherish the good, but it does become harder and harder. I meditate daily which helps enormously as well as long walks, my craft projects, outings with friends and time alone when she is at work. Mental illness is so hard to understand. One moment she believes the government is stalking her and the next minute she feels someone is out to behead her and the birds outside her window are warning her. I don’t discuss these thoughts with her. I suggest these are things to talk over with her therapist She is taking an antipsychotic med, but may need something else. You are right life is not fair, but sometimes, it becomes almost unbearable. My heart is with all of us living with a mentally ill adult child.
KimmyDecember 12th, 2015 at 2:18 PM
“Dear God, I pray for (child’s name) as he/she deals with this (specific illness) so often. I know You are the Master Healer and that You also provide times that are symptom free for this dear lone. Please comfort and protect this dear Adult child during this hard time. Help them to know that they can come to You for the peace and health that only You can provide. Please be with the doctors as they continually study to find medicines and treatments that will comfort those that suffer from chronic illnesses. I leave this in Your precious hands oh God my Father. Amen”
KimmyDecember 12th, 2015 at 2:59 PM
Reach out to those who experience mental illness. Lift their burdens, calm their anxiety, and quiet their fears. Surround them with your healing presence that they may know that they are not alone. in the name of your Son, Jesus and the Holy Spirit, now and forever. AMEN.
KimmyDecember 12th, 2015 at 3:02 PM
A Prayer for Family Caregivers
Come to me, all you who labor and are burdened, and I will give you rest. Take my yoke upon you and learn from me, for I am meek and humble of heart; and you will find rest for your selves. For my yoke is easy, and my burden light.
HEALER OF SOULS AND COMFORTER OF THE WEARY, HELP TO LIGHTEN THE BURDEN OF FAMILIES WHO ARE CARING FOR THEIR SICK LOVED ONES.
Accompany them on their journey and ease their anxiety and fears. Surround them with the love and strength of others, so they may experience the healing presence of the communion of saints. In the name of your Son, Jesus and the Holy Spirit, now and forever
KimmyDecember 12th, 2015 at 3:04 PM
EvieDecember 16th, 2015 at 7:04 AM
Kimmy, Your faith is a strong one. Yet despite this, you are bound to have desperate moments and hours. I was awake last night feeling oppressed. But today is a new day where I can choose hope and lift all of us up, parents and children, and believe for God’s highest good for them. You will regroup and be stronger than ever. I believe in you big time!!
ElizabethDecember 13th, 2015 at 10:56 AM
I just googled – when should a parent let go and came across all of your comments. My son is 23 battling this horrible mental illness, last night hours on the phone threatening suicide – refuses to take medication, he has been hospitalized so many times,last year was court ordered, I have had to set boundaries and not allow him in my home but the loneliness and isolation he feels living alone are so unbearable for him. He thinks the government, the CIA the DEA are all after him, he won’t reach out for help and I have been told that the only way is to have him committed which I don’t have the emotional strenght to do.
GoodTherapy AdminDecember 13th, 2015 at 12:33 PM
If you would like to consult with a mental health professional, please feel free to return to our homepage, http://www.goodtherapy.org/, and enter your zip code into the search field to find therapists in your area.
The GoodTherapy.org Team
EvieDecember 13th, 2015 at 12:59 PM
Elizabeth, You have the strength to do it. It is there deep inside you. Reach deep inside for it. “Commitment” sounds worse than what it is. Let’s use the word, “HELP”. The help needed is beyond what your love can do. Keep loving but also do what needs done to enforce professional help. The person who is mentally ill sees no need for help and they just keep floundering. On and on. Do not worry that he will be angry at you or hold it against you. Do what needs done in the moment. Then take it one moment at a time…. I had a psych professional tell me that I will not always be here for my dtr. She needs to get herself enfolded into the care of the “system” despite its flaws. Because in all likelihood, she will need care beyond what I can provide for the rest of her life. I have been where you are. And I am still there. God help you and all of us, Evie
JackieDecember 14th, 2015 at 5:15 AM
I have a brick for a heart. I dealt with my ex for 10 years with drug induced psychosis and he wouldnt get help so took my 4 children and left. Then found out my son also had the same symptoms when he was 17. He is now 33 and is schizophrenic, takes any kind of drugs, has hep c, steals and lies to get his own way, i can no longer have him living with me. His father won’t help so i had to take steps for a restraining order to not only keep him away from me but to protect myself as i was thinking of killing him which scared me so much – why can’t they force him into rehab? He is now homeless and on the streets – i am scared for him – i cant even cry anymore. He is on his own and what will be will be.
EvieDecember 14th, 2015 at 11:38 AM
Jackie, You did what you had to do. Live in this moment. No looking back. No looking ahead. Seek and find peace, you dear woman.
KimmyDecember 14th, 2015 at 4:04 PM
Evie, You give very good encouraging words. I am the parent who is not taking it very well. I am under a lot of stress and pressure. Never in a million years, I would’ve thought my husband and I would be dealing with this MI from one of our children. I pray and try to keep the faith, but sometimes it gets very hard.. (Tears) Today is not a good day!
December 14th, 2015 at
Thank you for sharing. We are sorry to hear of the stress and pressure you are under. The GoodTherapy.org Team is not qualified to offer professional advice, but if you would like to speak to a therapist or counselor, you can locate one in your area by entering your ZIP code here:
Please know that help is available, and we wish you the best of luck in your search.
The GoodTherapy.org Team
JackieDecember 15th, 2015 at 1:43 PM
Thanks for your kind words Evie – i used to love everything now i just feel hard and no love inside my soul for anyone – i feel gutted, counselling hasn’t helped ease my pain i am broken. Sorry i’m not looking for sympathy just want to tell someone. Xx
December 15th, 2015 at
Thank you for sharing on the blog. We are sorry to hear you are feeling this way and that counseling has not seemed to relieve your pain. Please know you can always seek out a different therapist or counselor if you are not achieving the results you are working toward. You can use our site to search for a mental health professional in your area by entering your ZIP code here:
Help is available. Please know that you are not alone.
The GoodTherapy.org Team
JackieDecember 15th, 2015 at 4:43 PM
Thanks but you are America I am in Australia. We get 6 free counselling sessions only which i have used unfortunately i now have to pay but it is too expensive for me . I appreciate this chat room and reading through all the comments it is so unbelievable that we are all going through the same struggle in all countries. Surely someone somewhere has a solution to this huge problem.
EvieDecember 16th, 2015 at 6:12 AM
Jackie, this book might help: “The Mindful Path To Self-Compassion” by Christopher K. Germer, PhD. Parts of this book helped me to disentangle from strong emotion and suffering through body awareness where you avoid self judgement. You learn to soften into a painful emotion and then incline with tenderness toward your suffering….Pages 62 through 71 hold some of my favorite helping parts which explain HOW to do this. Actually, you have already started to begin a healing step by labeling what you feel.
JackieDecember 16th, 2015 at 1:55 PM
Thank you Evie i will get this book and i appreciate you taking the time to let me know.
EvieDecember 20th, 2015 at 11:20 AM
Jackie, I am so proud of you that you followed your instinct and good sense. In my opinion, and in concert with what I have been through with my daughter, your decision to call the police was a wise one. It is extremely difficult for us as mothers to follow such a necessary course of action. Keep breathing. Keep getting back in the ring. Of course we still love our ill and oppressed child. Yet love is not enough to “fix” them. I am absolutely sure of this. I am amazed at your inner strength. Breathe, breathe, breathe. Love and peace to you, Jacke. And to all of us. I feel all your hearts breaking. Mine is too.—–Grateful for all you dear people share, Evie
EvieDecember 15th, 2015 at 5:09 PM
Jackie, I see no hint of whining or negativity. What I am hearing from you is the aftermath of all the pain you have endured. You have been tapped out. I am choosing to hope that this empty state of yours might enable you to find peace as it fills your gutted out inner self. Let us admire and respect your honesty in the face of all this raw pain which has seared you through and through. I hurt with you. And I can even feel your deadness as I remember that feeling which really is like a non feeling. It singles you out, sets you apart, and it is the loneliest sadness there can be. No one gets it. No one seems to understand. You look around and you feel totally isolated in a black vacuum of grief…..Jackie, just try to choose hope. If you can, start there.
NaomiDecember 17th, 2015 at 11:18 PM
I’ve just found this organisation.
I am feeling very lonely and isolated, my 23 year old son is in hospital for the 3rd time, he refuses to see us and has denied consent to getting information about him from the staff at the hospital – this happened before – I’ve always known he has some problems but he dropped out of University in his 3rd year and was sectioned here in the uk- since then it’s been a huge challenge for myself and family-
December 18th, 2015 at
Hi I am in the UK too. My son is now sectioned and in hospital for about the 5th time. I am praying this time it helps him but he suffers from Persistent Delusional disorder, personality disorder, Aspergers, ADHD etc. He believes he has tapeworm eating away at his brain and so far the anti psychotics are not helping. Unlike you he does want to see me but all he wants to talk about is the tapeworm and that once he’s dead I will regret not believing him. He has had all the tests and 2 MRIs. The hospital are referring him to a neurosurgeon only to see if he can convince him otherwise. My visits to him are very short as the consultants have told me not to challenge his beliefs and try not to talk about it so when he starts I leave. It takes me 3 hours by car to visit and get home. It’s heartbreaking and all I want is for him to get some help but this belief is so ingrained it is impossible to get through to him. I am visiting him on Monday with his Christmas present and then going to stay with friends for the festive season. I can’t even face putting any decorations up this year. His father has been a total waste of space since he was a baby….he did visit him very occasionally when he was younger but only when I agreed to pay his train fare, which I did. It’s so hard to talk to anyone about his issues- I think they think he bought it on himself by smoking cannabis and legal highs but these things have just exacerbated his situation. He has had delusions since he was a young boy but they were never this intense. My only consolation is that at least he is safe……I hope things get better for you and your son.
shelDecember 18th, 2015 at 9:19 AM
Vicky are u in Kent ??
December 19th, 2015 at
Yes I am. I live in Deal
SherieDecember 21st, 2015 at 10:01 AM
Vicki I live on the outskirts of maidstone .. It’s not a million miles away is it ? I used to live in Hastings .
My son has been doing so well for a few months and now he seems to be slipping .
How mental health round your way ? Are they helpful or do they load it all into the police ? X
December 21st, 2015 at
No it’s not – I went to see my son today – I have had to get the police involved a few times and the ambulance service when he has overdosed or self harmed. It has been easier since he had a support worker and the Crisis Team involved. Anyway he will be in hospital for some time now. I had an extremely positive meeting with the Clinical Psychologist today- she really seems keen to make progress and try to get my son to engage. He was fairly calm today as well.
SherieDecember 22nd, 2015 at 1:53 AM
Hi vicki ,
I’m so glad that he seems fine for you at the moment.
Take my advice and put your feet up and turn your brain off …. While you can.
We really need these times of rest because if your anything like me my thoughts are with my son so much that it barely left me time to live a normal life .
Things do level out and it’s always a relief when they do.
I’m at the stage where we are feeding my son every day because his benefit doesnt stretch but we can cope with this between us.
I’m lucky because my ex plays an important role in his life.
