Children with Epilepsy Report Good Quality of Life

May 15th, 2010

       

Therapy News

Parents of children who are affected by epilepsy tend to think that the quality of life experienced by their kids is significantly lower than children without the concern, yet a study carried out at the University of California at Los Angeles suggests that the children themselves perceive a much greater quality of life than do their parents. The findings reflect data gathered from parents who supplied information and assessments on both their child with epilepsy and their healthy siblings. Kids with epilepsy reported a more positive perspective, suggesting that parents may not fully understand their children’s experiences.

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Comments

  • Eliza May 17th, 2010 at 11:11 AM #1

    So much of caring for kids with health issues such as epilepsy falls directly onto the shoulders of the parents and makes it difficult for everyone in the family to enjoy a normal family life. They bend over backwards naturally to care for the kids but it can put such a strain on the adults in the home.

  • tonya May 17th, 2010 at 12:56 PM #2

    Parents not fully understanding their children’s experiences may be a negative way to look at the issue.The positive way would be that even though these kids have epilepsy they are able to lead normal lives and that it may be because the parents and family of such children shower them with a lot of love and they just don’t feel the problem in them!

  • Kyle May 17th, 2010 at 9:15 PM #3

    It’s a credit to the families and their siblings that the children don’t feel that much different. Despite their parents having their own reservations about what the children’s quality of life shall be, they’ve obviously been brought up to see themselves as an ordinary child first and with epilepsy second.

  • Hannah May 18th, 2010 at 2:43 AM #4

    Good for these kids! These parents are obviously giving them what they ned to feel good about their lives, it is time for the parents to do the same for themselves.

  • Gavin May 18th, 2010 at 1:20 PM #5

    I’ve came across this before, where a child with a disability simply didn’t feel it impacted his life to the extent that his parents did. As he grew older, he felt they had stifled him with their insistence that his problem was worse than he ever personally felt it was. The kids are the ones living the life. They themselves are the best judge of how they feel!

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