KimmyDecember 18th, 2015 at 12:11 PM
Vicki, I am very sorry you and your family is going through this! We understand and all of us can say we feel your pain. It’s very hard to see a son/daughter go through the delusions. To them it’s real. We never bring up the delusions, but he always bring it up. So we just listen or changed the subject. The hospital don’t keep them long enough to get the treatment. My son been section 2 times. They evacuate him, put him on Meds and release him in 6 or 7 days. It’s very sad! Be blessed!
KimmyDecember 18th, 2015 at 5:56 PM
I’m sorry to here that your son is in the hospital for the 3rd time. What is his diagnoses? You might have to go to the court house to get Guardianship over him. I’m not sure how it works in uk though… Be blessed and we know your pain!!
Mary SDecember 19th, 2015 at 7:33 AM
Hi . I have found this site and hope that someone can advise what I should do. My daughter (aged 26) has been diagnosed with Multiple Sclerocis along with she has sever anxiety and panic attacks an has isolated herself completely. She has only left the house a few times in the past year and that was for doctors appointments. She wont take any medication and although she has been advised to speak to psychologist she does it via Skype and cancels appointments frequently. As she is over 18 none of her medical team will speak to me without her permission and she wont give it ! I feel that she is using the symptoms of her MS to avoid facing life and I almost feel she doesn’t want to get better. As then she would have to move forward and live her life albeit in a slightly different way. She spends her days Googling different symptoms and listening to lectures on you tube.
I am at a loss to know what to do and feel really guilty when I ocasionally go out. I have been told to use “tough love” but when I challenge her in any way it has a really negative result and her symptoms of dizziness, walking etc get worse. I haven’t taken a holiday for over 4 years and it is also effecting out marriage. From what I gather her neurologist also feels that most of her problems are stress and anxiety related and has told her to continue with her therapy. She only listens to the advice she wants to hear and if someone ( like her physio tells her some home truths) that’s the end of him and she finds someone else ! I really want to help but find her very manipulative but my heart is breaking watching her waste her life. She complains she feels alone and isolated but she wont even sit with us and watch television or have a meal together. What an earth can I do?
MominMaineDecember 24th, 2015 at 11:48 PM
Go to court and seek guardianship of her hence you make the decisions if you need to.
JackieDecember 19th, 2015 at 5:34 PM
God help me!!! My 33yr old homeless, schitzophrenic, drug induced, drunk son breached the restraining order for the 3rd time in 12 months last night. I didn’t engage with him as this makes the situation worse, so i rang the police who came and arrested him again. He went to court this morning and guess what? Another fine and let go. I have no doubt in my mind that we will go through the same scenario tonight and go through it all again. My “friends” say just take him back and show him lots of love. But you know what the more love i show him, he sees that as a sign of weakness and his behaviour gets worse and worse, Thankyou for letting me vent it is very cathartic. Stay strong people. The struggle is real.
GoodTherapy AdminDecember 19th, 2015 at 7:53 PM
Thank you for your comment, Jackie. We wanted to provide links to some resources that may be relevant to you here. We have more information about emotional abuse at http://www.goodtherapy.org/therapy-for-emotional-abuse.html and additional information about what to do in a crisis at http://www.goodtherapy.org/in-crisis.html
The GoodTherapy.org Team
DianeDecember 20th, 2015 at 5:06 AM
Jackie: I understand so well. We can love our children with all our heart but, it won’t help tame this disease. Mental illness is so complex and baffling to me. My heart goes out to you and your son. I wish a magic wand could take all our troubles away.
JackieDecember 20th, 2015 at 5:35 PM
Thanks Diane/Evie your understanding is of great value.
With the restraining order, which I had to go to Court and get, it is a life saver for my mental health but it was so hard to take that step. however it is the best thing I have done for myself. yes my son is homeless, but he is not dead which today is a good thing. sometimes I think he would be better off dead, however not today :) He is so clever, he knows he can’t come to my house as I always ring the police, so he has now been going to my mum’s house (she is 82) and has been sneaking in her garage to sleep at night time, knocking on the windows and doors all hours of the night, “gran I need to use the toilet” , “gran I need a shower”. my poor love, my mum tries to be strong and tell him to go away, but because he knows she gives in he keeps it up. We have been to court to try and get a restraining order for her as well, but they say he hasn’t done anything to warrant it. She is always crying because she is old and doesn’t understand that saying no is the only way he can hit rock bottom, she is scared that if she says no, and he goes and commits suicide, she will feel guilty and it would kill her. I stayed with her over this weekend, and we rang the police when he wouldn’t leave, they arrested him again and he went to court yesterday and guess what? same thing a fine and released on bail. I stayed at her house again last night, but he didn’t come back. I did however receive numerous reverse charges phone calls from 9pm to midnight. I finally answered and all he did was abuse me for ringing the police on him. I just hung up.
I really, really don’t know if I am doing the right thing or not. I have tried everything else but I haven’t tried being so tough before. I feel an anger inside me that if I release it, I don’t know what will happen, but for now I am in control for the first time in my life. I know none of the services can help, (I have been doing this for over 25 years, so am going on my gut instinct.) The only people I respect with my whole being is the Police, who have been so fantastic. They are the only ones who can see the issue for what it is and say to me that I am doing the right thing.
I believe my son (who I must tell you – I do love dearly – he is my oldest of 3 other sons) is a gentle soul who doesn’t deal with this world and all the bad things in it. He has given up on seeing the good in life.
I end this with the hope in my soul that this is the right thing but if it isn’t then I will look for something else to try. I won’t give up but will keep the restraining order in place to protect my son from me, hurting him.
Hope you all have a better day than yesterday, or a better day tomorrow.
SophieDecember 21st, 2015 at 6:36 PM
I am an adult who has adhd, severy anxiety, and depression. I live at home and am grateful for the help.
My mom has always had very little patience with me. Understandably she didn’t always know that what I was going through had a name and also thought maybe I was purposely being the way I was. Unfortunately I suffered upto all day lectures from from her and upto period of time (weeks) of her purposely ignorin me and being angry with anyone who wouldn’t ignore me with her, while simultaneously taking away every single privilege to tge point I would spend hours to weeks alone in my room literally losing my mind.
We have gotten past that. It has permenantly affected who I am, but I understand that she didn’t know how to handle me. I regret losing my mind and not seeking help for my adhd etc earlier.
She says she understands how I am one minute and then gets angry the next. I do admit I interrupt too much, and that I can’t always match thoughts and words properly which can frustrate a normal person. It may not look like it, but I really have been trying to change my interrupting and reactions, but thus so far,I haven’t reached success yet. I swear I don’t do it on purpose, but how is she able to love and understand others in similar situations, yet not even display 1% patience for me. I mo longer seek her love, affection, acceptenice. I’m grateful I have been given shelter, but it’s hard to want to live in this situation. My condition and her intolerance…. When people say there are worse fates than dying….this is it. I wish no harm to her but I need out I’m tired of her unconscious undermining ways. It is one of the biggest obstacles on my path to success. So please love your kids ….it’s a miserable existence, when the sole person chosen to bring you into this world treats you the way my mother treats me. I acknowledge my role in my situation.
SherieDecember 22nd, 2015 at 2:02 AM
Hi Sophie , I’ve just read this and I really feel for you.
Please seek professional help if you have those thoughts of ending it as they can help you and a good therapist may be able to help you a little more .
I’m sure your mother loves you but I feel that we find these things hard to accept in our perfect children.
Forgetting of course that we all have imperfections … All of us!!!
If your learning how to control your interruptions it’s great , my son seems to be doing the same thing .
Although we find him walking away quite a lot .. That’s how he deals with his thoughts .
Stay strong x
DianeDecember 23rd, 2015 at 12:37 PM
I kind of it a wall today….2 days before Christmas. My 27 year old told me this morning that she is not taking her anti psychotic med after I questioned her when she began talking about the birds trying to tell her something and people at the job she just left constantly staring at her and giving her some sort of hand sign. Sigh! I hate this so much. I went off and took a long walk, stopped to get a holiday milkshake and then came home in tears. Mental illness is so unpredictable and all encompassing. My heart is with all of us who struggle everyday with a mentally ill adult child.
SherieDecember 23rd, 2015 at 1:50 PM
Diane , I think we all feel like this !! The ups and downs are terrible.
I felt like this yesterday, my son seemingly levelled out about two weeks ago after coming off his meds with doctors permission , we thought he had made it and every now and again he makes no sense , it’s criminal .
He is making our lives hell with his constant demands for money , and then takes it like a thief and says the nastiest things, my ex husband thinks that it’s him ! And this is how he really is , when he wants something he is so nice, you forget how vile he can be.
He’s uncomfortable to be around because you never know when he’s going to raise his voice or just be horrid
reneeDecember 24th, 2015 at 6:21 PM
I totally understand…my adult son has spent most of his adult life in jail because he will not stay on his meds. He’s at my house now for Christmas. He was staying with another family member that ended in a argument and him being kicked out. He gets a shot once a month for schizophrenia but stopped his pills because he doesn’t like how they make him feel. I’m remarried now for 2 yrs . My husband has custody of his 8 yr. child and he can not live with us. My ex his “father” doesn’t work and lives with his sister. My son can’t stand his father. Needless to say I’m going crazy over all this. I guess I’ll just divorce my husband and care for my 27 yr. old son that will never make it on his own cause he chooses not to even try. This is a miserable situation when the mentally ill refuse to believe they have a problem. He gets violent too and does bizarre things.
KimmyDecember 24th, 2015 at 9:00 PM
Hi Renee, If your son is being taken to jail because he’s not taking his Meds, then you can asked the judge to have him admitted into a hospital for treatment and that he spend the remainder of his sentence in the hospital because he’s mentally ill and needs help. He don’t need to be in Jail. I pray that God give you and all of us strength to deal with our adult mentally ill children. Merry Christmas and Be Blessed!
KimmyDecember 24th, 2015 at 8:53 PM
HI Sherie, I am curious. Why would his doctor take him off of his meds? I know for my son the Meds help control his delusions. It helps him sleep at night and his mind is clear. When my son ran out of his Meds the beginning of Dec, His delusions became worst. I couldn’t get him to go to the doctor, so he can get his refill, so he was without his Meds for about 2 weeks… We had to do another 10:13 on him to take him to the hospital. He stayed for 7 days. They gave him a prescription. Now he’s on his Meds again and he’s stable. He may talk about the delusions a little, but it’s not bad anymore . We just listen to him and he’ll stop talking about it…. I pray that God give you and all of us strength to deal with our Adult MI children. Merry Christmas and Be Blessed!
Sherie H.December 25th, 2015 at 3:43 PM
Hi kimmy , my son like everyone else’s adult child on here hated taking meds , and he decided to come off of them about two years ago …it didn’t work .
So about 7 or 8 months ago he went to see his doctor and asked to come off of them but to do it slowly .. He also does the gym every night and volountary, he took himself off with the doctors permission and took them down to two mils really slowly, he’s levelled out and yes we do have problems , but not as bad as before.
We now think it’s behavioural problems , he has no people skills and No job.
But he’s definatly been left with some kind of depression , which he won’t take meds for .
We are taking it one day at a time .
Sherie H.December 26th, 2015 at 3:45 AM
Hi kimmy , just to add .. Weve had years of your son being psychotic but it does seem to have faded over time !! He’s not 100% at the moment but he’s better …
And we still get bad days but there’s an improvement
KimmyDecember 26th, 2015 at 3:01 PM
I am very happy that your son is doing better. God is so good! I pray that one day my son with be able to come off of his Meds. Right now, He can’t come off of his Meds because he was just diagnosed in September of this year. I pray that God gives you peace on those bad days and I pray that you have more good days than bad days! Be blessed!
Sherie h.December 27th, 2015 at 12:26 PM
I’ve been going through this for a long time and I felt that it was a ray of hope !! So many people tell me that he will be on them for life … But apart from the weird moments, it seems ok at the moment .
MominMaineDecember 24th, 2015 at 11:42 PM
I feel you all. I have had a horrible physical stomach ache the last few months, fear the phone ringing either it will be my ill son or the police telling me he has died. With no healthcare here he is rarely treated now he is an adult but wants so bad to get better. We were able to spend 5 long years of him moving back home to get him drug free, then last year he started life on his own again but the psyc issues now unmasked by lack of self medicating have become acute, he couldn’t care for himself, nobody will help him, now he is deathly ill from exposure, malnourishment, and has hepC which excacerbated the blood infection he now is in the hospital suffering from. He was near death when I drove two states to take him to an emergency room myself and has had surgery to remove some of the infection. They will just send him back to the street in weeks time so I am desperately trying to find him help. Christmas is just another day.
Sherie H.December 25th, 2015 at 11:52 AM
Oh I’m so sorry …
EvieJanuary 6th, 2016 at 7:43 AM
Mom in Maine– How are things going? I’ve had you on my mind.
Sandra CDecember 29th, 2015 at 4:03 PM
My darling girl had had trouble since small. Hyperactive snd impossible to distract. Then odd at school unable to get friendship rules so bsdly bullied, self harmed thro stress. Medicated so noises and eg feet wringling didnt drive her to lash out at sibling’s. Was intensely resentful of them. Went to college with emotional backup and even completed her masters. Came home to jobseek,
Grew anger at us for lack of work. Got part time low paid work in right area. Constantly needed our financial backup as learning problem relatds to money .found housesharing hard and lonely. Regularly rang to scold
Me for her problems,.then she stopped that and I was thrilled. At last she’s coping better. But behind it all she’s sttached herself yo extreme isolated religion. Finally the spot her strangenuess refuse her wish to join, so she decides to die now. Rings police accuses the group of child neglect and is asked to be admitted for psch help. She is now tiny as weight has melted off. But I her mom didnt spot it before cos I wanted my dream girl not the reality under my nose !, so terribly neglectful. So ashamed that I missed the flashing red lights.
SherieDecember 29th, 2015 at 4:19 PM
Please don’t feel bad about your daughter ! we all have similar stories .. .
These kids are driven by money and always blame us for they’d self destruction !! , and because we love them and are human and make mistakes we feel guilty …twice fold because their our children.
We can’t take the blame for the at their lives have turned out … It’s not our fault we are Human and can only do our best.
EvieDecember 29th, 2015 at 5:08 PM
Sanda C—In reading your post, I can relate to all you said. Please do your best to avoid becoming railroaded by ideas related to guilt or regret. We love our children and it is the human condition to experience denial. I did this for 3 years, and even now head that direction once in awhile. The ignoring of the red flags was your innermost self trying to protct you from pain. It’s okay. Protection is a good thing. It can slow us down in the acceptance process, but it is no reason to feel ANY guilt. Acceptance is key. But it is a long and rocky road to finally arrive there. Love and peace to you and to all of us as we each bump along.
Sherie hDecember 30th, 2015 at 5:48 AM
Your so right ! It’s taken me years to accept my son for how he is !!, it’s almost a relief now though.
lesleyDecember 24th, 2015 at 10:35 AM
Hi I am glad I found this sitell. My son has been diagnosed with mental health problems. He does not live with me because I cannot deal with his violent abusive behaviour. It is Christmas eve he is home alone at his dad’s who has gone away on holiday. I feel guilty that he is on his own but have already had abusive phone calls so I am hiding on my hallway floor so he thinks I am out if he comes round. I am scared of him but hate it that I can’t make him better. now I know I am not the only one out there with a son like mine.
Sherie H.December 24th, 2015 at 12:02 PM
My daughter and I have just spent Xmas eve walking on egg shells around my son , unfortunately before we reached the pub where we were all gonna have s nice lunch before Xmas tomoz me and my daughter had a row which made his mood so much worse !! I don’t know if anyone else finds this but my son always seems a little more controlled when he’s eaten a meal ???
JackieDecember 24th, 2015 at 1:51 PM
Dear Lesley aw honey you are not alone. I am also hiding in my own home on this Christmas morning – crying my eyes out. This is a time of joy, peace, love and happiness and i feel none of this. I feel like the worst mother in the world as i have a restraining order and i ring the police if my son rings or comes to my house and they arrest him for breaching it. I feel so sad that i have to do this but there is nothing i can do to help him. What we are all going through is so heart wrenching it tears out your heart. Please know you are not alone today. I am alone but will chat to you if you want. We are good mums doing the hard yards 💐💐💖💐 when i hide from him i build a cubby house on th floor with pillows and blankets grab a fluffy teddy bear and read a book or listen to soft music and hug that bear.
December 25th, 2015 at
Hi Jackie thank you for your support yesterday. Today have been at my daughters he does not know where she lives so am safe. Just constant ringing on my phone and my daughter and she made me strong by refusing to answer it. I know there will be a fall when I am back at home. Done the same as you last night quilts on the floor with a book until I thought it safe to get up. Take care
EvieDecember 24th, 2015 at 3:10 PM
My dear Lesley, my heart goes out to you. Please know that guilt is not an emotion you need to feel and I lovingly ask you to please shake it off. I am visiting with my schizophtenic daughter at this present moment. I am grateful for this adult foster home. I read accounts of those parents who have their mentally ill child with them in the home and I recall the pain of that setup. I still experience pain, but a different type that includes no guilt that my daughter lives where I don’t. She is now free from the temptation to abuse and manipulate me. I used to enable her to rip my heart out. Now my heart is breaking yet able to beat with more love for her, this new young woman who is so hearbreakingly different than before her illness surfaced. I can love and support her from a position that is not under her thumb. That thumb was killing my spirit and who I was as a person. All my friends whom I have met through this site, I reach out to you with hope. May we all choose hope daily as we courageously attempt to look up instead of down. And as we courageoisly keep trying to find new solutions instead of staying under those damaged and damaging thumbs.
KimmyDecember 24th, 2015 at 8:26 PM
Hi Lesley, My heart goes out to you and the other parents who has an Adult child who’s abusive and violent. I can’t say that I know how y’all feel with that kind of abuse because my 24 year old Sczo son is not abusive nor violent, but I can say I know how you feel when dealing with a mentally ill child who doesn’t want to seek help. My son is on Meds right now and he’s stable, but we(my husband) had a hard time trying to get him to go to our family house on tonight for our Christmas Eve family gathering that we have done since he was born. For Thanksgiving he didn’t want to go anywhere, so I stayed at home with him while my husband and daughter went to the family Thanksgiving dinner. I didn’t want to stay at home on tonight, so we went to our family house without him. I felt guilt for leaving him home, but I just didnt want to stay home on this holiday. My son was just diagnosed in September of this year, so I’m still taking it very hard. I didn’t have a good time. All I can do was think about him….. I know it’s not good to question God, but sometime I wonder why my husband and I have to go through this…. I pray that God give you peace and I pray that God take the abusive and violent side away from your son. I pray that God give all of us strength to deal with our MI children! Merry Christmas and Be Bless!
Jim RDecember 24th, 2015 at 8:19 PM
I thought I would give an update in regards to my son’s mental illness. 2 months ago we had a confrontation which I deemed to escalate if I didn’t call for backup. My son who went 4 years ago went into jail for 2.5 years for assault must have had a breakdown in jail which we noticed and told the board of pardons that really didn’t do anything. After being thrown out a 3 story building and surviving we decided to have our son life with us. So that’s the back story. As 2 years went by we noticed crazy talk as I called it. He was hearing things, seeing things, wanted his 5.2 billion dollars that government was holding for him and the list went on. I begged him multiple times to let me take him to be evaluated but he declined. He said he even went once and they gave him aspirin for his headache. So after talking with his APP officer, who said that they could not force him to have a mental health evaluation but that once I saw the most opportune time to call law enforcement and they would start a pink slip to force mental health evaluation. So I called and they arrested him. Problem was the cops were more interested in charging him for assault and for 1.5 month he never got an evaluation. So I called the prison as that’s were he went back too and found the personnel there very helpful and yet said they were slow moving with 1 physiologist fir 6000 inmates. Well at the 2 month mark he got the eval and it was spot on and they gave him meds. The assault charges were dropped but the board is finally getting the data to see if and how he is doing. Now my sons letters home is as he was 5 years ago. Loving, apologetic, and that he should have listened to my pleas. But he has been finally diagnosed and also receiving meds and dental care.
My son was diagnosis was read to me today. He is not violent, nor aggressive, or angered. He has no desire but to help others the diagnosis goes. But he is highly delusional.
My son has Paraphrenic Schizophrenia and is on the drug Risperidone that takes some time but that he is given daily. He is also on penicillin for is infected tooth and sees the dentist again next week.
So hopefully the board of pardons will release him when he is ready. Now this could all have been avoided but that’s for another conversation.
This country is in a mental health crises and as wealthy as it is, priorities are off base. I can’t tell you how happy and how sad I am but have hope for brighter day. Mental illness is real. It’s genetic and self imposed. It’s real. Nobody really has the answers either. So battle on and fight for your loved ones to get the help
wendyDecember 24th, 2015 at 9:22 PM
Thank you for all the postings. It brings a measure of peace to my wounded heart….I do not have a relationship with my 40 year old son….tried last year but it always deteriorates….I have posted before so I will not repeat my story…I find the even the thought I having to interact with my son brings on a “panic” attack….I was so traumatized by my history with him …from age 14-35…unrelenting stress and crisis…..I have found peace and serenity….and I fiercely
protect myself….there are times when I experience the grief…ie “my heart is made of glass and shatters”…but then I access my inner strength and carry on…..I know I did the best I could do as a mother…and my best was all I could do
wishing all of you a more peaceful New Year
EvieDecember 25th, 2015 at 2:32 PM
Wendy, thank you for sharing. I know what you mean about accessing inner peace to survive. When I find my peace slipping, I stop in my tracks till I get it back. I can’t always explain how I access that inner peace. I guess I just keep going deeper till with God’s help I find it. I have found through trial and error that without peace I am incapable of anything good.
MominMaineDecember 24th, 2015 at 11:34 PM
My adult son has had mental illness since a toddler coupled with drug abuse trying to treat himself. He recently was admitted to a local medical hospital, now out of mental health care and was near death from a bacterial infection. I’m exhausted trying to find him psyc care while there, and his stepfather tonight threatened to leave after 15 years if I don’t forsake my son. I will never give up on my child, he didn’t ask for this.
reneeDecember 25th, 2015 at 6:11 PM
I’m exhausted of this mentally and physically. When do we finally say this is enough? If your adult child isn’t willing to stay on their meds?
KimmyDecember 26th, 2015 at 6:19 AM
Hi Renee, I know you are mentally and physically tired, but this is what my husband and I did when our son wouldn’t go to the doctor and he ran out of meds for 2 weeks. We called the crisis center and they came out to the house to eveluate him and they did a 10-13 to take him back to the hospital. May God bring peace to all of us! Be Blessed!
reneeDecember 26th, 2015 at 4:52 PM
I’m going to seek counseling for my self on how to deal with this or I’m going to lose it. I’ve dealt with this for 7 yrs now. My son in and out of jail and mental hospitals. Here in the good ol USA when your doing good on your meds your considered competent. I tried to get my son in a group home while he was inpatient and guess what.. the state appointed him a lawyer to help with his rights!!! Which is total crap. I’m remarried now for 2 yrs and I can’t allow my stepchild to be around this. My son gets violent. When I was real father we had to call police multiple times. His father has mental illness his side of the family. Plus my son loves marijuana! I believe his is genetics/drug induced. I love my son and worry about him. I put him in a hotel for 1 week today. He gets ssi monthly. Trying to find him somewhere to rent. This isn’t about me it’s about my son but I’m really ready top move away from this mess so no one can find me.
KelleyDecember 27th, 2015 at 2:48 AM
I did the exact same thing. Crisis unit came out, and Took my son to hospital. He was just released on his meds, and although he no longer has the delusions, he seems like a walking zombie. Not sure which is better. At least now he’s actually wanting to go back to work and get back on his feet. Thank god for the crisis unit.
Sherie h.December 27th, 2015 at 12:22 PM
But is he able to work on his medication !! ? My son used to sleep so much !!.
We’re still having weird days with him but it’s jogging along .
I’m just hoping that he manages to stay off the meds , it’s like walking on egg shells though .
KelleyDecember 29th, 2015 at 6:26 AM
Not sure if he can work again, also discussing disability. He does need to get out and do something though. He is constantly pacing from the side effects of his meds
EvieDecember 25th, 2015 at 6:14 AM
Merry Christmas, friends. Although bittersweet, may we all keep each other going. We can get through the grief we feel about our children. As we feel it, we must not allow it to consume us. We will continue to help each other back up after a fall.
KimmyDecember 25th, 2015 at 11:03 AM
Merry Christmas Evie, I just love reading your post!! I pray that God give all of us strength on this Christmas Day and many days after this day!! Be blessed!!!
EvieDecember 27th, 2015 at 4:52 AM
Thank you, Kimmy. Your faith is a shining star for me.
KimmyDecember 25th, 2015 at 11:05 AM
Merry Christmas Everyone!!! I pray that God give all of us strength on this Christmas Day and many days after this day!! Be blessed!!!
Gail R.December 26th, 2015 at 2:24 AM
I live in South Africa, I cannot find a support group in this country. My daughter has schizophrenia and refuses to take her meds. She recently attacked me violently, then left home. She refuses to speak to me know. I am very worried about her, and it is effecting my own health. Please help.
EvieDecember 26th, 2015 at 1:22 PM
Gail, I honestly do feel your pain. I am not beside you in South Afica, but in a way I AM at your side. Know that you are supported by all of us. In varying degrees and with a few alterations of detail and description, we have been where you are. Actually we are still there. Choose to calm yourself and take care of youself. Breathe in and out and focus on that breathing. Soften into the painful emotions you feel, allow them to be there, and then be open to love and compassion for you in your pain,even if you seem to be the only one sending it to you. Yet we all are. This all may sound trite and inadequate. And it may fall short of what you need. But I do reach out to you and trust you might feel comforted and supported.
Gail R.December 26th, 2015 at 11:14 PM
Thank you so much for your reply. I just don’t know how to cope.mi am scared for myself and my daughter. I wish I could get her the help she needs. I also wish I could get her to take her meds.
How do I get through to her that she is ill. She has not accepted that.
KimmyDecember 27th, 2015 at 1:06 PM
Hello Gail, I am very sorry that you are having that same problem like the rest of us. It’s very hard to get a mentally ill adult person to take their Meds and go to the doctor. To them, they are not sick and they don’t need to seek help. My 24 year old son is on his Meds, but we are having a hard time getting him to go see a therapist and Psychiatrist When he ran out of his Meds in the beginning of Dec, We had to call the crisis team on him because he was having really bad delusions. He not violent. The reason he ran out of his Meds is because he hasn’t went to see a Psychiatrist to get his refills. To answer your question, You might have to do a section on her every time until it gets better. You are not alone… We feel your pain! Be blessed and stay strong my sister!
EvieDecember 27th, 2015 at 1:39 PM
My dear hurting Gail—As mothers we feel such a pull to care for our children, to give loving advice as needed, to bear their burdens, to fix their injuries. From that first skinned knee to the Junior High peer pressure when they were made to feel inferior. But this time we cannot fix them, nor can we get them to see that they have an illness. If your daughter were to be convinced of that, chances are she wouldn’t have much of an illness. This type of illness is such that a hallmark symptom is their finatic BELIEF in their delusions. You may not yet see the truth in what I want to tell you: It is not your responsibility to convince her of medication need or of her illness. And you cannot fix her. All you can do is support her with your love and know that hopefully the professionals will figure out a plan of care. With each incident that comes up, she will get closer to that occurring. Sometimes it even requires court action. It’s like a jigsaw puzzle, one crooked piece at a time. Choose hope and just keep putting one foot in front of the other.
DianeDecember 28th, 2015 at 5:03 AM
Evie…your words are so true. The image of the jigsaw puzzle resonates. The human mind can be a wonderful or terrible thing. Figuring out how to put the pieces together is so baffling. My 27 year old is constantly telling me she knows the difference between what is real and what isn’t, yet her paranoid beliefs are very real to her. Thank you for your words. They lift me up today.
EvieDecember 28th, 2015 at 11:21 AM
Diane, I feel such a bond and fellowship with all of us who struggle as our hearts continue to ache over our oppressed children. Your words have lifted me as well. I am grateful to you. Any moment that holds hope is such a blessing!…. And sometimes our needed hope is just one where we can simply manage to get through this ongoing struggle one moment at a time.
EvieDecember 29th, 2015 at 7:32 AM
Four “C’s” to remember. We didn’t cause it, we can’t change it, we can’t cure it, and we can’t control it. —- Love and peace to you all.
KimmyDecember 29th, 2015 at 10:49 AM
Thank you Evie!! Be Blessed!
reneeDecember 29th, 2015 at 10:15 PM
I try to remember the 4 “c”s but it’s hard. My 27 yr old is in a hotel that I put him in this week. He is once again non compliant with his meds. I work full time and can not baby sit him. I’m In the medical field and have patients with schizophrenia and they take their meds. I know everyone is different but once again when he was released from the hospital and jail he promised to stay on his meds. He went to jail because of not taking his medication. He would have had better judgment had he been on them. Long story short…I said before that I’m remarried now 2 yrs. My son can’t live here. He was staying with a family member that resulted in him being kicked out due to a argument. Okay here we go this is how it always starts. He gets put out every where he goes then has no where to stay. He gets a shot once a month for his MI. He was also taking rx oral meds daily that he stopped taking. He gets ssi monthly. I told him today please go to your doctor office they will help you fill out applications for housing. He catches the city bus to get around. He didn’t go. I’m worried about him so much and feel like a horrible person that he can’t stay with me. Now remember his father and I were married and my son did live with us. This has been going on since age 18. He’s also lived with his grandparents several times. I’m at the end of my road. All I can do is pray. I prayed to God that if I need to leave my husband and just take care of my son for the rest of his and my life please let me know. Then after I’m dead I have no clue who will take care of him. Another problem is his marijuana abuse. It’s a everyday thing for him which makes his illness worse.
December 30th, 2015 at
Thank you for sharing. The GoodTherapy.org Team is not qualified to offer professional advice, but we encourage you to reach out. When facing stressful or challenging situations, it can often help to talk to someone. You can find a list of therapists or counselors in your area by entering your ZIP code here:
Please know you are not alone. Help is available, and we wish you the best of luck in your search.
The GoodTherapy.org Team
EvieDecember 30th, 2015 at 10:18 AM
Renee, I feel your wonderful selfless mother vibes. You are a good person and that is an understatement. You have suffered and you are willing to keep suffering for the sake of your son. Even if you decide that you must not take him into your home, you will suffer our shared grief. HOWEVER, if he lives with you and you give so much that you become known world wide as a super saint, you will still be unable to cure him or change him or control him. I have been exactly where you are. The worst part of it is that there seems to be no solution. It seems that the problem revolves around in crazy unending circles. The reason you are tempted to save him and sacrifice all else in your life is that you think it is the answer. You cannot save him, honey. Oh that I wish it were that easy. A mother usually has little problem with laying down her life for her child. But it won’t change the road he’s on. It is his journey regardless of how ill he may be. When we step in and try to take over the reins,then we stand in the way of our child figuring it out. What the next step is. Even if they take a wrong step. It has to be theirs. Am I making any sense? I would never presume to tell you what to do. Yet I feel compelled to share what I learned the hard way. Also if the psychological health care system where you live finds a way to intervene in his care, that would be a good thing. I have found in this state (Michigan) that the more I do, the less they do. I am 65 yrs old and will not be here forever. The “system” has to get to know my daughter and how best to intervene when she is a danger to herself or others. If this applies to you where you live, then this truth might also apply in showing you not so much what to do but what not to do.
reneeDecember 30th, 2015 at 4:06 PM
Evie you are totally right and I know and think what your saying the majority of the time. He told me today to just leave him alone and stay out of his life when I asked him to let me take him to the hospital. I know he doesn’t mean it. I believe its MI that made him say that. I’m worried that I’m going to bury my son before I die. Every time he is out of the hospital/jail he goes off his meds. My mother, his grandma and me are not speaking because she thinks Ishould just lay down everything and take care of him. I can not do this and live a healthy life. I had to finally tell her when do i get to live my life?? His sisters both agree with me and lived with it and they know the never ending cycle. Thank you
EvieDecember 31st, 2015 at 6:24 AM
Renee, Sending you love and compassion. I believe in you. You will know what to do. Just follow your innermost voice of instinct. There is really no right or wrong. I admire your sincere and true mother’s heart.
Teri T.W.January 2nd, 2016 at 3:56 AM
Oh my gosh Evie u are so right I am like Renee I want to help my son too and feel I’m all on my own but really need to at least get him medication to take where he knows it will help him, I am going to ring for some help I hope this is a new start for me and him as we say we love him and that’s all we know so our love which is natural is to support him I’m 50 and worry for him wen we pass on xxxxxxxxx please keep in contact although I live in a little country New Zealand I know mental illness is world wide no matter where u live what colour you are what you look like we all go through the battles with a child with a mental illness I’m sure you’s live on other side of the world but through technology it’s like u live down the road I wish I could come to you now and just talk a while thank you for this page xxxxxxx Happy new year
EvieJanuary 2nd, 2016 at 7:11 PM
Teri T.W.— I am honored to meet you and be a part of our support for each other. We will all get through this. One moment, one day, one New Year at a time. Love and peace, Evie.
JsmomJanuary 3rd, 2016 at 8:40 PM
Thank you…..your words…..I need them to haunt me. I’ll being seeing my son this week…another attempt at helping him.
SundayDecember 30th, 2015 at 2:32 PM
I’m so sorry Renee, it does feel good knowing I’m not alone though. Thank you for sharing. I shared my story also
SundayDecember 30th, 2015 at 2:28 PM
Give Me Strength!
It’s been tough to say the least. I believe my 23 yr old daughter has a mental illness. Her behavior is like she is on drugs but having been there roughly at same age and knowing Hayli attitude going through her teenage years. This is no different. I don’t believe she is on drugs but addictive personality disorder manic depressive bipolar suicidal. She recently was put in a psych ward (not very good one) for posting on fb she wanted to die. Which at the time had cps case open thankfully Kaiya was with me at the time. Well the case closed but her poor decision making caused them to reopen another case with her poor choice in friends well her friend had taken Kaiya in car and pulled over she was drunk. Hayli said she was asleep and wasn’t aware Lauren had taken her. CPS placed Kaiya with me now. I have her for a year. But with this happening has sent Hayli in a downward spiral. I feel I’m either going to get a knock on the door telling me she is dead. Its a horrible feeling. She won’t get help. She was evicted from her apartment she can not come here because she is not safe for Kaiya, orders of cps. I feel helpless because she is an adult I can’t put her in hospital.. Everyday she is calling haunting me with her DRAMA. yesterday she was supposed to visit Kaiya but instead she chose to argue fight threaten to kill herself I was told she she is cutting herself by her Boyfriend whom she was arguing with because he wanted to break up with her. All day the calls and texts went on for me till 3pm. Then nothing… I texted her at 730 and she said she was fine they were at his parents eating. And she wouldn’t let me put her away.
Its rediclous it’s heartbreaking because I truly feel I’m going to get a knock on the door real soon. Terrifying when you can’t help your daughter. And at same time you are responsible for raising her baby. Looking how her life going I’m so afraid and have to wonder what cps is thinking placing Kaiya with me seeing how her mom is.
EvieDecember 31st, 2015 at 10:14 AM
Sunday, if you live in the US you might be able to call the police and have them go assess her. If they feel the need, they can take her to the hospital against her will for assessment. That’s how I got my daughter in the first time. The worse their mental state is, the more likely they will be admitted by this method. So if your daughter becomes worse than ever, this might actually pay off for her getting care. I always search for reasons to see how their worsening state can be viewed with hope. I try to find rays of hope to help us parents get through this and to choose hope that our children might at least keep from dying. My daughter has attempted suicide 3 times. Yet she still lives and I’m GRATEFUL. I know what it feels to worry my child will die before I do. It cuts like a knife.
Amy W.December 30th, 2015 at 2:34 PM
I have not posted in a while, but I am feeling so hopeless right now. My 33 year old son, Dan, has had multiple diagnoses from a brain injury to lymes and OCD and it is probably all three and more. In any case, he is going through such a horrible time where he does nothing, but stay in bed and watch TV and on some days, I handle it well and on some days, I get so depressed. He has had successes from alternative treatments like hyperbaric treatments that lead me to think that he has definite inflammation in his brain. He had SPECT scans that show that he does not have good circulation to his brain so I know that on some level this is true. I have devoted myself to helping him and have tried so many things and have seen remissions where he has no symptoms and tried to get his live together and then treatments fail. I feel like the only person who lives with someone who suffers like this. I am remarried, but the burden is on me and today, I feel so sad. I do not need answers of what to do- I hjust would love some support from someone who knows how awful watching suffering can be.
BettyDecember 31st, 2015 at 2:46 PM
I just want to tell you you’re not alone. And that its just so painful and stressful for us. I wish I had something to offer but as you know, it is something to be endured, I hope you can find some peace and that your son’s symptoms once again go into remission.
EvieDecember 31st, 2015 at 3:17 PM
Amy W— I am saddened to learn of how hopeless you are feeling. My daughter lived with me for fifteen months and you have been tortured much longer. I still carry the brunt of watching my daughter suffer when I am with her during visits and knowing she is suffering when we are apart. Her former friends, siblings and stepfather detached from the siutuation long before she ended up in an adult foster home. I still hurt with her. She has lost everything including her very self. Yet I am fortunate to be less directly involved with her daily needs and continued suffering. I wish her delusions could be happy ones. They are not. She never leaves my mind and heart. I reach out to you across the miles to let you know that I hear you and relate to your ongoing despair. I guess that is all I have to give you. To tell you I care and will keep you in my prayers. And I will keep you in my thoughts that hold hope for your peace of mind. I hope you will experience even small victories that give you some light within. That you will have even small signs that somehow the status quo of your son might improve. That your inner self will feel stronger and more at ease as we keep putting one foot in front of the other. We have to this and we will support each other as we do.
reneeJanuary 2nd, 2016 at 6:48 PM
How do I find a adult foster home where I live in usa…west Virginia??
EvieJanuary 4th, 2016 at 10:38 AM
Renee, I just saw your Jan 2nd post question (must have missed it earlier) about how to find an adult foster home. I am under the impression that each county of the states vary in the type of group homes available and their rules about how to qualify to live in one. At least in Michigan this seems to be true. I would suggest to start making phone calls and asking questions. I learned through trial and error. My daughter’s adult foster home’s 24 hour staff keeps and administers her meds and oversees meals and hygiene. It is limited but has been a godsend. Prior to this she had worked with social service and was assisted to get on Medicaid which initially paid for this. Now her SSI has gone through which may or may not change how the cost of the home is paid for. She refuses to apply for disability since she insists she is not disabled. She has been fired from her last 4 jobs due to various reasons related to her bizarre delusions which of course are not delusions to her.
LizzieJanuary 1st, 2016 at 7:04 AM
Phew I am mentally exhausted my daughtet 36 undiagnosed bipolar am so tired of wAlking on egg shells , spoke to he doctor who was happy to refer her after I discussed symptoms , that was months ago she refused saying she dies not have it , a baby now on the way so two to worry about . Am working so hard and long to support her house food mortgage heating whilst running my house too , I long ago stopped hoping she would improve as I now know without help this won’t happen . What a mess
MedicationJanuary 2nd, 2016 at 12:58 PM
Hello everyone! We are all in the same boat it seems. Limited solutions yet always optimistic ! What meds are best for Schezophrinia ? I see so many doctors guessing. I need results for my son. Thank you and battle on! Jim
Sherie H.January 3rd, 2016 at 3:58 AM
My son went through all of the meds and found alanzapine to be the best one , side affect was weight gain. But the less alanzapine he took the less weight he gained. Respiridon made him suicidal. But we had to go through them to see which one suited. He’s come off now.
EvieJanuary 3rd, 2016 at 9:48 AM
(Medication) Dear Jim–Yes, the doctors resort to what appears to be guess work. It can be baffling and discouraging, requiring much patience deep inside who you are. The drugs work differently on each person and it is basically trial and error. Hang in there. Just keep traveling this road with us. There will be signposts along the way as you route your course. Whenever they start your son on a med that seems ineffectual, well at least you find what doesn’t work. Also most of the time, according to my research and experience with other parents, the delusions of a schizophrenic don’t disappear. The delusions may have a less obvious or dramatic control over the medicated person. I was told by one psychologist that the delusions are as real as the air they breathe and that they are all that the individual has left. That they are like best friends to that person. Yet the meds usually afford more manageability of the person and help with overall safety. You do hear of schizophrenics who accept their illness and become productive citizens who even end up being advocates for mental health awareness. This would be my goal for all our struggling children. Yet acceptance precedes all. And I have learned to have no expectations.
KimmyJanuary 3rd, 2016 at 2:41 PM
Jim, Evie is right about each individual person. Although, my son is on Meds . His delusions have not just went away. In my post, I said the Meds helps control his delusions. He’s calm, but He may talk about the delusions on today, but the next 2 days he may not say anything about his delusions. Today he may not want to take his Meds because he said he’s not sick and don’t need his medication, but tmw he will take his Meds. Since he has came from the hospital on Dec 6. He has been taking them, but it can change within a drop of a hat…It is a roller coaster ride… God be with us all! Be blessed!
KimmyJanuary 3rd, 2016 at 11:19 AM
My son is on ( Rispidone 2mg )twice a day. Once in the morning and once at night. And he takes Benztropine for the side effects. It works very well and it helps control his delusions. He’s calm and it doesn’t make him like a zombie…He’s has never been violent or abusvie. The only problem we have is getting him to go to the doctor now… Be blessed!
reneeJanuary 2nd, 2016 at 6:39 PM
Update on my son with schizophrenia…he’s been staying in a motel for one week…off his meds again. He receives ssi to help with money. The desk clerk called me and said she’s worried about him. He was standing in the middle of a busy intersection staring at the sky, if he’s outside his room and other people walk by he runs inside his room and slams the door, he opened he’s door while totally nude, he ran out in the parking lot in his boxers only. I called 911 the deputy and paramedics met me at the motel. They asked that I stay in the car while they talk to him. They came back to my car and said they can’t take him against his will to the hospital because he’s not suicidal and answered some simple questions. They all said is he out of his right now yes clearly he is. The deputy went in his motel room. The commode is full of trash, his clothes were laying in the bathtub filled up with water, the sink was running too. So I tried to talk him into going and he became angry at me. My husband and myself is willing to let him come here for a few months to help him get on his feet. But not until he takes his meds. I have a 8 yr old stepson that we have full custody over. I can’t allow him to see and grow thru what I know will happen with my son when he’s not medicated. So I told him go to his doctor Monday and tell her you need help. It hurts me to no end knowing that it’s cold out and he’ll run out of money for the month here soon. But I’m so tired of the stress. Is he homeless will he end up back in jail? What now. My health is being affected too my blood pressure high at work almost passed out. Doctor said it’s stress related and suggested that I increase my antidepressant that I had to get on because of these problems. I have prayed to God to give it to him because I can’t anymore. Right now I have my 2 granddaughters here for the night and can’t even enjoy them because he’s constantly on my mind. I want to call and check on him but I’m trying not to.
DianeJanuary 2nd, 2016 at 9:51 PM
My heart goes out to you. My 27 year old with schizophrenia is living with me and it is very stressful. She is non med compliant. I can see another psychotic episode coming as her symptoms are returning. I just read “I’m not sick. I don’t need help” which has good advice on communicating with a mentally ill person. I have no other advice. It gets harder and harder.
KimmyJanuary 5th, 2016 at 12:32 PM
I hope all is well! You are not alone! My son had an appointment on today. He didn’t not go because he said he don’t need to take Meds nor go to the doctor. He only have 1 day of Meds left. How is your daughter? May God continue to give us strength! Be bless!
Sherie H.January 3rd, 2016 at 4:02 AM
You’re just struggling to live a normal life !! It’s so unfair .
EvieJanuary 3rd, 2016 at 9:19 AM
Renee, I am not in any position, regarding wisdom or psych related professional knowledge. But I can share the plans that partly worked in my case. I found out what to do in my state, which papers to fill out, etc that enabled a judge to court order a psych hospital assessment type admission. The 3 times this occurred my daughter refused treatment and then was probated where it became the law of the state that she comply with meds and plan of care. When the court let the probate to lapse, I repeated the process. That old saying: “A squeaky wheel gets the grease.” Keep squeaking. And keep regrouping to usher in a calm spirit……I know your pain. I feel your life.–Evie.
KelleyJanuary 8th, 2016 at 5:41 AM
I so agree about the squeaky wheel! After calling and calling, I was able to do the same for my son. He was released from the hospital after 10 days, and is probated for the next 3 months. He is doing really well on his new meds, and he knows that if he relapses he goes right back to the hospital. I live in Ohio, but I would think every state has this probate program.
EvieJanuary 8th, 2016 at 9:38 AM
I rejoice with you, Kelley! I am very proud of you that you were persistent. Not an easy thing to do. The first time I resorted to court action in probating my daughter it was such a scary deal. With experience it becomes less traumatic. I only wish the probate could be extended when that option comes up, but at least my daughter knows I can go back to court if she refuses her meds or refuses nutrition and fluids. I am grateful to you for that reminder!
KelleyJanuary 8th, 2016 at 10:07 AM
I have been very fortunate, I’ve only had to deal with this for 2 years, but this last time has made my son realize that he’s had this problem, bipolar 1, for a,long time, but never realized what was wrong with him. Those 2 years were heartbreaking, something we all can relate to. Persistence paid off for me, but as I’ve said before, I kept a written diary of everything that happened, every police report, ever writing he made, all of those are extremely helpful when trying to get your child evaluated.
KimmyJanuary 8th, 2016 at 11:42 AM
I’m glad your son is doing well. I know that with medication and counseling they will do just fine. My son does well when on his meds. The only problem we have is getting him to a doctor for his Meds. He takes his Meds, but want go to a doctors, so we have to have him admitted 10-13 due to non compliance. My question is for anyone who can answer. Can I take him to the local ER for non compliance? And will they admitted him? Be blessed!
EvieJanuary 8th, 2016 at 4:21 PM
Kimmy, in answer to your question, in my experience with my daughter, one time they admitted her to the psych ward through the ER, and another time they didn’t and sent her home. In both cases it seemed to depend on how mentally off she acted to the nurse who happened to be on duty.
KimmyJanuary 9th, 2016 at 1:35 PM
Thanks for replying Evie! I love your support you have for us on this site! I think everyone respect and listen to your advice because you have dealt with this longer than most of us and you have been where we are.. Yes, The 2 times that he has been to admitted his delusions was bad. I don’t want to wait until he have another relapse before I take him to the ER. I was hoping that they will admit him before it happen again because he’s non compliance. I live in GA and I’m learning most of the laws on mentally ill. God bless us all! Be bless!
LorieJanuary 7th, 2016 at 4:05 PM
I have just discovered this thread. So much of what I have read mirrors exactly what we are going through with our 40 year old daughter. My heart is constantly broken. Prayer helps ease the pain and I am thankful for the honest sharing on this site. I don’t want to lose hope but some days are so hard.
JsmomJanuary 7th, 2016 at 6:30 PM
My son went into the hospital yesterday on a 72 hour watch…..
Evie……I’m trying to hold into your words. Jason is 25.
Prayers to all who read this.
EvieJanuary 8th, 2016 at 4:17 AM
My dear brave Jsmom– Thank you for your prayers. We all support each other. The 72 hour watch is a type of building block. It seems inadequate but it is all you can do at this point. The first time I did that to get my daughter hospitalized was hard for me. I feared her anger and unlove toward me. That was April of 2013. The changes since then! She is lost yet alive. I have become stronger and resourceful in finding personal peace. This online support group has also been a blessed help. We all place each building block together. Shared painful struggle. Shared love and hope. May you find all the strength you need.
DianeJanuary 8th, 2016 at 12:21 PM
I read all the posts and admire the strength you all have to advocate for your adult children. I admit I have no strength or energy left to tackle any of the problems related to my 27 year old’s mental illness. I am nearing age 72 and have raised 2 generations of children and find now I must do everything in my power to take care of me. Yesterday I laid down the law that she could not spend any more time lying on my couch 24/7 . It did not go well and there were many irrational comments made. But, I did notice she got up, showered and got dressed. Sometimes it all looks so bleak. I have been through years of therapy relayed to family issues and just want a peaceful life now.it’s all so exhausting sometimes.
DianaJanuary 9th, 2016 at 7:41 PM
I too am up in years(63) , and I am out of strength and so exhausted. My 35 yr old daughter who is bipolar and agoraphobic. She has come back home 7 + times….sometimes for years at a time. She takes her meds but several dr have given her different diagnosis. In any case, I’m TIRED! I want some peace now. She lives 45 mins away now….but it’s still very stressful. She has no friends , never married or has no children and does not drive! Family member are afraid of her and dropped out of sight a long time ago. Totally alone. Which sucks me in cause i know it’s On Me. Recently , I decided to see a therapist ,who is helping me relax. It’s hard. It’s like I’ve been dealing so long that I have PTSD now! Thanks for saying how weary you have gotten. I feel the same way.
EvieJanuary 10th, 2016 at 10:50 AM
Dear courageous Diane, I applaud how you set boundaries! It takes years to learn that. We all have been manipulated by irrational comments. And you stood your ground. It has been my experience that irrational comments abound regardless of whatever approach I try. Nothing “works” and it seems that the beat goes on despite all my best past efforts to walk on eggshells. I have come to the conclusion that nothing I say or don’t say will ward off my daughter’s drama and oppression. So when you were in the heat of the moment and thought things weren’t going well, that is because in our position we are not afforded the luxury of things seeming to go well. Yet things are not always as they seem. You ended up with a victory however small.
EvieJanuary 10th, 2016 at 4:48 AM
My dear Kimmy, Diane, Diana, and all of my kindred hurting beloved friends: May we all somehow learn to pace ourselves on this journey which goes on and on relentlessly. And may we learn to not take on more than we reasonably can. To realize there are no exact right or wrong “solutions” (is there realistically any sole solution to this madness? No wonder we feel half crazed ourselves). The illness of our children has isolated them on a cold, barren rocky island. We find ourselves in that precarious solitary position where our outstretched arms become so weary. Down to our very souls. May we not lose heart as we face each new dilemma with chosen hope. NO EXPECTATIONS, no guilt. No unbalanced idea that we alone bear the burden of any foreseen or unseen outcome. Opening to God’s light to send a specific Ray within each of us, depending on each of our needs. To search and reach so deep, right down into the depths of despair. Bringing renewed strength and focused purpose as to what the next step might be.
KimmyJanuary 11th, 2016 at 9:58 AM
Gm Evie, Thank you for your uplifting words of wisdom! I thank God everyday for allowing me to find this website. It breaks my heart to see so many parents going through the same thing with their Adult MI child. In September, When my son had his first psychotic break, My husband, daughter and I didn’t know what was going on, but we knew that the things our son was saying wasn’t real and we needed to get some help for him. It breaks my heart to see him go through this. It would be easier if he would recognize that he is sick. God be with us all! Be blessed!
DianeJanuary 10th, 2016 at 5:24 AM
Thanks Diana….I have a daily self care routine that includes 3rd age yoga, walking and meditation and in the summer swimming. Without it I’d be lost. Be even so, some days I just do not want to cook, clean or think about real life at all. If I want to take a vacation I would need to hire someone to stay in my home as a sitter and cannot afford it. It has taken me 10 years to get over losing everything in Hurricane Katrina and I would really like some time to live without constant stress. I appreciate knowing you have the same feelings.
DianeJanuary 10th, 2016 at 2:16 PM
Thank you Evie for your uplifting words. I want to say since I gave my ultimatum my 27 year old has gotten up each morning, showered, dressed and taken off to who knows where. She is gone for most of the day and returns around dinnertime. So that is progress in some small way, I think. Weekends seem to be my time of feeling really down as they are traditionally family time, but I will rally tomorrow and get back into the world. I really appreiciate knowing we are all together in this.
JsmomJanuary 10th, 2016 at 8:22 PM
Thank you Evie for your wisdom.
The hospital let my son go earlier than the 72 hours because he was uncooperative and he is now in a temporary shelter…things are hour to hour. My son now wants nothing todo with me because I had him hospitized. It feels like losing my son to hopefully save my son.
It is good to hear many talk about being tired…..I am….and weak. My entire life I’ve had family that affect me or else I supported them. I feel like I’ve been juggling forever. What happens if I’m weak—and I drop a ball…..this is the first place where I can say….I’m afraid of no longer being strong…..it feels like water in my lungs now.
SherieJanuary 11th, 2016 at 9:55 AM
Hi Erin ,
The one thing that always comes through on these comments are that our kids don’t forgive us !! I had it again with my son today trying to make me feel like the worlds worst mother !! When is all we ever do is try to help and protect them !! This is a hard road that we’re all travelling and I feel that they’re are a lot of parents on here that have it way harder than I do now .
Where would they be if we decided to walk away from them when they’re being a abusive/ aggressive or just downright rude.
I still find things with my son hard to swallow.. Eg today at the meal table … Out of nowhere he tells me not to stare at his food and don’t ask any questions !!?! I’m supposed to sit opposite him looking silently at the ceiling .
I despair .. But I really feel for you.
Your not a bad person , your a mum being a mum . X
EvieJanuary 11th, 2016 at 10:33 AM
My dear hurting Jsmom–Let us give your situation the ok for your son to be angry with you. I almost let my daughter die 3 years because I feared the loss of her love toward me. And yes she was angry and wouldn’t speak to me but I forged ahead in taking tiny steps in tough love despite my opposite nature. I am forever reminding myself to not take her behavior and attitude toward me personally. One good thing is that your son is getting a proven in hospital history (his being uncooperative and irrational) which later can be built upon regarding his being probated and the like. As far as dropping the ball, let’s give this situation permission for that to happen as well. All you have to do is breathe, be, and know that the situation is not one that can be controlled by you. Later you can follow your deepest instincts to do the next thing, whatever that next thing might be. Often this might be wait and see (and what can be worse than waiting). It is a very natural thing to become very weak in the face of this torture of a mother’s heart. It feels like death. Please keep writing to us. We feel your pain and as has been said before, we are all in this together.
KimmyJanuary 16th, 2016 at 4:54 PM
I thought about this post as I was at the crisis center on today. My son said things to me that he has NEVER said to me before. He told me that he hate me. He said I was trying to put him in the hospital for nothing. I cried like a baby because he has never talked to me that way. I remember the words of advice that you posted on the other day. I know that’s not him talking to me like that. It’s the disorder that make him behave that way, but it HURTS bad! 😢😢 Be blessed!
ShelJanuary 17th, 2016 at 1:41 AM
I think I’ve just got used to being insulted / humiliated in front of people and shouted at when least expecting it.
The blame game continues for me .. He’s levelled out and seems better off his meds than on , but the mental illness continues ! He’s found s way of joking sarcastically about my erratic behaviour and the torture of making him take what should be my time in hospital …. Thankfully my ex , his dad and sister back me , or I would Proberbly doubt myself.
KimmyJanuary 17th, 2016 at 1:33 PM
Shel, This is what I’m hearing from my son. He said ” I am not sick, you’re the one thats sick and you need to go to the hospital” He told me he didn’t care if he live or die. I took him to the hospital and a walkin crisis center and because they didn’t hear him say it. They wouldn’t do a 10-13 on him, so I’m going to have to wait until Tuesday. Go to the court house to have them do a 10-13 on him. This is so hard! God give us strength! Be blessed!🙏🏽
EvieJanuary 17th, 2016 at 5:14 AM
My dear hurting brave Kimmy, I am grateful that something I said could help a tiny bit. When my daughter’s eyes took on that lazer look, and she launched into hate mode, I told myself that if she had cancer and was having pain and weakness, I wouldn’t have my feelings hurt. In other words, I wouldn’t take her symptoms personally. It took about two and a half years for her to stop being angry at me. I think your son will stop being angry over time. His attitude will change, yet will never be one that seems normal to us and he will always think he is right and you are wrong (but this is from my perspective with my situation)… Also, when a two year old child has a dangerous item removed from his hand, he screams and doesn’t see how his safety is being maintained. It kind of applies. We can love our mentally ill child yet we cannot reason with them. I know, at least in my case, the mentally ill child is incapable of reason. His or her brain just can’t pull it off. The delusions in the ill brain scream louder than reason. My frustration is often heightened because I just keep trying over and over to reason with my daughter. I am going to try to stop doing this…..
I support you in your painful struggle through this. I send love and the hope of peace.
DianeJanuary 17th, 2016 at 12:08 PM
Oh Evie you hit the nail on the head! Reasoning with mental illness does not work. I find it much better just to make statements such as “You need to keep your room clean. You cannot sleep on the couch 24/7.” The mentally ill brain cannot reason and if I try to reason I end up utterly confused by listening to irrational comments.
Thank you for the reminder.
KimmyJanuary 17th, 2016 at 1:35 PM
Thanks Evie, How is Mary doing? God please give us strength! Be blessed🙏🏽
KimmyJanuary 11th, 2016 at 11:08 AM
Iam very sorry to hear that you’re having a trying time with your son! All of us feel your pain.You are not alone! I am mentally weak as we speak. I pray that God gives us all strength! Be blessed!
DianeJanuary 11th, 2016 at 12:27 PM
Sherie…your son’s comments about you staring at his food sound exactly like what my 27 year old granddaughter might say. So irrational and confusing. Yesterday she came in and her first comment was, “So I’ve just been a social experiment all my life?” I couldn’t even respond. Life is so surreal living with a person with mental illness. It takes a toll on all of us.
ShelJanuary 11th, 2016 at 4:25 PM
Diane , my sons actually been better off his meds !!! He’s levelled out now and although he’s still saying weird stuff he’s better and has lost weight as well.
We think that he’s lost his people skills and needs us to keep telling him that he’s thinking wrongly .. So that what we’re gonna start doing.
It’s so uncomfortable around him cos he makes you feel like crap.
Half way through a chat he will just suddenly bite my head off for asking questions .???
I just don’t know what to think !!! This is not the way I planned spending the end of my life … Worrying about him.
JsmomJanuary 12th, 2016 at 12:00 PM
Thank you so much Evie….
All of this feels so cruel…..and everyone is wearing cruel boots trying to walk through their days.
What you say…about letting it be right now as it is……I find myself getting angry at God…..for doing this to my son….to all of our children …..to all who are valnerable. …what purpose would there be?
I see the path my son is on, he’s been on it for 10 years…..
My daughter, her husband and our grandson are coming for the weekend….that is a nice thing.
Please Evie have some beatiful bits in your day……know you do that for others.
EvieJanuary 12th, 2016 at 2:51 PM
Dear honest wonderful Jsmom– I am grateful for you showing up in my life. Your kind words break my heart in a good way. I wanted to say that in my thinking it is fine for you to be angry at God. It is honest anger. You are showing Him your heart that needs healing and He will be with you as you learn the whats of all this. Yet not the whys. My daughter’s fomer fiance keeps wanting to know why he had to fall in love with a girl who surfaced with schizophrenia at age 27. I told him that he can only know the what. That it is what happened. The why of it can’t be known. For me it makes it a bit more simple. I just have to get through the whats. And we are all helping each other do just that.
KayJanuary 13th, 2016 at 6:53 AM
I’ve read most of all the amazing, courageous and strong messages and comments all you wonderful ladies have written. I see that you all are very strong, and have dealt with a lot for a very long time. This message is not about me, it’s about my best friend. She is 31 years old, has an 11 year old who has autism, but it’s only, I guess you could say, “borderline autistic” (you barely notice it). He has ADHD, and he also takes antipsychotic meds. She also has a 9 year old son, who has never been diagnosed with anything, but he gets out of hand a lot. The 11 year old seems to be calming down a bit, but he has outbursts of rage and fits. It got so bad one time, he hit my best friend in the face, and she had to call my husband down to get him away from her cause she was so petrified. He’s been suspended from school, I think 3 times for first fighting, since school started in September. She has thought about putting him in residential quite a few times, but every time it came down to take him, she couldn’t do it. I understands, well, not really, but I’m a mother, and I don’t know if I could ever go through with it either. Her 9 year old is usually okay, but he does get out of hand a lot as well, even to the point where he exposed himself at school, (just recently happened) and she had to take him for a psych evaluation before he was permitted back in. He has been suspended once or twice, as well. She is a nurse and she works A LOT, sometimes I think it’s because of all this, but she’s also a single mom and I know she also works to get everything her family needs and wants. She’s always so stressed and tired, I hate watching this all happen. I thought about talking to her about working less, being home with the kids more, but like I’ve said, being a single mom with a mortgage, plus all other bills, is a lot. I also talked to her about getting them out more. Maybe some kind of kickboxing for the aggression, at least. They are in basketball, but that’s once a week for one hour. If they’re not in school, they’re home playing video games, or watching YouTube channels and whatnot, and every Monday, they have religion class. Her dad recently moved in, and I was over her house last night when she was working, and the way them kids talk to him and act.. They yell and call him names, however, they do joke with him, too, but not as much as they give him stress. He’s in his 70’s, not in very good health, I’m afraid stress may get the best of him, as well. I found this site, looking for an answer to a professional term, for a man, (He’s not a therapist) that comes to her house, he’s supposed to be there to help them with the 11 year old, but he does nothing but sit on the couch and tell the kids to stop, (they don’t listen) if they’re beating the crap out of one another, then goes back to whatever he’s doing, which is usually watching tv. This man gets a paycheck FOR THAT!?! I could do a better job. If I get involved when one or both are acting up, they honestly calm down (at least for a few minutes). I just need some advice for my friend.. I know some of you have been going through different (maybe similar in some ways) situations, and maybe have some kind of advice or guidance to lead me in the right direction to help. I love her and her family, and want to help. Please, if you have any suggestions, or anything to say at all, I’m open to anything.
Thank you so much. Love and prayers to all of you, and hopefully brighter days ahead. xxx,
EvieJanuary 13th, 2016 at 9:25 AM
Dear compassionate Kay, I have heard wonderful, positive comments about a parenting class type of organization called Love and Logic. There are free meetings at churches and such. You are a caring woman and I certainly admire your willingness and motivation to be involved and proactive! That is love in action. You make a difference in this world, my dear lady.
EvieJanuary 13th, 2016 at 7:59 AM
Dear friends–Looks like I will need to follow my own advice and stop in my tracks till I absorb some peace. My thoughts are chasing themselves in circles, and I know you all have been there. Mary’s delusional goals are scary at best. All her beliefs point her in the direction of bodily neglect and damage, emotional despair, mental oppression, enforced self persecution and even death. I hear all the “if this happens then that might happen” ideas in my head. I have my work cut out for me to willfully stop my fretting and exhale.
ShelJanuary 13th, 2016 at 8:57 AM
Hi Evie ,
I’ve started walking my neighbours dog every day in the countryside .. Fresh air does it for me .
I’m gonna try medication as well.
Don’t forget enrolment in the local gym would help your girl.
They call it wellness in England . X
ShelJanuary 13th, 2016 at 8:58 AM
Evie .. That was ment to say meditation not medication .. Lol
EvieJanuary 13th, 2016 at 12:46 PM
Shel, Thank you for the ideas! Also enjoyed the laugh.
DianeJanuary 13th, 2016 at 2:55 PM
So sorry you are invited middle of it all. It’s so exhausting. I agree that mediation can help enormously. I follow Deepak’s Chopra’s wise words and meditations. It has done wonders for me.
We have had a few good days recently for which I am extremely grateful.
Sending wishes to you and your daughter for mire peaceful days.
EvieJanuary 13th, 2016 at 4:59 PM
Diane, Thank you so much for your thoughtful support! I’ve read some of his works and will look up his material again. I had one of his books that I lost when we moved but will get another one.
reneeJanuary 14th, 2016 at 6:01 AM
I believe that any mental illness whether it be anxiety, depression or schizophrenia is demonic. It’s Satan trying to destroy the person afflicted with it and the family. I praise Jesus and plead the blood of Jesus over my son. I rebuke Satan in the name of Jesus Christ. This is my testimony before the Lord my savior and all of you.
KimmyJanuary 14th, 2016 at 10:20 AM
Renee, In Jesus name AMEN!
EvieJanuary 14th, 2016 at 6:02 AM
My dear friends– I hope I’m not being a blog hog. Too many entries by me. I have to talk though. I will feel more peace after talking to you all who understand! When I say there is no one else with whom to talk about Mary, it is no exaggeration. Fairly recently I found out another of her higher power’s requirements (her delusional higher power is higher than God). She has been called by this higher power to usher in world peace. To stop the terrorist activities. This is to be accomplished by her taking a life. Hers or someone else’s. If it is someone else that dies willingly by her hannd, then her imprisonment would be the alternate solution to prevent thousands of deaths. Well, I got through all this. I still had managed to find inner peace. But then more recently she started having her menses again after none for 2 years due to near starvation. Now she takes this as a sign to have a baby. We all know how easy it would be for her to pull this off. She’s a beautiful 30 yr old woman and has no guardian, having the freedom to walk to a bar from the adult foster home to find a man to impregnate her. This is her right, eh?! I feel it becoming more difficult for me to accept this latest twist in the twisted status quo.
KimmyJanuary 14th, 2016 at 10:14 AM
A www Evie! You are not being a blog hog. Nor are you posting to much. Us parents come to this blog to vent to other parents that understands and don’t judge. You are always uplifting us even though your going through similar situations. I know that you are very hurt by Mary’s new delusion. I pray that God gives you strength to deal with yet another situation. It sadden me that our children have to go through this MI. And the parents are under a lot of stress because they don’t want to see or hear that their MI kids have killed themselves or others. Evie, You have been dealing with this for a long time. I pray that God give you peace and a clear Mind to deal with this situation. I’m not good with the right words to say to uplift a person, but what I can tell you is that God want put no more on you that you can bear. Be blessed and God please give all of us strength on today and the days after😘😢
EvieJanuary 14th, 2016 at 3:20 PM
My dear shining star of faith Kimmy– You DO lift us up! I am grateful and feeling improved. I called the human services type place where her psychiatrist and social service staff and caseworker has offices. Mary has not given permission for me to talk with the staff working directly with her. Yet they allowed me to provide info to one of their emergeny call in staff. I wanted to let them know of her latest goal to become pregnant. What they do with this is up to them. I feel more peace now. Thank you for your support which means more to me than you know.
JsmomJanuary 14th, 2016 at 4:45 PM
I feel your frustration……
It feels like careing/being involved in our children’s lives is hurting our own lives…..and we try so hard not to let it and always asking is what I do working for my child, so far the answer is no. Maybe there isn’t an answer, maybe we can’t fix it, maybe we’re not meant to fix. And there are grains of thought inside me that say I need to stay healthy for my other children, grand kids, family and friends too…..
If there were more avenues for professional & affordable assistance how much better would our kids be…..we’d be?
Right now when things are really bad….( my son is back in the hostital )…..one therapy for me is humour–it seems to snap me out of darkness if only for seconds—to remind me about all of life….that life really is a beautiful thing and that there are no guaranties…so hang on to gratitude ….and for me God.
“What are they planting to grow the seedless watermelon?
EvieJanuary 15th, 2016 at 1:48 AM
My dear glorious courageous Jsmom, Your spirit is beautiful and contagious. I caught the healing goodness and sense of it. Of you. And oh how grateful I am for each crumb of shared wisdom and for each healing touch to the soul of who I am and who I am trying to become. Yes, humor is a wondrous help. Thank you for reminding me about that too! And God is with all of us as we help each other keep walking our individual paths with our unique personalities in a world where, as you reminded me, there are no guarantees. Somehow just knowing that helps. No expectations, with the exception of knowing that God will be our ever present help in time of trouble. God help us all.
EvieJanuary 18th, 2016 at 4:33 AM
Shel, You are doing great! I admire your courage and persistence!
EvieJanuary 18th, 2016 at 4:45 AM
Kimmy, You are doing everything in an amazing determined way! I see you repeatedly getting back into the ring. Tired and bloody and bruised but eager to do the right thing in behalf of your son even when you are misunderstood. Mary is setting a course for herself that I fear. I am trying to take a mind vacation from it. I do not want her to get pregnant. Who knew this would be the next complication. I did not see this coming. Still, I must take my advice and not gnaw on this new fear like a dog with a bone. You and all our friends on this site help so much. I am grateful.
EvieJanuary 18th, 2016 at 4:59 AM
Diane, Thank you for affirming me. This journey is winding in new ways that intimidate me. Whenever I think of you and realize you have your daughter there in your home, it brings back memories of when Mary lived here and all the pain and frustration. You are my hero.
DianeJanuary 18th, 2016 at 12:33 PM
Thank you. We all just do what we must to keep our heads up and live the best lives we can for ourselves.
JsmomJanuary 20th, 2016 at 2:16 PM
All I wanted was for you to know ….. I hoped you smiled today.
I wish that for everyone .
EvieJanuary 20th, 2016 at 4:36 PM
Jsmom, You just brought me a big smile! My face feels good in that position and I thank you. Today I have had some temptation to be filled with dread but I spit it out in the nick of time. So I would venture to say I’m doing better. I can’t control what tomorrow brings about Mary, so I will keep trying to choose to live unfettered in each perfect moment.
DianeJanuary 23rd, 2016 at 7:56 AM
While things are going better with my 27 year old in that she has begun taking her antipsychotic medication and is attending classes for a graduate degree, I am still very weary a lot of the time. Her illness leaves her with no understanding if how I feel and even if I tell her it goes in one ear and out the other. She will comply got a few days and then it’s back to loud music, dishes left around etc. we live in a small apartment so are together almost all the time. I get so tired of having to repeat myself over and over.
Just needed to vent today as I woke up to music playing and it irritates me.
May be all have the courage to stand tall and carry on. I really appreciate knowing there are others who understand.
KimmyJanuary 23rd, 2016 at 11:40 AM
Diane, It’s alright to vent. We’re here with listening ears. I’m very glad that your daughter is on her Meds and attending classes. That’s great! I understand how you feel when you have to repeat yourself a thousand times. I have that problem too, but at least your daughter is trying to live a half way normal life by getting out the house and going to class. May God continue to give all of us strength! Be blessed!
SedJanuary 24th, 2016 at 7:10 AM
Great article helping me to understand constant stress – will increase FOCUS to include gym/exercise as part of my daily life.
ShelJanuary 24th, 2016 at 10:55 PM
Yes sed , my son has found it his saviour .. He does the gym and lessons every day ! Not sure where he’d be without it
SedJanuary 24th, 2016 at 7:34 AM
My 28 year old daughter was hospitalized and diagnosed schizophrenia bipolar summer 2015. After returning home she refuses to sleep in her bedroom, sleeping with me in my bed. I began sleeping on sofa. She now tries to sleep on sofa with me. After LOTS of nagging will finally go to love seat. I am seriously considering sleeping in my bedroom, using deadbolt lock to keep her out. But do fear she will begin leaving home in middle of night. Anyone else have similar dilemma?
DianeJanuary 24th, 2016 at 1:02 PM
Yes! My 27 year old had the same problem after an ER visit for a schizophrenic episode last summer. She wanted to sleep in my room with me and I said No. Luckily she didn’t insist. Recently she began sleeping on the couch in the living room and I had to mix that too as she was there 24/7. I told her that I have a room for her and if she doesn’t want to sleep in it, she will have to find other accommodations. She replied with a lot of irrational comments, but got up and has been sleeping in her room since. She has to keep the door open and light on all night. I know what you are going through and it’s awful. I find sometimes drawing a line on the sand and giving an ultimatum is what I have to do.
ShelJanuary 24th, 2016 at 10:52 PM
It’s all really so sad … We seem to be taking my sons independence away a little bit at the moment .. I’ve just had a really bad day with him today , we try to allow him to do his own car insurance but it didn’t go well , he completely mucked up all the websites and made it impossible for us to use later on when he was desperate … It’s awful because he’s trying so hard and the world isn’t understanding with mental health , he now feels that every one is evil .. We’re teetering on the edge again , I can feel it .
DianeJanuary 25th, 2016 at 10:19 AM
Oh Shel that teetering on the edge feeling I know so well. Good thoughts coming to you.
JTJanuary 27th, 2016 at 10:05 AM
This makes me so sad. I’m an adult with a severe mental illness and it’s difficult for my family both emotionally and financially. This article and comments have motivated me to move out and live off the grid
EricaFebruary 2nd, 2016 at 8:03 AM
It is heartbreaking to read everyone’s stories. I have always wondered why there is so little support for the parents of these children! It is so amazing that the diagnosed patients are able to manipulate so many doctors, counselors, psychiatrists, social workers, teachers and other ‘professionals’. We went through everything with our daughter as well. She has bipolar, ADHD, depression, past hospitalizations & previous suicide attempts. My father also committed suicide in 2012. I’m sure we have $100,000 in legal expenses (clearing our names), gas, doctors, hospitalizations & much more. Our HIPPA laws need to be changed. How is it a 16 year old with mental illness cannot have parent involvement with doctors? This does not help the situation. Parents need to be involved and advocating for the child. Our daughter spent 4 months in fostercare thanks to our broken flawed system, she should have spent a week or more in the hospital, but we were not allowed input. After case dismissal, within a month she was hospitalized. Our system has taught her not to be responsible or even worst, that any of her actions have no consequences. Now she is 22 and pregnant with 2nd child with a boy she is living with and dated for 4 months. We just baled her out $1000 financially for rent. I feel like we should not have done that and most likely will not be doing that again. I pray the new boyfriend is a good dad & can stay the course. There is nothing I can do at this point. She seems to be in a good mood when she calls, but every time the phone rings I expect her to be crying, saying she can’t do it & wants to end it all. I want the best for her and kids. We really should have a forum to share ideas and for venting purposes. I do not have anyone near me who comes close to understanding a child with mental health issues.
ShellFebruary 2nd, 2016 at 10:10 AM
Hi Erica , I think we all know how you feel..I spend an awful lot of time thinking and hoping that I will wake up and it’s all a bad dream.
I haven’t been as unlucky as you because my son hasn’t had a relationship since he’s had mental health issues, I don’t even want to think what it would be like if he did.
He is very very stable at the moment , because we’ve just been through a bad patch with him.
EvieFebruary 5th, 2016 at 8:28 AM
My dear patient enduring Diane, Mary did the exact same thing your daughter did and for the same reasons. As a result she became so nervous (off her pres ription meds)that she started vomiting all she ate. Finally she admitted herself to the hospital due to her uncontrollable symptoms. This is a long story told short, but I hope you can hold onto the hope that she might have to get worse before she will take meds again. These puzzle pieces don’t make sense but I like to hope that they do end up fitting together. This puzzle piece you are now facing is a doozy though!
DianeFebruary 5th, 2016 at 12:45 PM
I agree. I have to stay neutral in this in order to keep my head up. She seems able to work and keep up with her classes, but not sure how long it will last. Thanks for your good thoughts.
EvieFebruary 12th, 2016 at 7:52 AM
My beloved friends, I just tried to send a blog and hope this is not a repeat. Someone may need to hear this: this morning I was reading the lyrics of a sad song that reminded me of Mary. My ever present grief began to expand like a soggy sponge of tired tears. I then made a choice to stop romanticizing my grief about her. I have often made that mistake, later to have it turn on me like a rabid badger. Picturing myself as a fly being blown by the cosmic wind (the breath of God) seems to help. You can then feel the calming effect of that breath on the skin of your raw emotions. And then to choosing not to resist as it gently wafts you to the next place in your child’s oppresive ordeal. It may be a place of quiet waiting or the leading to an uncomplicated action or behavior that takes you by a soft surprise.
DianeFebruary 12th, 2016 at 9:51 AM
You have such a way with words. Thank you! It is so easy to romanticize the grief. I find I do much better when I love my granddaughter while maintaining an emotional distance. And make my self care top priority.
May you walk with calm and ease today!
EvieFebruary 12th, 2016 at 3:40 PM
Dear loving grandmother, Diane– I am grateful for the sharing of your wise thoughts. To love and yet keep some emotional distance is advice I can use.
JsmomFebruary 12th, 2016 at 10:03 AM
Hi Evie…..I check in often to see the posts. To see and feel the wisdom of others. Reading your post now……it’s hard right now to absorb. My son went to the ER last night after taking a bunch of pills ……on purpose. I have all sorts or emotion swirling…..but at the top is anger. Why does this happen to our children— my son is getting weaker and so am I, the whole family…10 years now…..what is left….I just don’t know what to pray for…how how how can I fix this when I am in such tiny pieces!!!!! No one knows how f – d up I am inside. And everyone is looking to me to fix this.
EvieFebruary 12th, 2016 at 11:53 AM
My dear hurting Jsmom, You are feeling fragmented and eff’d up. I can relate to that in every way. All I know to share is that at least you know you don’t have the answers. Somehow I think it would be so painful to see an answer and have no way to get there. I gave up on answers long ago. I have used philosophical ideas to get me through the night. It falls short of being a tangible solution, but it helps me keep a type of faith. One philosophical idea I actually made UP because I was so desperate. “There are no answers because there are no questions.” It is amazing the lengths people go to in order to survive. May we parents and our troubled children survive one moment at a time in chosen hope and small grains of haphazard peace. I honor and cherish all of you as we muddle through, enduring the best we can.
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